Epilepsy patients’ perceptions about stigma, education, and awareness: Preliminary responses based on a community participatory approach

Patient beliefs about epilepsy and brain surgery in a multicultural urban population

“…First, in this population of PWE, as in many others [4, 6, 8, 9, 19], there is a high prevalence of perceived epilepsy stigma. Over two-thirds of the patients endorsed at least one stigma-related question.…”

Knowledge, attitude and practice of epilepsy among community residents in Enugu, South East Nigeria

“…Coping with a chronic condition like epilepsy usually involves direct collaborative action of the affected persons, their families, kinship networks, friends as well the public and friends. 19,20 In this study, teachers and health workers were the sources of information for a small proportion of respondents (18.1%). The desire of school teachers and general practitioners to participate in the care of children with epilepsy has been previously documented.…”

Factors associated with increased felt stigma among individuals with epilepsy

“…In a survey of 165 adult PWEs conducted by Paschal and colleagues [53], two-thirds of respondents were of the opinion that better public education on epilepsy would significantly decrease the amount of stress and problems they experienced in their own lives. These individuals believed that the most common misunderstandings of the general public included not knowing how to react to seizures, believing that all epilepsy patients suffered severe seizures, and thinking that epilepsy is a mental illness.…”