Entangled empathy, drug use, and photographs of suffering

Steer, Linda

doi:10.1016/j.drugpo.2018.08.008

Cited by 3 publications

(2 citation statements)

References 10 publications

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“…An important and innovative quality of Photovoice research methodology is that it gives patients (parents, in this case) control over the story told about the photographs, as opposed to having researchers interpret the photographs through the lens of their own research agenda. Photography, as an art form, has a unique ability to elicit emotion and empathy 21,22 . For example, photographs used in conjunction with interviews have been found to yield deeper, more detailed, and more precise information than that generated by word‐only interviews 23‐25 .…”

Section: Discussionmentioning

confidence: 99%

Our life at home: Photos from families inform discharge planning for medically complex children

Barone¹,

Boss

Raisanen

et al. 2020

Birth

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Background Infants with medical complexity are increasingly cared for at home, creating unique challenges for their caregivers. The sickest of these are those with chronic critical illness (CCI). These infants’ medical fragility and resource‐intensive needs puts them at increased risk for suboptimal transitions from hospital‐ to home‐based care. It is unclear whether, and if so, to what extent clinicians gather and use knowledge of a family's home context during discharge planning. Methods This study is a pilot of a novel program, using Photovoice methodology, which aims to record and reflect the experience of caring for a child with CCI at home from caregivers’ perspectives and to provide direct feedback to inpatient discharging clinicians, with the goal of increasing awareness of (a) the importance of home context and (b) current discharge limitations. Results Through photographs, parents described the importance of developing new routines, learning how to be a family, the impact of medical technology on nearly all aspects of everyday life, the critical role played by clinicians during the transition home, and feelings of social stigma and isolation. Clinicians, in turn, learned about gaps in discharge planning and the value of making families part of the decision‐making team. They also found meaning in seeing the children they had cared for doing well at home, which subsequently bolstered enthusiasm for their job. Conclusions Findings from this pilot study highlight the importance of understanding the lived experience of families caring for medically complex children at home and suggest that this knowledge can be used to address gaps in the transition home.

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Section: Discussionmentioning

confidence: 99%

Our life at home: Photos from families inform discharge planning for medically complex children

Barone¹,

Boss

Raisanen

et al. 2020

Birth

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“…To date, there has been limited scholarship on the role of empathy in modulating perspectives and attitudes toward drug use and PWUD (Nguyen et al 2011; Schmits and Glowacz 2019; Steer 2019). Much of the existing research in this space has been conducted in urban environments and has highlighted sentiments on the “unfathomability of drug use” and views that opioid use, namely of heroin, was the domain of low‐income, “inner city,” and Black and Latino populations (Netherland and Hansen 2016).…”

Section: Introductionmentioning

confidence: 99%

A Sociology of Empathy and Shared Understandings: Contextualizing Beliefs and Attitudes on Why People Use Opioids

et al. 2022

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There has been a steep rise in overdoses and mortality among people who use opioids or who inject drugs (PWUD), including in North America, the United Kingdom, and parts of Eastern Europe, with some of the sharpest increases amassing in rural communities. Currently, the literature lacks a comparative focus on the views and experiences of rural PWUD and professionals who regularly work and interface with them, in terms of their understandings of the rural drug use initiation/relapse trajectory. Considering a renewed sociology of emotions and empathy and the constructs of direct experience (e.g., of personal drug use) versus role‐playing (e.g., envisioning oneself in another's position), we used a modified constant comparison method to analyze interviews conducted with PWUD and professional stakeholders in rural southern Illinois, an opioid overdose hotspot. Findings suggest that rural opioid use is adopted in service of an intricate interplay of sensory, relational, somatic, and psychosocial benefits, with a sharp divergence between PWUD, who express considerable agency in their drug use behaviors, and professionals, who fail to successful role‐play in emphasizing PWUD's limited willpower and “deviant” sociocultural predilection. These dynamics illuminate challenges to advancing nuanced, culturally humble programming to advance public health goals related to the opioid and drug injection epidemic.

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The Bell Tolls for Thee & Thine: Compassion Fatigue & the Overdose Epidemic

Winstanley

2020

International Journal of Drug Policy

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Entangled empathy, drug use, and photographs of suffering

Cited by 3 publications

References 10 publications

Our life at home: Photos from families inform discharge planning for medically complex children

Our life at home: Photos from families inform discharge planning for medically complex children

A Sociology of Empathy and Shared Understandings: Contextualizing Beliefs and Attitudes on Why People Use Opioids

The Bell Tolls for Thee & Thine: Compassion Fatigue & the Overdose Epidemic

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