Enhancing Sibling Presence in Pediatric ICU

Rozdilsky, J.

doi:10.1016/j.ccell.2005.07.001

Cited by 29 publications

(27 citation statements)

References 24 publications

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“…To minimize conflicts generated in the PICU's context, authors (5,(15)(16)(17) emphasize the benefits of communication between the team and family, in addition to the participation of the family in decision-making concerning care. The process of professional partnership involving an open and supportive, non-directive dialog between nurses and patients helps to reduce negative interactions.…”

Section: Discussionmentioning

confidence: 99%

A experiência de vulnerabilidade da família da criança hospitalizada em Unidade de Cuidados Intensivos Pediátricos

Coa

Mandetta

2011

Rev. esc. enferm. USP

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Este estudo buscou compreender a experiência de vulnerabilidade da família da criança internada em Unidade de Cuidados Intensivos Pediátricos (UCIP). O Interacionismo Simbólico e o Conceito de Vulnerabilidade da Família foram utilizados como fundamentação para a compreensão dessa experiência. A Análise Qualitativa de Conteúdo foi o referencial metodológico aplicado. Os dados foram coletados por meio de entrevista e observação com 11 famílias de crianças hospitalizadas em uma UCIP de um hospital universitário, do Município de São Paulo. Emergiram seis categorias analíticas da experiência da família que, ao serem comparadas às categorias conceituais da Vulnerabilidade da Família, revelam os elementos definidores do conceito nesse contexto. Para a família, a internação de um filho em UCIP desencadeia sofrimento intenso, pois remete a possibilidade de uma perda definitiva. Assim, o poder e a autonomia da família em relação ao filho são diminuídos, intensificando o sentimento de vulnerabilidade.

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Section: Discussionmentioning

confidence: 99%

A experiência de vulnerabilidade da família da criança hospitalizada em Unidade de Cuidados Intensivos Pediátricos

Coa

Mandetta

2011

Rev. esc. enferm. USP

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“…To honor siblings' presence and unique contributions, nurses may explore with parents how to include siblings in meaningful ways. 16,19,27,48,62 An important aspect is obtaining parental permission and respecting parental preferences about end-of-life communication while providing the siblings with honest, accurate information. 8,10,60,62 Dialogue with siblings should be congruent with the siblings' age and developmental level, and not euphemistic or metaphoric.…”

Section: Explanationmentioning

confidence: 99%

“…16,19,27,48,62 An important aspect is obtaining parental permission and respecting parental preferences about end-of-life communication while providing the siblings with honest, accurate information. 8,10,60,62 Dialogue with siblings should be congruent with the siblings' age and developmental level, and not euphemistic or metaphoric. 42,48,59,60 Supporting the Family After the Child's Death Nurses may feel awkward and unsure about to how to support a family once a child has died.…”

Section: Explanationmentioning

confidence: 99%

Caring for Pediatric Patients’ Families at the Child’s End of Life

Mullen

Reynolds

Larson

2015

Critical Care Nurse

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Nurses play an important role in supporting families who are faced with the critical illness and death of their child. Grieving families desire compassionate, sensitive care that respects their wishes and meets their needs. 1-5 Some nurses feel anxiety related to the experience of death and are inadequately prepared to provide end-of-life care. 3,6,7 We begin by presenting a case that illustrates a family's response when faced with such a life-altering event and the challenges nurses face in caring for and communicating with the family throughout the end-of-life experience. Next, we review practical strategies that nurses can use to communicate with patients' families at the end of a child's life. We also provide additional strategies to provide compassionate, sensitive care that respects a family's wishes and attends to the needs of the family. Finally, we describe a bereavement program designed to facilitate lasting communication with the grieving family. This article has been designated for CE credit. A closed-book, multiple-choice examination follows this article, which tests your knowledge of the following objectives:1. Describe the challenges nurses face in caring for and communicating with the family throughout the end-of-life experience 2. Discuss strategies to provide compassionate care that respects a family's wishes and attends to the needs of the family throughout the end-of-life experience 3. Identify strategies that nurses can use to communicate with patients' families at the end of a child's life CE Continuing Education 46

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“…(3,6,7,11) On the other hand, other studies conducted by nurses show that explaining to the child what he/she is about to see and experience would prevent eventual traumas. (3,7,8,11,12) Several studies (2,3,5,11) have shown that a child's visit to a relative in ICU is fundamental, as the child's anxiety, abandonment and fear of death feelings are found reduced after the visit; in addition, having a notion of the disease, the child becomes participant in the hospitalization process. (7,8) Nicholson et al (2,3) studied a sample of 20 children, divided in two groups.…”

Section: Review On Children Visiting Intensive Care Unitmentioning

confidence: 99%

“…(8) Additionally, children psychology scholars emphasize the child's cognitive, intellectual, affective and emotional abilities, demystifying the idea that children are not capable to deal with pain and suffering. By visiting a critically ill patient, the child takes part in the family reality, and will be able to understand the family routine and behavior changes.…”

Section: Introductionmentioning

confidence: 99%