Epilepsy and Children's Social and Psychological Adjustment

Carlton‐Ford, Steve; Miller, Robin; Brown, Matthew; Nealeigh, Nichol; Jennings, Patricia R.

doi:10.2307/2137344

Cited by 67 publications

(57 citation statements)

References 20 publications

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“…Adolescents with active epilepsy had more problems than those with inactive epilepsy [30][31][32] including more symptoms of anxiety, depression [31,33] and sleep disorders [34]; however, even those with inactive epilepsy showed no improvement in their academic achievement scores [35], appeared no different in psychosocial adjustment compared to those with active epilepsy [36], and fared worse than youth with other chronic health conditions [32]. These findings are in contrast to reports of adults with well-controlled epilepsy who showed a high level of adjustment to epilepsy, good psychosocial functioning, low level of distress and only minimal differences in their HRQL compared with the general population [37][38][39][40].…”

Section: Active/nonactive Epilepsymentioning

confidence: 99%

Section: Aedsmentioning

confidence: 99%

“…After controlling for other relevant variables, there is inconsistency in the extent to which bio-medical variables of epilepsy including AEDs predict poorer adjustment [36,59]. After controlling for measures of family processes and co-occurring conditions, epilepsy variables had minimal effect [36]. Therefore, although we recognize that epilepsy variables are important to measure (in part to be able to describe any population on which research is done), we suspect that the way in which they are measured and the period of time over which they are evaluated make a difference to the extent to which they play a role in HRQL.…”

Section: Aedsmentioning

confidence: 99%

“…The presence of intellectual impairment in YWE independently lowers HRQL outcomes [25]. Learning problems increase the odds of higher levels of home behaviour problems by nearly 275% and nearly triple a child's odds of having a very depressed mood [36]. Adults with additional learning or intellectual disabilities tended to have poor social maturation compared to those without cognitive impairment [59].…”

Section: Intellectual Impairmentmentioning

confidence: 99%

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Health-related quality of life in youth with epilepsy: Theoretical model for clinicians and researchers. Part I: The role of epilepsy and co-morbidity

et al. 2006

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Children and adolescents with epilepsy are at increased risk for poor health-related quality of life (HRQL) even in the absence of active seizures. Clinicians who aim to achieve optimal seizure control also need to focus on improving HRQL. This can only be accomplished by recognizing how different features of the epilepsy itself, co-morbid conditions, as well as psychosocial factors can all make a difference to HRQL. These psychosocial factors include child, family and community/society variables that play a role in the well-being of these children. Conceptual models are relevant insofar as they provide us with a basis for hypothesizing the causal processes that lead to improved HRQL. They delineate what is meant by HRQL and highlight factors relevant to this important outcome. Researchers can use such models to test statistically and clinically relevant relationships. Clinicians can use this knowledge to direct the planning and implementation of services that are informed by these relationships, critically evaluate and then choose HRQL measures for use in clinical practice that most closely approximate what they understand HRQL is. The purpose of this review is to identify what is meant by HRQL as well as outline the theoretical and empirical basis for what it is about epilepsy, co-morbidity, and its treatment that we believe make a difference to HRQL.

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Section: Active/nonactive Epilepsymentioning

confidence: 99%

Section: Aedsmentioning

confidence: 99%

Section: Aedsmentioning

confidence: 99%

Section: Intellectual Impairmentmentioning

confidence: 99%

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Health-related quality of life in youth with epilepsy: Theoretical model for clinicians and researchers. Part I: The role of epilepsy and co-morbidity

et al. 2006

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“…Key Words: trol groups (6)(7)(8)(9). They also express more worries: adolescents with epilepsy are less interested in competitive sports, and fewer anticipate ever driving a car than do controls (7); others are concerned that epilepsy will prevent them from becoming parents or successfully employed (lo), or that seizures will kill them (11)(12)(13).…”

mentioning

confidence: 99%

Risk Factors for Poor Health‐Related Quality of Life in Adolescents with Epilepsy

