Engaging Gypsy, Roma, and Traveller Communities in Research: Maximizing Opportunities and Overcoming Challenges

Condon, Louise; Bedford, Helen; Ireland, Lana; Kerr, Susan; Mytton, Julie; Richardson, Zoe; Jackson, Cath

doi:10.1177/1049732318813558

Cited by 61 publications

(72 citation statements)

References 48 publications

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“…It is known that research on the health of the Roma population is limited and difficult to access [6]. Therefore, to increase the validity of the study, selfadministered questionnaires were completed with the help of the Spanish Roma foundation.…”

Section: Study Desingmentioning

confidence: 99%

“…The Roma population is the ethnic group that suffers the highest discrimination rate, both in Europe and in Spain, even though data indicate that the Roma population feels that they were successfully integrated into the Spanish society, which is a plural society [3] [4]. Condon et al reported that the Roma population has serious health inequalities when compared to other minority ethnic groups [6], and that they have poor health indicators with respect to the non-Roma population [7]. Health inequalities are due to the fact, that it is an ethnic group with its own culture and values [2], and not only that, minority groups have a socio-economic gap [8].…”

Section: Introductionmentioning

confidence: 99%

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Foot health among the Roma population of southern Spain according to the foot health status questionnaire

et al. 2020

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Background: Foot health of the Roma population is a challenge for the health professionals where this minority is significant, as is the case in Spain. At present, little is known about foot health of the Roma population and their knowledge would promote the training of these professionals at the community level. Foot pain is common and a reason for consulting podiatry services. The purpose of this study was to determine foot health among the Roma population according to the Foot Health Status Questionnaire. Method: An observational, cross-sectional and quantitative study conducted at the Roma population living in Spain in 2018. Self-reported data and the Foot Health Status Questionnaire were recorded. Examining the general health and foot health (foot pain, foot function, footwear and general health) and general (general health, social capacity, physical activity and vigour). This questionnaire is recommended as a valid and reliable patient-reported outcome. The obtained scores were compared. Results: A sample made up of 624 men and women from the Roma population took part in this study. 45% were Roma men and 55% Roma women. In the first section of the FHSQ, a lower score of values was recorded in the footwear domain (62.5) and in the general foot health domain (60). Gypsy women obtained lower scores in all the domains. In the second section, lower scores were obtained in the vigour (56) domain and in the general health (60) domain. A large effect size (r-Rosenthal) was found by gender in the footwear domain (0.334) and in the vigour domain (0.195). Roma women showed higher values in cardiac disorders, serious illnesses, doctor visits and foot problems. 67.8% reported that they had never been assisted by a podiatrist. Conclusions: The studied Roma population has foot health problems, and these are more pronounced among women. They show lower values in the footwear and vigour domains. More professional training is required for health workers in this field to avoid cultural diversity stereotypes.

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Section: Study Desingmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Foot health among the Roma population of southern Spain according to the foot health status questionnaire

et al. 2020

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Section: Introductionmentioning

confidence: 99%

The “PPI Hawker”: An innovative method for Patient and Public Involvement (PPI) in health research

