Engaging communities in tuberculosis research

Boulanger, Renaud; Seidel, Stephanie; Lessem, Erica; Pyne-Mercier, Lee; Williams, Sharon D.; Mingote, Laia Ruiz; Scott, Cherise P.; Chou, Alicia Y; Lavery, James V.

doi:10.1016/s1473-3099(13)70042-2

Cited by 30 publications

(14 citation statements)

References 18 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Engaging communities is paramount in TB research [27], [28] and the success of this program is attributable to strong community engagement in the design, development and delivery of the program. This study used fewer technical resources (no geographic information systems (GIS) and no genotyping) making it more applicable and accessible than other studies for front line staff to deploy in remote areas that are underserviced [14].…”

Section: Discussionmentioning

confidence: 99%

TAIMA (Stop) TB: The Impact of a Multifaceted TB Awareness and Door-to-Door Campaign in Residential Areas of High Risk for TB in Iqaluit, Nunavut

et al. 2014

View full text Add to dashboard Cite

BackgroundThe incidence rate of active tuberculosis (TB) disease in the Canadian Territory of Nunavut has shown a rising trend over the past 10 years. In 2010 it was 60 times greater than the national incidence rate. The objective of the Taima (translates to “stop” in Inuktitut) TB study was to implement and evaluate a public health campaign to enhance existing TB prevention efforts in Nunavut.MethodsA TB awareness campaign followed by a door-to-door screening campaign was carried out in Iqaluit, Nunavut. The aim of the campaign was to raise awareness about TB, and to provide in-home screening and treatment for people living in residential areas at high risk for TB. Screening was based on geographic location rather than on individual risk factors.ResultsDuring the general awareness campaign an increase in the number of people who requested TB testing at the local public health clinic was observed. However, this increase was not sustained following cessation of the awareness campaign. Targeted TB screening in high risk residential areas in Iqaluit resulted in 224 individuals having TSTs read, and detection of 42 previously unidentified cases of latent TB, (overall yield of 18.8% or number needed to screen = 5.3). These cases of latent TB infection (LTBI) were extra cases that had not been picked up by traditional screening practices (34% relative increase within the community). This resulted in a 33% relative increase in the completion of LTBI treatment within the community. The program directly and indirectly identified 5/17 new cases of active TB disease in Iqaluit during the study period (29.5% of all incident cases).ConclusionsWhile contact tracing investigations remain a cornerstone of TB prevention, additional awareness, screening, and treatment programs like Taima TB may contribute to the successful control of TB in Aboriginal communities.

show abstract

Section: Discussionmentioning

confidence: 99%

TAIMA (Stop) TB: The Impact of a Multifaceted TB Awareness and Door-to-Door Campaign in Residential Areas of High Risk for TB in Iqaluit, Nunavut

et al. 2014

View full text Add to dashboard Cite

show abstract

“…While outside the scope of this paper, engaging local communities in TB and/or HIV research is an important step in developing TBIC plans that have buy-in within the targeted community. 37 …”

Section: Putting Infection Control Plans Into Research Practicementioning

confidence: 99%

Optimizing the Protection of Research Participants and Personnel in HIV-Related Research Where TB Is Prevalent

Farley

Landers

Godfrey

et al. 2014

JAIDS Journal of Acquired Immune Deficiency Syndromes

View full text Add to dashboard Cite

Tuberculosis (TB) is a leading cause of death among persons with Human Immunodeficiency Virus (HIV) globally. HIV-related research in TB endemic areas raises some unique and important ethical issues in infection control related to protecting both research participants and personnel. In order to address such concerns, this paper provides practical guidance to help research teams develop strategies to prevent TB transmission in studies involving persons with HIV in TB endemic settings.

show abstract

“…It also demonstrates respect for, and empowerment of, communities and improves the relevance and quality of research [10]. A review of literature [6, 7, 11, 12] shows that, in most cases, community engagement is used to describe activities such as information delivery, consultation, collaboration in decision-making, empowering action in informal groups or formal partnerships and in health care delivery and promotion.…”

Section: Introductionmentioning

confidence: 99%

Initiating community engagement in an ecohealth research project in Southern Africa

2017

View full text Add to dashboard Cite

BackgroundCommunity Engagement (CE) in health research ensures that research is consistent with the socio-cultural, political and economic contexts where the research is conducted. The greatest challenges for researchers are the practical aspects of CE in multicentre health research. This study describes the CE in an ecohealth community-based research project focusing on two vulnerable and research naive rural communities.MethodsA qualitative, longitudinal multiple case study approach was used. Data was collected through Participatory Rural Appraisals, Focus Group Discussions, In-depth Interviews, and observations.ResultsThe two sites had different cultural values, research literacy levels, and political and administrative structures. The engagement process includedintroductions to the administrative and political leaders of the area;establishing a community advisory mechanism;community empowerment andinitiating sustainable post-study activities. In both sites the study employed community liaison officers to facilitate the community entry and obtaining letters of permission. Both sites opted to form Community Advisory Boards as their main advisory mechanism together with direct advice from community leaders. Empowerment was achieved through the education of ordinary community members at biannual meetings, employment of community research assistants and utilising citizen science. Through the research assistants and the citizen science group, the study has managed to initiate activities that the community will continue to utilise after the study ends. General strategies developed are similar in principle, but implementation and emphasis of various aspects differed in the two communities.ConclusionsWe conclude that it is critical that community engagement be consistent with community values and attitudes, and considers community resources and capacity. A CE strategy fully involving the community is constrained by community research literacy levels, time and resources, but creates a conducive research environment.Electronic supplementary materialThe online version of this article (doi:10.1186/s40249-016-0231-9) contains supplementary material, which is available to authorized users.

show abstract

Engaging communities in tuberculosis research

Cited by 30 publications

References 18 publications

TAIMA (Stop) TB: The Impact of a Multifaceted TB Awareness and Door-to-Door Campaign in Residential Areas of High Risk for TB in Iqaluit, Nunavut

TAIMA (Stop) TB: The Impact of a Multifaceted TB Awareness and Door-to-Door Campaign in Residential Areas of High Risk for TB in Iqaluit, Nunavut

Optimizing the Protection of Research Participants and Personnel in HIV-Related Research Where TB Is Prevalent

Initiating community engagement in an ecohealth research project in Southern Africa

Contact Info

Product

Resources

About