et al. 1999

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Summary:Purpose: To examine potential risk factors for poor health-related quality of life (HRQOL) among adolescents with epilepsy by using the newly developed QOLIE-AD-48. Risk factors were derived from sociodemographic, social, academic, and epilepsy-and health-related domains.Methods: The QOLIE-AD-48 was administered to 197 English-speaking adolescents (age 11-17 years from >20 sites in the United States and in Canada). The self-report instrument yields an overall HRQOL score and eight subscale scores. Other data were obtained from family interviews, physician reports, and health records. Multiple regression analyses were conducted to study risk factors for impairment of HRQOL.Results: Older adolescents (age 14-17 years), those with more severe epilepsy and more symptoms of neurotoxicity, and those living in households with lower socioeconomic status were more likely to report poor overall HRQOL. Risk factors in the eight HRQOL domains were found as follows: (a) Epilepsy Impact: older age in adolescence, more severe epilepsy and neurotoxicity, more hospitalizations during the past year, and fewer hours of extracurricular activities; (b) Memory and Concentration: longer duration of epilepsy, special education classes, and history of repeating a grade in school; (c) Attitude Toward Illness: older age, female gender, and more severe epilepsy and neurotoxicity; (d) Social Support: younger age, male gender, and fewer hospitalizations in the last year; (e) Stigma: lower socioeconomic status and special-education classes; and (0 Health Perceptions: older age, female gender, and lower socioeconomic status. None of the factors examined was significantly associated with HRQOL in (g) Physical Functioning or (h) School Behavior subscales.Conclusions: We identified several risk factors for poor HRQOL outcomes in adolescents with epilepsy. Age, increased seizure severity, and neurotoxicity were most consistently associated with poor HRQOL across domains. Older adolescents, independent of epilepsy severity, reported worse overall HRQOL than did their younger counterparts. Older adolescents also were more likely to perceive a greater negative impact on life and general health, and had more negative attitudes toward epilepsy. Adolescent boys and girls may show different sensitivities to various quality-of-life domains. Key Words: HRQOL-Adolescents-QOLIE-AD-48.Adolescence, the transition from childhood to adulthood, is a period marked by puberty, novelty seeking, sexual and social identification, and solidifying personality traits. In this turbulent and fragile life stage, a chronic medical disorder, such as epilepsy, can stigmatize, and impair independence, social functions, peer relations, self-esteem, mood, and cognition (1-5). Adolescents with epilepsy have a higher frequency of behavioral problems than do healthy or chronically ill con-

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Working Parents

Heymann

Toomey²,

Furstenberg³

1999

Arch Pediatr Adolesc Med

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Background: A series of studies has demonstrated that sick children fare better when their parents are present. Objective: To examine working conditions that determine whether parents can spend time with and become involved in the care of their children when they are sick. Design: Survey with a multivariate analysis of factors influencing parental care of sick children. Participants: Mixed-income urban working parents aged 26 to 29 years participating in the Baltimore Parenthood Study. Results: Only 42% of working parents in our sample cared for their young children when they became sick. A multivariate logistic regression analysis was conducted to predict which parents stayed at home when their children were sick. Those parents who had either paid sick or vacation leave were 5.2 times as likely to care for their children themselves when they were sick. Of parents with less than a high school education, 17% received paid leave, compared with 57% of parents with a general equivalency diploma, 76% of parents with a high school diploma, and 92% of parents with more than a high school education (PϽ.001). Conclusions: The finding that many parents were unable to care for their sick children themselves is important for pediatric care. While low-income children are more likely to face marked health problems and to be in need of parental care, they are more likely to live in households in which parents lack paid leave and cannot afford to take unpaid leave.

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Epilepsy and Children's Social and Psychological Adjustment

Cited by 67 publications

References 20 publications

Health-related quality of life in youth with epilepsy: Theoretical model for clinicians and researchers. Part I: The role of epilepsy and co-morbidity

Health-related quality of life in youth with epilepsy: Theoretical model for clinicians and researchers. Part I: The role of epilepsy and co-morbidity

Risk Factors for Poor Health‐Related Quality of Life in Adolescents with Epilepsy

Working Parents

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