Epidemiology of Injury-Related Emergency Department Visits in the US Among Youth with Autism Spectrum Disorder

Kalb, Luther G.; Vasa, Roma A.; Ballard, Elizabeth D.; Woods, S.W.; Goldstein, Mitchell; Wilcox, Holly C.

doi:10.1007/s10803-016-2820-7

Cited by 29 publications

(46 citation statements)

References 36 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The parents in this study discussed myriad of safety issues they had experienced (Table ). This information is consistent with the literature that safety is a concern for those with autism and their families (Cavalari & Romanczyk, ; Kalb et al, ; Sirin & Tekin‐Iftar, ; Solomon & Lawlor, ). The literature showed that parents receive inconsistent amounts of information about autism in general at the time their child is diagnosed (Carlsson, Miniscalco, Kadesjo, & Laakso, ; Derguy, Michel, M'Bailara, Roux, & Bouvard, ; Hall & Graff, ; O'Reilly, Karim, & Lester, ).…”

Section: Discussionsupporting

confidence: 91%

See 1 more Smart Citation

Battle weary/battle ready: A phenomenological study of parents' lived experiences caring for children with autism and their safety concerns

Celia

Freysteinson

Fredland

et al. 2019

Journal of Advanced Nursing

View full text Add to dashboard Cite

Aim:The first aim of this study was to explore the lived experiences of parents caring for their autistic children and their experiences with safety for these children.The second aim was to elicit safety recommendations from the parents of autistic children.Design: Hermeneutic phenomenology. Methods:Fifteen participants who self-reported they were parents of children with autism were recruited via snowball sampling. Data were collected from September 2017-December 2018 in audiotaped interviews using semi-structured questions.Interviews were held with four participants to determine if the findings represented their experiences and concerns accurately. Results:Two underlying structures which demonstrated the trajectory of the experience caring for autistic children were lost/finding our way and battle ready/battle weary. The phenomenological themes within battle weary included living with fear, living with uncertainty and living with disappointment. Resilience was a fourth phenomenological theme which supported the experience of being battle ready. The participants provided recommendations for other parents and healthcare professionals to help keep autistic children safe. Conclusion:This study illustrates the unique perspective of parents of autistic children concerning autism and safety.Impact: Most parents in this sample reported they faced substantial issues with safety for their child. Study results demonstrated that parents received little to no information about safety from healthcare professionals. Parents of autistic children and healthcare professionals need to be educated about safety issues to prevent injuries and death.

show abstract

Section: Discussionsupporting

confidence: 91%

“…Researchers have indicated that autism is associated with various safety issues. Higher rates of injury exist in the autism population (DiGuiseppi et al, ; Jain et al, ; Kalb et al, ). Guan and Li () completed a retrospective study of 1,367 deaths of people with autism.…”

Section: Introductionmentioning

confidence: 99%

Battle weary/battle ready: A phenomenological study of parents' lived experiences caring for children with autism and their safety concerns

Celia

Freysteinson

Fredland

et al. 2019

Journal of Advanced Nursing

View full text Add to dashboard Cite

show abstract

“…There were 7,215,166 participants across the 301 included studies, of which 100,245 participants were identified as having ASD. The bulk of the non-autistic participants came from a few very large population-based studies, with one cohort accounting for over six million participants [21]. Additional file 1: Table S1 shows attributes of individual studies including the method of case ascertainment.…”

Section: Resultsmentioning

confidence: 99%

Selection bias on intellectual ability in autism research: a cross-sectional review and meta-analysis

Mandy²,

et al. 2019

View full text Add to dashboard Cite

Background Current global estimates suggest the proportion of the population with autism spectrum disorder (ASD) who have intellectual disability (ID) is approximately 50%. Our objective was to ascertain the existence of selection bias due to under-inclusion of populations with ID across all fields of autism research. A sub-goal was to evaluate inconsistencies in reporting of findings. Methods This review covers all original research published in 2016 in autism-specific journals with an impact factor greater than 3. Across 301 included studies, 100,245 participants had ASD. A random effects meta-analysis was used to estimate the proportion of participants without ID. Selection bias was defined as where more than 75% of participants did not have ID. Results Meta-analysis estimated 94% of all participants identified as being on the autism spectrum in the studies reviewed did not have ID (95% CI 0.91–0.97). Eight out of ten studies demonstrated selection bias against participants with ID. The reporting of participant characteristics was generally poor: information about participants’ intellectual ability was absent in 38% of studies ( n = 114). Where there was selection bias on ID, only 31% of studies mentioned lack of generalisability as a limitation. Conclusions We found selection bias against ID throughout all fields of autism research. We recommend transparent reporting about ID and strategies for inclusion for this much marginalised group. Electronic supplementary material The online version of this article (10.1186/s13229-019-0260-x) contains supplementary material, which is available to authorized users.

show abstract

“…Not all studies have reported higher risk of injury associated with ASD, however. Kalb et al (2016), using data from the 2008 Nationwide ED Sample, a national all-payer ED database, reported that the odds of an injury-related ED visit were 48% lower among children aged 3–17 years with ASD without ID compared to a control group without ASD or ID, after accounting for sociodemographic differences (OR 0.52; 95% CI 0.50, 0.54) (Kalb et al 2016). Notably, ED visits in the ASD group were 5 times more likely to result from a self-inflicted injury than ED visits in the control group (OR 5.4; 95% CI 4.2, 6.9).…”

Section: Introductionmentioning

confidence: 99%

Injuries in Children with Autism Spectrum Disorder: Study to Explore Early Development (SEED)

DiGuiseppi

Levy

Sabourin

et al. 2017

J Autism Dev Disord

View full text Add to dashboard Cite

This study examined caregiver-reported medically-attended injuries among 30-68 month old children with autism spectrum disorder (ASD) compared to general population (POP) and non-ASD developmental disorders (DD) controls in the Study to Explore Early Development. Injuries were common in ASD cases (32.3%) as well as POP (30.2%) and DD (27.8%) controls; most resulted in an emergency visit or hospitalization. After accounting for sociodemographic, health, IQ and behavior differences, odds of injury in ASD cases were significantly higher than DD controls but similar to POP controls. Attention problems mediated the relationships. Clinicians caring for children with both ASD and attention problems should consider providing targeted safety advice. Differences in injury risk between children with ASD vs. other developmental disorders need further study.

show abstract

Epidemiology of Injury-Related Emergency Department Visits in the US Among Youth with Autism Spectrum Disorder

Cited by 29 publications

References 36 publications

Battle weary/battle ready: A phenomenological study of parents' lived experiences caring for children with autism and their safety concerns

Battle weary/battle ready: A phenomenological study of parents' lived experiences caring for children with autism and their safety concerns

Selection bias on intellectual ability in autism research: a cross-sectional review and meta-analysis

Injuries in Children with Autism Spectrum Disorder: Study to Explore Early Development (SEED)

Contact Info

Product

Resources

About