Engaging with ethnic minority consumers to improve safety in cancer services: A national stakeholder analysis

Joseph, Kathryn; Newman, Bronwyn; Manias, Elizabeth; Walpola, Ramesh; Seale, Holly; Walton, Merrilyn; Chauhan, Ashfaq; Li, Jiadai; Harrison, Reema

doi:10.1016/j.pec.2022.04.014

Cited by 6 publications

(10 citation statements)

References 15 publications

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Section: Methodsmentioning

confidence: 99%

“…The topic guide was developed by the research team (B. N., K. J., R. H., F. E. J. M. and P. P.) and reflected the content of a wider project exploring patient engagement with regard to improving safety in cancer settings for ethnic minority consumers. 10 Workshop content, including case studies, was reviewed by the Research Team and Consumer Advisory Group and adaptations were made. In addition, minor adaptations were made to frame the discussion around the concept of the suitability of engagement strategies for young people using cancer services in consultation with a partner agency with extensive experience in cancer support.…”

Section: Methodsmentioning

confidence: 99%

“…Through using a broad range of methods, patient engagement occurs on a spectrum from consultation through to collaboration and partnership at the point of care through to policy making 7 . There is a growing body of evidence about the use and effectiveness of patient engagement strategies to improve the safety of care for adults, with a recent review establishing the benefit of collaborative strategy development, user‐friendly design, proactivity and agency sponsorship 8–10 . Less is known about the suitability and relevance of current patient engagement strategies with young people 11,12 …”

Section: Introductionmentioning

confidence: 99%

“…7 There is a growing body of evidence about the use and effectiveness of patient engagement strategies to improve the safety of care for adults, with a recent review establishing the benefit of collaborative strategy development, user-friendly design, proactivity and agency sponsorship. [8][9][10] Less is known about the suitability and relevance of current patient engagement strategies with young people. 11,12 The suitability and relevance of patient engagement strategies for use with young people are increasingly pertinent in the context of a growing understanding of the distinctive needs of young people accessing health services.…”

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Using consumer engagement strategies to improve healthcare safety for young people: An exploration of the relevance and suitability of current approaches

Newman

Joseph

McDonald

et al. 2022

Health Expectations

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Background Consumer engagement in health care is recognized as a critical strategy to minimize healthcare‐associated harms, however, little research has focussed on strategies to engage young people in healthcare safety. This study explores the suitability of commonly used engagement strategies, such as brochures, interactive bedside charts or apps, for young people (14–25 years) to improve their healthcare safety, with a focus on cancer care. Methods Four qualitative online workshops were conducted (N = 19). Two workshops included young people who had experienced cancer (n = 6) and two workshops included staff who support young people who had experienced a diagnosis of cancer (n = 12). Evidence from a systematic review was used to develop case studies of existing strategies as a topic guide for the online workshops. Data were analysed using a framework method and template analysis approach. Results Thematic analysis against the analytic framework led to the development of four principles for engagement with young people: empowerment, transparency, participatory culture and flexibility. The transition from being ‘looked after’ to young people being responsible for their own care was an integrative theme which intersected all elements of the framework. Conclusion For service providers to engage with young people about safety issues in cancer services, the strategies employed need to be tailored to consider the transitional nature of being an adolescent or young adult. A systemic approach that incorporates flexible, tailored engagement strategies, education and empowerment of young people and healthcare providers is required to engage effectively with young people about safety in healthcare. These findings may have implications beyond cancer care. Patient or Public Contribution Workshop content was developed with and by the CanEngage team, including the Consumer Advisory Group, who reviewed content and inform wider project priorities.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Using consumer engagement strategies to improve healthcare safety for young people: An exploration of the relevance and suitability of current approaches

Newman

Joseph

McDonald

et al. 2022

Health Expectations

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Disparities in guideline-compliant care for patients with pancreatic ductal adenocarcinoma at minority-versus non-minority-serving hospitals

Elshami¹,

Hoehn²,

Ammori³

et al. 2023

HPB

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Creating safer cancer care with ethnic minority patients: A qualitative analysis of the experiences of cancer service staff

Chauhan,

Newman,

Manias

et al. 2024

Health Expectations

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IntroductionEffective consumer engagement practices can enhance patient safety. This is important for consumers from ethnic minority backgrounds who are exposed to increased risk of patient safety events. Using the Systems Engineering Initiative for Patient Safety model, this study explored staff experiences of creating opportunities for engagement with consumers from ethnic minority backgrounds to contribute to their cancer care safety.MethodA qualitative study was conducted using semistructured interviews with cancer service staff from four cancer services across two states in Australia. Purposive sampling was used to recruit healthcare staff from a diverse range of professions. Data were analysed using the Framework Analysis method.ResultsFifty‐four interviews were conducted with healthcare staff. Analysis of the qualitative interview data identified enablers and associated challenges that contributed to creating a shared understanding between consumers and staff of the information, processes, expectations and problems arising in care. Enablers and challenges are reported in relation to four themes: (1) co‐creating safety through shared understanding of care processes; (2) tools and technologies support planned communication; (3) organisational policy levers exist but lack implementation in direct care and (4) formal tasks incorporate consumer engagement more readily than informal interactions.ConclusionThe availability of infrastructure and resources to support communication with consumers from ethnic minority backgrounds was limited to specific tasks across the cancer care continuum. Strategies implemented by health services to foster effective communication during formal interactions now require expansion to support and create conditions for effective consumer engagement during informal and everyday care tasks. The use of innovative language support tools and cultural considerations are required at the service and system level to support consumer engagement in all types of care interactions.Public and Patient InvolvementThe study was embedded within a larger project that included a consumer investigator and was guided by a consumer advisory group (CAG). These consumer team members have lived experience of cancer and are from diverse ethnic backgrounds. CAG members provided feedback on the draft interview guide and participant information for this study.

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Engaging with ethnic minority consumers to improve safety in cancer services: A national stakeholder analysis

Cited by 6 publications

References 15 publications

Using consumer engagement strategies to improve healthcare safety for young people: An exploration of the relevance and suitability of current approaches

Using consumer engagement strategies to improve healthcare safety for young people: An exploration of the relevance and suitability of current approaches

Disparities in guideline-compliant care for patients with pancreatic ductal adenocarcinoma at minority-versus non-minority-serving hospitals

Creating safer cancer care with ethnic minority patients: A qualitative analysis of the experiences of cancer service staff

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