Engaging the experts: Popular science education and breast cancer activism

Braun, Lundy

doi:10.1080/0958159032000114426

Cited by 4 publications

(1 citation statement)

References 17 publications

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“…This requires that movements turn research findings into newsletter articles, op-eds, or reports that are legible to nonexperts, and generate a movement response. The translational aspect of movements has become more available to activists as they have learned to self-educate (Braun, 2003), the public has been involved in scientifically based policy making (Rowe & Frewer, 2000), and science has become a central terrain of contestation. Although politico-scientists are still a necessity for movements and citizens to gain access to complex scientific information, the ways in which citizens have begun to self-educate about science reflects its accessibility and relevance in public life more generally.…”

Section: Public Accessibility Through Scientific Reframingmentioning

confidence: 99%

From “Politico-Scientists” to Democratizing Science Movements

McCormick

2009

Organization & Environment

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The Committee for Nuclear Information (CNI) was one of the first movements to translate expert knowledge to the public. It was led by “politico-scientists” who meant to advance an ethics of science by contributing to public understanding. Since then, citizens have taken research into their own hands, using it to frame issues, challenge corporate practices, and change policy. Movement methods that respond to consistent activist concerns about science are reflected in “democratizing science movements” (DSMs) that have grown, expanded, and changed in the past 50 years. This article compares the CNI to the Campaign for Safe Cosmetics, a group of organizations that have critiqued the hazardous ingredients in personal care products. The aim is to update our understanding of how movements use science to protect health and improve the environment since the CNI. Like CNI, Campaign activists have used science to educate the public about hazardous exposures; however, the Campaign reflects that over time, lay people have become more central to scientific production as well as more able to use it without the assistance of experts. It is argued that in Commoner's time scientists focused on translating results and meanings for lay audiences whereas today, movements use science to heighten the political nature of the issue through reframing.

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Section: Public Accessibility Through Scientific Reframingmentioning

confidence: 99%

From “Politico-Scientists” to Democratizing Science Movements

McCormick

2009

Organization & Environment

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Collaborative Frame Construction in Social Movement Campaigns: Bisphenol-A (BPA) and Scientist–Activist Mobilization

Lubitow

2013

Social Movement Studies

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Patient organizations in Finland: increasing numbers and great variation

Toiviainen

Vuorenkoski²,

Hemminki

2010

Health Expectations

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Objective There is very little research on patient organizations (POs), even though their numbers and influence seem to be increasing. The purpose of this study was to describe the establishment, membership, size, organization, decision making and basic funding of national POs in Finland.Setting and participants National POs (n = 130) were identified from their umbrella organizations and by Internet searches. Data were collected from POsÕ web pages (87% of POs had one), FinlandÕs Slot Machine Association (RAY, an important public financier of POs), a relevant survey done by a local TV-company, and interviews and written materials of POs.Results and conclusions Some current national POs were established around the turn of the 19 th century. The rate of establishment of new POs increased from the 1970s and particularly in the 1990s when POs were characterized by increasing specialization. POs focused on different patient groups and diseases and were founded by philanthropists, physicians, patients, parents and the drug industry. Members could be patients, patient relatives, health-care professionals and organizations. POs widely varied in memberships (20-145 000, in 2002) and in number of paid personnel (0-1395, in 2002), organizational structure and decision making. Interest groups and financiers were often represented in decision-making organs. Activities included mutual support and service production, and, increasingly, informing and lobbying. POs had wide domestic and international co-operation and networking. Drug industry marketing was visible on PO web pages. Budget sizes varied (4000-15 million euros, in 2001). The main public financier was RAY. The old national POs were large and part of national social and health care, but newer ones were often established for mutual support and lobbying. National POs are not uniform but characterized by great variation. The number of national POs is increasing suggesting tighter competition for financing and visibility in the future.

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Engaging the experts: Popular science education and breast cancer activism

Cited by 4 publications

References 17 publications

From “Politico-Scientists” to Democratizing Science Movements

From “Politico-Scientists” to Democratizing Science Movements

Collaborative Frame Construction in Social Movement Campaigns: Bisphenol-A (BPA) and Scientist–Activist Mobilization

Patient organizations in Finland: increasing numbers and great variation

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