Engaging Ethnically Diverse Populations in Self-Management Interventions for Chronic Respiratory Diseases: A Narrative Review

Maddocks, Stacy; Camp, Pat G.; Tang, Clarice Y

doi:10.1007/s41030-023-00218-y

Cited by 3 publications

(9 citation statements)

References 52 publications

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“…81,82 To date, strategies to implement culturally and linguistically responsive interventions have been developed but appear to be poorly applied. 79 Paediatric patients. The school can be an important facilitator for implementation of asthma self-management interventions for children and adolescents.…”

Section: Tailoring Of Interventionsmentioning

confidence: 99%

“…Globally, migrants living outside their country of birth make up a substantial proportion of the chronic respiratory disease population. 79 Language, cultural differences, religion, and socioeconomic status may complicate access to interventions, interaction with HCPs, and intervention adherence. 79 , 80 Cultural norms may influence the patient’s empowerment to act as an informed decision-makers, their partnerships with HCPs, their disease self-management, and their access and navigation of health information.…”

Section: Tailoring Of Patient-centred Approachesmentioning

confidence: 99%

“… 79 Language, cultural differences, religion, and socioeconomic status may complicate access to interventions, interaction with HCPs, and intervention adherence. 79 , 80 Cultural norms may influence the patient’s empowerment to act as an informed decision-makers, their partnerships with HCPs, their disease self-management, and their access and navigation of health information. 81 , 82 To date, strategies to implement culturally and linguistically responsive interventions have been developed but appear to be poorly applied.…”

Section: Tailoring Of Patient-centred Approachesmentioning

confidence: 99%

“… 81 , 82 To date, strategies to implement culturally and linguistically responsive interventions have been developed but appear to be poorly applied. 79 …”

Section: Tailoring Of Patient-centred Approachesmentioning

confidence: 99%

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Developments in respiratory self-management interventions over the last two decades

Effing

2023

Chron Respir Dis

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This paper describes developments in the fields of asthma and COPD self-management interventions (SMIs) over the last two decades and discusses future directions. Evidence around SMIs has exponentially grown. Efficacy on group level is convincing and both asthma and COPD SMIs are currently recommended by respiratory guidelines. Core components of asthma SMIs are defined as education, action plans, and regular review, with some discussion about self-monitoring. Exacerbation action plans are defined as an integral part of COPD management. Patient’s adherence to SMI’s is however inadequate and significantly reducing the intervention’s impact. Adherence could be improved by tailoring of SMIs to patients’ needs, health beliefs, and capabilities; the use of shared decision making; and optimising the communication between patients and health care providers. Due to the COVID-19 pandemic, digital health innovations have rapidly been introduced and expanded. Digital technology use may increase efficiency, flexibility, and efficacy of SMIs. Furthermore, artificial intelligence can be used to e.g., predict exacerbations in action plans. Research around digital health innovations to ensure evidence-based practice is of utmost importance. Current implementation of respiratory SMIs is not satisfactory. Implementation research should be used to generate further insights, with cost-effectiveness, policy (makers), and funding being significant determinants.

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Section: Tailoring Of Interventionsmentioning

confidence: 99%

Section: Tailoring Of Patient-centred Approachesmentioning

confidence: 99%

Section: Tailoring Of Patient-centred Approachesmentioning

confidence: 99%

“… 81 , 82 To date, strategies to implement culturally and linguistically responsive interventions have been developed but appear to be poorly applied. 79 …”

Section: Tailoring Of Patient-centred Approachesmentioning

confidence: 99%

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Developments in respiratory self-management interventions over the last two decades

Effing

2023

Chron Respir Dis

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“…2023) reviewed strategies for engaging these populations, emphasizing the importance of culturally tailored interventions that respect and incorporate patients' beliefs and practices. This is particularly relevant in multicultural societies, where standardized approaches may not be effective (Maddocks et al, 2023).…”

Section: Introductionmentioning

confidence: 99%

The Role of Health Beliefs in Managing Chronic Respiratory Diseases

Yang,

McDonnell,

Şahin

2024

JPPR

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The objective of this study was to explore the role of health beliefs in managing chronic respiratory diseases (CRDs) through qualitative analysis of patients' perceptions, treatment beliefs, and self-management practices. This qualitative research utilized semi-structured interviews with 20 participants diagnosed with CRDs. Participants were selected using purposive sampling, and data were collected until theoretical saturation was reached. Interviews were transcribed verbatim and analyzed using NVivo software, following a thematic approach to identify key themes and subthemes related to health beliefs and disease management. The analysis revealed three main themes: perceptions of the disease, beliefs about treatment, and self-management practices. Key findings included that 70% of participants had misconceptions about their disease, 65% experienced significant emotional responses such as anxiety and depression, and 80% reported varying levels of trust in healthcare providers. Medication beliefs significantly influenced adherence, with 75% expressing concerns about side effects and dependency. Support systems played a crucial role, with 85% of participants relying on family and community resources for managing their condition. Health beliefs play a critical role in the management of CRDs, influencing patients' perceptions, treatment adherence, and self-management practices. Misconceptions, emotional responses, and trust in healthcare providers were significant factors affecting disease management. Enhancing patient education, addressing emotional well-being, and leveraging support systems are essential for improving health outcomes in CRD patients. Culturally tailored interventions and systemic healthcare changes are recommended to address barriers to effective self-management.

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Chronic Obstructive Pulmonary Disease: Lifestyle Impact

Mathur,

Singh

2024

International Journal of Preventive Medicine

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Respiratory infections, a global health priority according to the World Health Organization, cause around 7.5 million deaths annually, constituting 14% of global mortality. Beyond severe health implications, these diseases exacerbate social disparities and impose a substantial economic burden. Chronic obstructive pulmonary disease (COPD) combines chronic bronchitis (airway inflammation) and emphysema (air sac destruction) caused by prolonged exposure to irritants, and poor lifestyle choices lead to airway blockage and breathing difficulties. Lifestyle choices significantly influence health trajectories, evidenced by a consistent increase in “positive comfort” over time. A Chinese study highlights the correlation between adopting a healthy lifestyle and increased life expectancy. European health initiatives address these challenges, emphasizing early detection through large-scale health camps to identify new cases and assess severity. Exacerbation and infections are primary triggers, with bacteria and viruses requiring antibiotic interventions. Awareness campaigns targeting causes, symptoms, and prevention, including childhood infection initiatives with influenza and pneumococcal vaccinations, are crucial. Motivating smoking cessation and encouraging whole grain, fruit, and vegetable consumption mitigate lung oxidative damage. Promoting physical activity and addressing environmental pollution contribute to overall lung health. Timely nutritional evaluations for newly diagnosed cases manage obesity and malnutrition and prevent further lung function deterioration. There is growing attention toward the influence of poor lifestyle choices like sedentary lifestyle, environmental exposure, and unhealthy dietary patterns on the increased risk of COPD development besides smoking. This essay explores these factors, recognizing the intricate interplay between lifestyle and COPD prevention and management.

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Engaging Ethnically Diverse Populations in Self-Management Interventions for Chronic Respiratory Diseases: A Narrative Review

Cited by 3 publications

References 52 publications

Developments in respiratory self-management interventions over the last two decades

Developments in respiratory self-management interventions over the last two decades

The Role of Health Beliefs in Managing Chronic Respiratory Diseases

Chronic Obstructive Pulmonary Disease: Lifestyle Impact

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