Engaging with stakeholders for community-based health research in India: Lessons learnt, challenges and opportunities

Patil, Rutuja; Kaur, Harshpreet; Gadgil, Mukta; Jackson, Tracy; Fernandes, Genevie; Juvekar, Sanjay

doi:10.7189/jogh.11.03072

Cited by 7 publications

(9 citation statements)

References 9 publications

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“…Community and stakeholder–engaged approaches also advocate for time and resources to disseminate research findings back to participants and communities (Legaspi & Orr, 2007). Stakeholder involvement in health research improves quality, increases health knowledge through the translation of research findings, and increases the likelihood that research findings will be accepted and utilized by the community (Patil et al, n.d.). Wali and colleagues (2021) authored a systematic review of community-engaged research with Indigenous communities conducting chronic disease research.…”

Section: Health Research Health Disparities and Aiansmentioning

confidence: 99%

A Model of Stakeholder Engagement with American Indians and Alaska Natives from the Native-CHART Study

Parker

Cooeyate

Tsosie

et al. 2023

Health Promotion Practice

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American Indian (AI) and Alaska Native (AN) community stakeholder engagement has the power to transform health research. However, the engagement and dissemination process is challenging in AIAN communities due to the historical and current negative experiences of AIAN populations in health research (Dillard et al., 2018). Whereas there is a paucity of recommendations about how to engage stakeholders in health research, from agenda-setting to proposal development, study design, recruitment, data collection, analysis, results, and dissemination (Concannon et al., 2014), there is limited information about how these recommendations are operationalized within the context of AIAN health research and practice (Concannon et al., 2014; Forsythe et al., 2016). For the purposes of this article, stakeholders are individuals, organizations, or communities who have a direct interest in the process and outcomes of a project, research, or policy effort (Boaz et al., 2018). Stakeholder engagement is a systematic process involving stakeholders, which provides opportunities for consultation, input, reviews, reactions, support, and assistance with dissemination. Dissemination focuses on how, when, by whom, and under what circumstances evidence spreads throughout agencies, organizations, states, counties, communities, tribes, researchers, policy makers, and service organizations.

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Section: Health Research Health Disparities and Aiansmentioning

confidence: 99%

A Model of Stakeholder Engagement with American Indians and Alaska Natives from the Native-CHART Study

Parker

Cooeyate

Tsosie

et al. 2023

Health Promotion Practice

View full text Add to dashboard Cite

show abstract

“…At the Vadu Rural Health Program (VRHP), a department of KEM Hospital Research Centre Pune (KEMHRC), Patil et al [ 5 ] identified stakeholders in three distinct tiers: community (discussed further in the “Engaging and involving communities” section below), health provider and researcher, and policymaker. The “health provider and researcher” tier included primary and secondary care clinicians from public and private health care organisations and researchers, with the engagement activity based on the stakeholders’ roles and interests.…”

Section: Engaging Stakeholdersmentioning

confidence: 99%

“…In Patil et al’s [ 5 ] stakeholder mapping at VRHP in India, they identified study participants and community members as having a high power to block or create change and a high stake in the community-based public health research they were conducting in rural areas of India. They described their unique model for community engagement which included involving local community members as research partners.…”

Section: Engaging and Involving Communitiesmentioning

confidence: 99%

Engaging stakeholders and communities to improve respiratory health in Asia

Jackson

Williams²,

Fernandes

2022

J Glob Health

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“…cell phone, social network, and genomic data) from HDSS as well as the opinions and guidance of national ethical review bodies and governments provides opportunities for researchers and HDSS participants to contribute to ongoing debates about research in Africa and beyond. Noteworthy is the fact that even though HDSS generates vital evidence for health researchers, academicians, policy and practice, sustainability of HDSS is always at stake [ 86 , 87 ]. Sustainability is a problem for many HDSS and greater recognition by national governments of the importance of the research infrastructure and capacity-building opportunities offered by HDSS translating into long-term funding, could address this [ 88 , 89 ].…”

Section: The Futurementioning

confidence: 99%

Health and demographic surveillance systems in low- and middle-income countries: history, state of the art and future prospects

Herbst

Juvekar²,

Jasseh

et al. 2021

Global Health Action

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Health and Demographic Surveillance Systems (HDSS) have been developed in several low- and middle-income countries (LMICs) in Africa and Asia. This paper reviews their history, state of the art and future potential and highlights substantial areas of contribution by the late Professor Peter Byass. Historically, HDSS appeared in the second half of the twentieth century, responding to a dearth of accurate population data in poorly resourced settings to contextualise the study of interventions to improve health and well-being. The progress of the development of this network is described starting with Pholela, and progressing through Gwembe, Balabgarh, Niakhar, Matlab, Navrongo, Agincourt, Farafenni, and Butajira, and the emergence of the INDEPTH Network in the early 1990’s The paper describes the HDSS methodology, data, strengths, and limitations. The strengths are particularly their temporal coverage, detail, dense linkage, and the fact that they exist in chronically under-documented populations in LMICs where HDSS sites operate. The main limitations are generalisability to a national population and a potential Hawthorne effect, whereby the project itself may have changed characteristics of the population. The future will include advances in HDSS data harmonisation, accessibility, and protection. Key applications of the data are to validate and assess bias in other datasets. A strong collaboration between a national HDSS network and the national statistics office is modelled in South Africa and Sierra Leone, and it is possible that other low- to middle-income countries will see the benefit and take this approach.

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Engaging with stakeholders for community-based health research in India: Lessons learnt, challenges and opportunities

Cited by 7 publications

References 9 publications

A Model of Stakeholder Engagement with American Indians and Alaska Natives from the Native-CHART Study

A Model of Stakeholder Engagement with American Indians and Alaska Natives from the Native-CHART Study

Engaging stakeholders and communities to improve respiratory health in Asia

Health and demographic surveillance systems in low- and middle-income countries: history, state of the art and future prospects

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