Engaging children in healthcare technology design: developing rehabilitation technology for children with cerebral palsy

Weightman, Andrew; Preston, Nick; Holt, R. Glynn; Allsop, Matthew J; Levesley, Martin; Bhakta, Bipin

doi:10.1080/09544820802441092

Cited by 49 publications

(39 citation statements)

References 22 publications

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“…However, their design methods do not appear to involve user‐centred design or focus groups within the CP population or their caregivers. Designing with a multidisciplinary approach can lead to increased acceptance of devices, increased use, and improved performance 31,61,62 . Careful evaluation of the needs of the user and selection of a device that is easy to use with maximum comfort is likely to be as important as target performance 36 …”

Section: Discussionmentioning

confidence: 99%

Enabling self‐directed computer use for individuals with cerebral palsy: a systematic review of assistive devices and technologies

Davies

Mudge

Ameratunga

et al. 2010

Develop Med Child Neuro

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AIM The purpose of this study was to systematically review published evidence on the development, use, and effectiveness of devices and technologies that enable or enhance self-directed computer access by individuals with cerebral palsy (CP).METHODS Nine electronic databases were searched using keywords 'computer', 'software', 'spastic', 'athetoid', and 'cerebral palsy'; the reference lists of articles thus identified were also searched. Thirty articles were selected for review, with 23 reports of development and usability testing of devices and seven evaluations of algorithms to increase computer recognition of input and cursor movements.RESULTS Twenty-four studies had fewer than 10 participants with CP, with a wide age range of 5 to 77 years. Computer task performance was usually tested, but only three groups sought participant feedback on ease and comfort of use. International standards exist to evaluate effectiveness of non-keyboard devices, but only one group undertook this testing. None of the study designs were higher than American Academy for Cerebral Palsy and Developmental Medicine level IV.INTERPRETATION Access solutions for individuals with CP are in the early stages of development.Future work should include assessment of end-user comfort, effort, and performance as well as design features. Engaging users and therapists when designing and evaluating technologies to enhance computer access may increase acceptance and improve performance.

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Section: Discussionmentioning

confidence: 99%

Enabling self‐directed computer use for individuals with cerebral palsy: a systematic review of assistive devices and technologies

Davies

Mudge

Ameratunga

et al. 2010

Develop Med Child Neuro

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“…Continuing previous work of Charterhouse Rehabilitation Technologies Laboratory at the University of Leeds [26], the research took place between 2009 and 2010 in five mainstream primary schools from education authorities in Yorkshire, UK. The research protocol was designed for delivery in a mainstream school environment as it provides direct access to the end users of healthcare technology for children and their peers, alongside providing access to the insight and support provided by teachers [27].…”

Section: Methodsmentioning

confidence: 99%

“…Although guidelines exist for establishing links with schools in healthcare technology development research [26], the cost of this process is difficult to capture in financial terms.…”

Section: Addition Of New Criteria To Frameworkmentioning

confidence: 99%

Evaluating methods for engaging children in healthcare technology design

Allsop

Holt

2013

Health Technol.

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Telephone: 0044 113 343 4185The authors declare that they have no conflict of interest. 2 AbstractExamples of user involvement can be found throughout healthcare literature. This extends to the design and development of healthcare technology where the involvement of users has been found to positively impact the quality and safety of products. However, there is currently little known about which methods are the most appropriate for involving children in technology development. The research applied and developed a framework to guide the use of methods in the design and development of healthcare technology for upper limb rehabilitation in children with cerebral palsy. Utilising an assessment framework to explore the suitability of four interview methods for involving children in the design and development of healthcare technology, research was carried out in primary schools in the United Kingdom. The research team i) used the assessment framework to guide the collection of information for comparing methods for involving children; ii) considered additional criteria for inclusion in the framework; and iii) gathered observations and data to comment on the criteria in relation to the four interview methods. Children were able to participate in all four interview methods, although further consideration is needed to identify how children with disabilities can be involved in design activities forming part of interview methods. Differences were found between the methods relating to their robustness, reliability, validity, efficiency, enjoyment and cost. The involvement of participants with a disability highlighted the need to develop new methods that support their inclusion in healthcare technology design work. The assessment framework applied in this research was useful to inform the comparison of methods and represents a step towards a more unified approach to understanding how best to capture the perspectives of children to develop technology that best serves their needs.

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“…Prompted by the findings of this feasibility study 15 and our user group meetings 16,17 a purpose built system was designed and implemented. Firstly, some children preferred to have the option of playing with friends and family in competitive or collaborative games;…”

Section: Introductionmentioning

confidence: 99%

Feasibility of school-based computer-assisted robotic gaming technology for upper limb rehabilitation of children with cerebral palsy

Preston

Weightman

Gallagher

et al. 2014

Disability and Rehabilitation: Assistive Technology

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This is a repository copy of Feasibility of school-based computer-assisted ReuseUnless indicated otherwise, fulltext items are protected by copyright with all rights reserved. The copyright exception in section 29 of the Copyright, Designs and Patents Act 1988 allows the making of a single copy solely for the purpose of non-commercial research or private study within the limits of fair dealing. The publisher or other rights-holder may allow further reproduction and re-use of this version -refer to the White Rose Research Online record for this item. Where records identify the publisher as the copyright holder, users can verify any specific terms of use on the publisher's website. TakedownIf you consider content in White Rose Research Online to be in breach of UK law, please notify us by emailing eprints@whiterose.ac.uk including the URL of the record and the reason for the withdrawal request. Abstract: Feasibility of school-based computer-assisted robotic gaming technology for upper limb rehabilitation of children with cerebral palsy. IntroductionWe investigated the feasibility of using Computer-Assisted Arm Rehabilitation computer games in schools O preference for single player or dual player mode, and changes in arm activity and kinematics. MethodNine boys and two girls with cerebral palsy (6 12 years, mean 9 years) played assistive technology computer games in single-user mode or with school friends in an AB-BA design. Preference was determined by recording the time spent playing each mode and by qualitative feedback. We used the ABILHAND-kids and Canadian Occupational Performance Measure to evaluate activity limitation, and a portable laptop-based device to capture arm kinematics. ResultsNo difference was recorded between single-user and dual-user modes (median daily use 9.27 versus 11.2 minutes, p = 0.214). Children reported dual-user mode was preferable. There were no changes in activity limitation (ABILHAND-kids, p = 0.424; COPM, p = 0.484) but we found significant improvements in hand speed (p = 0.028), smoothness (p = 0.005) and accuracy (p = 0.007) ConclusionSchool timetables prohibit extensive use of rehabilitation technology but there is potential for its short-term use to supplement a rehabilitation programme. The restricted access to the rehabilitation games was sufficient to improve arm kinematics but not arm activity.

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Engaging children in healthcare technology design: developing rehabilitation technology for children with cerebral palsy

Cited by 49 publications

References 22 publications

Enabling self‐directed computer use for individuals with cerebral palsy: a systematic review of assistive devices and technologies

Enabling self‐directed computer use for individuals with cerebral palsy: a systematic review of assistive devices and technologies

Evaluating methods for engaging children in healthcare technology design

Feasibility of school-based computer-assisted robotic gaming technology for upper limb rehabilitation of children with cerebral palsy

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