Puerta¹,

Smith²

2020

Preprint

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Background: Patient and Public Involvement (PPI) in health research entails doing research ‘with’ the public. Successful PPI requires a diversity of patients’ perspectives and experiences. In Singapore, including the public’s voice in research is still in its infancy and different ways of involving the public have to be explored. Our aims were to describe a PPI initiative that enables members of the public to share their ideas and opinions about health research, and to assess the feasibility, accessibility and utility of the initiative. Methods: Building on the concept of the PPI Café used in the west we designed a “PPI Hawker” for Singapore. Here Hawker Centres rather than cafes are used frequently for eating and socialising, providing a one-stop destination for a wide section of society. The PPI facilitators approached people sitting at tables and joined them to discuss questions of relevance to a local research study. Observations and reflexive field notes were used to evaluate the “PPI Hawker’s” feasibility, acceptability and utility in the Singaporean community. Results: In three “PPI Hawkers” we approached 96 people and 72 (75%) engaged in discussions about the design of a population-based research study. The majority (75%) of participants willingly discussed all of the questions posed to them by the researchers, indicating the feasibility of PPI. The PPI participants came from the three major ethnic groups in Singapore and appeared to be broad in age, suggesting “PPI Hawkers” are easily accessible. Both participants and researchers recognised the utility of the “PPI Hawker”, reflecting on people’s willingness to talk about the research issues, engaging in informative conversations and posing relevant questions. Conclusion: The “PPI Hawkers” succeeded in engaging the public in conversations about a local population-based study. The public brought to the researchers’ attention a variety of previously unheard perspectives about the research. Each event fostered connectivity between professionals and the public, generating among researchers a more positive perception of the power of public involvement. “PPI Hawkers” provide an opportunity for co-informed conduct of research studies with diverse members of the public. They create a focus within a community setting for researchers to engage with the public. The resources needed (costs and preparatory time) are relatively few. Not only do “PPI Hawkers” have potential in Singapore, but also for the rest of Asia.

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“…Recent PPI developments have focussed on ways to include disadvantaged communities in these "privileged" spaces, recognising it is often vulnerable people who have the greatest health needs [10,19,20]. PPI Cafés are an example of such developments, whereby the characteristics of a "science café" and a PPI workshop were blended.…”

Section: Introductionmentioning

confidence: 99%

The “PPI Hawker”: an innovative method for patient and public involvement (PPI) in health research

Puerta

Smith

2020

Res Involv Engagem

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Background: Patient and Public Involvement (PPI) in health research entails doing research 'with' the public. Successful PPI requires a diversity of patients' perspectives and experiences. In Singapore, including the public's voice in research is still in its infancy and different ways of involving the public have to be explored. Our aims were to describe a PPI initiative that enables members of the public to share their ideas and opinions about health research, and to assess the feasibility, accessibility and utility of the initiative. Methods: Building on the concept of the PPI Café used in the west we designed a "PPI Hawker" for Singapore. Here Hawker Centres rather than cafes are used frequently for eating and socialising, providing a one-stop destination for a wide section of society. The PPI facilitators approached people sitting at tables and joined them to discuss questions of relevance to a local research study. Observations and reflexive field notes were used to evaluate the "PPI Hawker's" feasibility, acceptability and utility in the Singaporean community. Results: In three "PPI Hawkers" we approached 96 people and 72 (75%) engaged in discussions about the design of a population-based research study. The majority (75%) of participants willingly discussed all of the questions posed to them by the researchers, indicating the feasibility of PPI. The PPI participants came from the three major ethnic groups in Singapore and appeared to be broad in age, suggesting "PPI Hawkers" are easily accessible. Both participants and researchers recognised the utility of the "PPI Hawker", reflecting on people's willingness to talk about the research issues, engaging in informative conversations and posing relevant questions. Conclusion: The "PPI Hawkers" succeeded in engaging the public in conversations about a local population-based study. The public brought to the researchers' attention a variety of previously unheard perspectives about the research. Each event fostered connectivity between professionals and the public, generating among researchers a more positive perception of the power of public involvement. "PPI Hawkers" provide an opportunity for co-informed conduct of research studies with diverse members of the public. They create a focus within a community setting for researchers to engage with the public. The resources needed (costs and preparatory time) are relatively few. Not only do "PPI Hawkers" have potential in Singapore, but also for the rest of Asia.

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Engaging Gypsy, Roma, and Traveller Communities in Research: Maximizing Opportunities and Overcoming Challenges

Cited by 61 publications

References 48 publications

Foot health among the Roma population of southern Spain according to the foot health status questionnaire

Foot health among the Roma population of southern Spain according to the foot health status questionnaire

The “PPI Hawker”: An innovative method for Patient and Public Involvement (PPI) in health research

The “PPI Hawker”: an innovative method for patient and public involvement (PPI) in health research

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