Enhancing life after cancer in diverse communities

Kaur, Judith S.; Coe, Kathryn; Rowland, Julia H.; Braun, Kathryn L.; Conde, Francisco; Burhansstipanov, Linda; Heiney, Sue P.; Kagawa‐Singer, Marjorie; Lü, Qian; Witte, Catherine

doi:10.1002/cncr.27491

Cited by 9 publications

(5 citation statements)

References 39 publications

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“…The health care system has been criticized for its lack of attention to recovery care, a phase in the cancer trajectory that is critical to survivorship and long-term health (Institute of Medicine, 2005). Since 2006, breast cancer survivorship programs have been established to increase compliance with follow-up care and link women to support groups (Kaur et al, 2012). However, it is important that survivorship programs be tailored to the cultural groups they serve, especially to groups like Native Hawaiians and other Pacific Islanders who may not be reached by mainstream programs.…”

Section: Family Supportmentioning

confidence: 99%

Building Family Capacity for Native Hawaiian Women with Breast Cancer

Mokuau

Braun

Daniggelis

2012

Health & Social Work

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Native Hawaiian women have the highest breast cancer incidence and mortality rates when compared with other large ethnic groups in Hawai'i. Like other women, they rely on the support of their families as co-survivors. This project explored the feasibility and effects of a culturally tailored educational intervention designed to build family capacity by improving the knowledge and skills of the woman and her family in dealing with breast cancer, particularly in the latter stage of recovery care. Twenty-nine Native Hawaiian women with breast cancer, along with a close family member, were randomly assigned to the intervention (n = 15) or a wait-list control group (n = 14). The authors assessed the knowledge, self-efficacy, and coping skills of women and their family members and the recovery care behaviors of the women at baseline and at four months (after the intervention or control period). The intervention group made significant improvements in self-efficacy and coping; the wait-list control group did not. Evaluation of the intervention suggests that it was well received by participants. This work has relevance for social workers wanting to design and test culturally appropriate interventions for minority groups.

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Section: Family Supportmentioning

confidence: 99%

Building Family Capacity for Native Hawaiian Women with Breast Cancer

Mokuau

Braun

Daniggelis

2012

Health & Social Work

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“…77 Several CNPs started or strengthened programs for patients needing end-of-life care. 78 At least five CNPs worked with hospitals in their communities on successful applications to NCI’s Community Cancer Center Program. Some CNPs mapped local resources through innovative methods such as GIS and asset mapping.…”

Section: Resultsmentioning

confidence: 99%

The National Cancer Institute’s Community Networks Program Initiative to Reduce Cancer Health Disparities: Outcomes and Lessons Learned

Braun¹,

Stewart²,

Baquet³

et al. 2015

cpr

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Background We describe reach, partnerships, products, benefits, and lessons learned of the 25 Community Network Programs (CNPs) that applied community-based participatory research (CBPR) to reduce cancer health disparities. Methods Quantitative and qualitative data were abstracted from CNP final reports. Qualitative data were grouped by theme. Results Together, the 25 CNPs worked with more than 2,000 academic, clinical, community, government, faith-based, and other partners. They completed 211 needs assessments, leveraged funds for 328 research and service projects, trained 719 new investigators, educated almost 55,000 community members, and published 991 articles. Qualitative data illustrated how use of CBPR improved research methods and participation; improved knowledge, interventions, and outcomes; and built community capacity. Lessons learned related to the need for time to nurture partnerships and the need to attend to community demand for sustained improvements in cancer services. Implications Findings demonstrate the value of government-supported, community–academic, CBPR partnerships in cancer prevention and control research.

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“…Some groups also developed programs to enhance survivorship for their specific community. 57 From these experiences, they identified four elements for building survivorship programs for diverse groups: 1) engaging survivors from diverse groups in program planning and delivery; 2) involving survivors in research to enhance understanding, 3) improving well-being of diverse groups, and 4) respecting diverse cultures by attending to spirituality, storytelling, cultural values, and ceremony. 57 …”

Section: Survivorship Carementioning

confidence: 99%

Health Disparities Across the Breast Cancer Continuum

Reeder‐Hayes¹,

Wheeler²,

Mayer³

2015

Seminars in Oncology Nursing

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Objectives To provide a brief overview of disparities across the spectrum of breast cancer incidence, treatment, and long-term care during the survivorship period. Data sources Review of the literature including research reports, review papers and clinically based papers available through PubMed and CINAHL. Conclusion Minority women generally experience worse breast cancer outcomes despite a lower incidence of breast cancer than whites. A variety of factors contribute to this disparity, including advanced stage at diagnosis, higher rates of aggressive breast cancer subtypes, and lower receipt of appropriate therapies including surgery, chemotherapy, and radiation. Disparities in breast cancer care also extend into the survivorship trajectory, including lower rates of endocrine therapy use among some minority groups as well as differences in follow-up and survivorship care. Implications for Nursing Practice Breast cancer research should include improved minority representation and analyses by race and ethnicity and socioeconomic status. While we cannot yet change the biology of this disease, we can encourage adherence to screening and treatment and help address the many physical, psychological, spiritual and social issues minority women face in a culturally sensitive manner.

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Enhancing life after cancer in diverse communities

Cited by 9 publications

References 39 publications

Building Family Capacity for Native Hawaiian Women with Breast Cancer

Building Family Capacity for Native Hawaiian Women with Breast Cancer

The National Cancer Institute’s Community Networks Program Initiative to Reduce Cancer Health Disparities: Outcomes and Lessons Learned

Health Disparities Across the Breast Cancer Continuum

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