Engaging Patients For Health Information Exchange

Tripathi, Micky; Delano, David; Lund, Barbara M.; Rudolph, Lynda

doi:10.1377/hlthaff.28.2.435

Cited by 70 publications

(63 citation statements)

References 4 publications

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“…2,3 For HIE to be effective, physicians must use a HIE to look up their patients. Because many states require consent before any personal health information can be disclosed or electronically accessed, 4,5 it is equally important that patients are comfortable with an HIE. Studies have shown that although American consumers are supportive of HIE and believe it has the potential to improve health care delivery, they have concerns regarding the privacy and security of their health data.…”

Section: Introductionmentioning

confidence: 99%

Health Care Consumers' Preferences Around Health Information Exchange

Dhopeshwarkar

Kern

O’Donnell

et al. 2012

The Annals of Family Medicine

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PURPOSE Consumer buy-in is important for the success of widespread federal initiatives to promote the use of health information exchange (HIE). Little is known, however, of consumers' preferences around the storing and sharing of electronic health information. We conducted a study to better understand consumer preferences regarding the privacy and security of HIE. METHODSIn 2008 we conducted a cross-sectional, random digit dial telephone survey of residents in the Hudson Valley of New York State, a state where patients must affi rmatively consent to having their data accessed through HIE. RESULTSThere was an 85% response rate (N = 170) for the survey. Most consumers would prefer that permission be obtained before various parties, including their clinician, could view their health information through HIE. Most consumers wanted any method of sharing their health information to have safeguards in place to protect against unauthorized viewing (86%). They also wanted to be able to see who has viewed their information (86%), to stop electronic storage of their data (84%), to stop all viewing (83%), and to select which parts of their health information are shared (78%). Among the approximately one-third (n = 54) of consumers who were uncomfortable with automatic inclusion of their health information in an electronic database for HIE, 78% wished to approve all information explicitly, and most preferred restricting information by clinician (83%), visit (81%), or information type (88%).CONCLUSION Consumers in a state with an opt-in consent policy are interested in having greater control over the privacy and security of their electronic health information. These preferences should be considered when developing and implementing systems, standards and policies.

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Section: Introductionmentioning

confidence: 99%

Health Care Consumers' Preferences Around Health Information Exchange

Dhopeshwarkar

Kern

O’Donnell

et al. 2012

The Annals of Family Medicine

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“…The characteristics of these communities and the physicians and practices within them reflected the demographics and practice characteristics of physicians and practices across Massachusetts. 8,14 A total of 167 physician practices participated, representing 86 percent of all eligible primary care and specialty practices in these communities. All were invited to respond to pre-intervention (2005) Survey Design The pre-and post-intervention surveys were based on similar statewide surveys of physicians, described elsewhere.…”

Section: Methodsmentioning

confidence: 99%

“…One of the most visible examples of such programs is the Massachusetts eHealth Collaborative, a statewide consortium of health care stakeholders founded in 2004 to improve the quality and safety of health care through community-based adoption of health IT. [5][6][7][8][9][10] During 2006-08, the Massachusetts eHealth Collaborative sponsored a program to implement electronic health records within ambulatory medical practices and establish health information exchange. With a $50 million grant from Blue Cross and Blue Shield of Massachusetts, the collaborative used a competitive process to select three communities to participate in the program.…”

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confidence: 99%

Massachusetts E-Health Project Increased Physicians’ Ability To Use Registries, And Signals Progress Toward Better Care

et al. 2011

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The ability to generate and use registries-lists of patients with specific conditions, medications, or test results-is considered a measure of physicians' engagement with electronic health record systems and a proxy for high-quality health care. We conducted a pre-post survey of registry capability among physicians participating in the Massachusetts eHealth Collaborative, a four-year, $50 million health information technology program. Physicians who participated in the program increased their ability to generate some types of registries-specifically, for laboratory results and medication use. Our analysis also suggested that physicians who used their electronic health records more intensively were more likely to use registries, particularly in caring for patients with diabetes, compared to physicians reporting less avid use of electronic health records. This statewide project may be a viable model for regional efforts to expand health information technology and improve the quality of care. 1,2 Widespread use of electronic health records is seen as a foundation for health reform.3 However, considerable doubt remains as to how deeply health IT will penetrate US health care and whether it will actually produce the anticipated quality improvements.To foster the adoption of health IT among ambulatory practices, HITECH authorizes the Office of the National Coordinator for Health Information Technology to establish regional extension centers to assist providers in selecting and implementing certified interoperable electronic health records for their practices. These centers aim to disseminate "lessons learned" and "best practices" throughout their communities and to promote participation in health information exchange. 4 Policy makers and leaders of regional extension centers will naturally look to existing models of communitywide efforts to promote the adoption of health IT. One of the most visible examples of such programs is the Massachusetts eHealth Collaborative, a statewide consortium of health care stakeholders founded in 2004 to improve the quality and safety of health care through community-based adoption of health IT. 5-10During 2006-08, the Massachusetts eHealth Collaborative sponsored a program to implement electronic health records within ambulatory medical practices and establish health information exchange. With a $50 million grant from Blue Cross and Blue Shield of Massachusetts, the collaborative used a competitive

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“…There are multiple, parallel e↵orts underway to modernize medical records systems for greater e ciency, improved patient care, patient safety, patient privacy, and costs savings [14,22,26,35,36]. The potential benefits from electronic medical records (EMRs), including lab tests, images, diagnoses, prescriptions and medical histories are without precedent.…”

Section: Introductionmentioning

confidence: 99%

Securing electronic medical records using attribute-based encryption on mobile devices

Akinyele

Pagano

Green

et al. 2011

Proceedings of the 1st ACM Workshop on Security and Privacy in Smartphones and Mobile Devices

165

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We provide a design and implementation of self-protecting electronic medical records (EMRs) using attribute-based encryption on mobile devices. Our system allows healthcare organizations to export EMRs to locations outside of their trust boundary. In contrast to previous approaches, our solution is designed to maintain EMR availability even when providers are o✏ine, i.e., where network connectivity is not available. To balance the needs of emergency care and patient privacy, our system is designed to provide fine-grained encryption and is able to protect individual items within an EMR, where each encrypted item may have its own access control policy. We implemented a prototype system using a new key-and ciphertext-policy attribute-based encryption library that we developed. Our implementation, which includes an iPhone app for storing and managing EMRs offline, allows for flexible and automated policy generation. An evaluation of our design shows that our ABE library performs well, has acceptable storage requirements, and is practical and usable on modern smartphones.

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Engaging Patients For Health Information Exchange

Cited by 70 publications

References 4 publications

Health Care Consumers' Preferences Around Health Information Exchange

Health Care Consumers' Preferences Around Health Information Exchange

Massachusetts E-Health Project Increased Physicians’ Ability To Use Registries, And Signals Progress Toward Better Care

Securing electronic medical records using attribute-based encryption on mobile devices

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