Epilepsy Self-Management

Iorio, Colleen Di

doi:10.1007/978-1-4899-1760-7_11

Cited by 12 publications

(9 citation statements)

References 34 publications

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“…This finding implies that self-management of epilepsy is important, not only for controlling seizures, but also for preventing depression. Lifestyle and medication management also capture important behaviors for epilepsy self-management – adhering to medication, reducing stress, and improving sleep [7, 30]. However, in this study, medication adherence was not a significant predictor of depressive symptoms.…”

Section: Discussionmentioning

confidence: 64%

“…Living well with epilepsy requires a variety of self-management behaviors in order to control seizures, including medication adherence, stress management, and maintenance of good sleep habits [7, 30]. Studies of other chronic diseases demonstrate that people with depression are less likely to maintain self-management behaviors, including medication adherence [31–33].…”

Section: Introductionmentioning

confidence: 99%

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Individual, seizure-related, and psychosocial predictors of depressive symptoms among people with epilepsy over six months

Reisinger

DiIorio

2009

Epilepsy & Behavior

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Depression is the most frequently diagnosed psychiatric disorder among people with epilepsy. A variety of risk factors for depression among people with epilepsy have been identified, however, few studies have examined these risk factors over time. The primary purpose of this study was to explore the relationship between demographic characteristics, seizure-related factors, and psychosocial factors and depressive symptoms over 6 months. Three hundred and nineteen adults with epilepsy completed three surveys at three-month intervals. Multiple linear regression was used with the baseline variables to predict depressive symptoms at baseline, 3-months, and 6-months. Employment status, social support, and stigma emerged as predictors of depressive symptoms at all three timepoints. Other factors that predicted depression symptoms in one or two timepoints were selfmanagement, financial strain, and activity restriction due to seizures. The results indicate that multiple factors influence depressive symptoms among people with epilepsy.

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Section: Discussionmentioning

confidence: 64%

Section: Introductionmentioning

confidence: 99%

Individual, seizure-related, and psychosocial predictors of depressive symptoms among people with epilepsy over six months

Reisinger

DiIorio

2009

Epilepsy & Behavior

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“…Self-management behaviors for epilepsy include taking medication as prescribed, adjusting one's lifestyle to avoid seizure triggers, tracking seizures and side effects, keeping doctors' appointments, and obtaining information on seizures, treatment, and management [1]. Successful initiation and maintenance of self-management behaviors is difficult.…”

Section: Introductionmentioning

confidence: 99%

A mixed methods analysis of support for self-management behaviors: Perspectives of people with epilepsy and their support providers

Walker

Engelhard

Barmon

et al. 2014

Epilepsy & Behavior

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Social support is associated with improved self-management for people with chronic conditions, such as epilepsy; however, little is known about the perceived ease or difficulty of receiving and providing support for epilepsy self-management. We examined patterns of epilepsy self-management support from the perspectives of both people with epilepsy and their support persons. Fifty-three people with epilepsy and 48 support persons completed a survey on epilepsy self-management support. Of these individuals, 22 people with epilepsy and 16 support persons completed an in-depth interview. Rasch measurement models were used to evaluate the degree of difficulty of receiving or providing support often for nine self-management tasks. We analyzed model-data fit, person and item location along the support latent variable and differential person and item functioning. Qualitative methods were used to provide context and insight into the quantitative results. The results demonstrated good model-data fit. Help with seizures was the easiest type of support to receive or provide more often, followed by rides to a doctor's appointments and help avoiding seizure triggers. The most difficult types of support to receive or provide more often were reminders, particularly for taking and refilling medications. While most participants' responses fit the model, responses of several individuals misfit the model. Person misfit generally occurred because the scale items did not adequately capture some individuals' behaviors. These results could be useful in designing interventions that use support as a means of improving self-management. Additionally, the results provide information to improve or expand current measures of support for epilepsy self-management to better assess the experiences of people with epilepsy and their support persons.

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“…People with chronic conditions must manage complex behaviors and practices to control their conditions, slow disease progression, and maintain quality of life (Clark, 2003; DiIorio, 1997). Self-management involves monitoring and managing symptoms, adhering to treatment and lifestyle regimens, and coping with the psychosocial stresses of living with a chronic condition (Barlow, Wright, Sheasby, Turner, & Hainsworth, 2002; Clark, 2003).…”

mentioning

confidence: 99%

Perspectives of Adults With Epilepsy and Their Support Persons on Self-Management Support

et al. 2014

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Social support is an important mechanism for improving self-management, although little is known about its role in epilepsy self-management. We examined the type of support provided to people with epilepsy and its influence on self-management. We conducted in-depth interviews with 22 people with epilepsy and 16 support persons, representing 14 pairs and 10 unpaired individuals. We analyzed the data using principles of grounded theory. Supporters, who were mainly parents and spouses, aided people with epilepsy in every dimension of self-management. Support for self-management occurred along a continuum from person with epilepsy-led management to support person-led management. Where the pairs fell on the continuum depended on developmental stage, relationship type, and relationship dynamics. Seizure control shaped individuals' experiences with self-management and support within each group. The self-management continuum provides a new aspect that can be integrated into existing models of self-and family-management.

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Epilepsy Self-Management

Cited by 12 publications

References 34 publications

Individual, seizure-related, and psychosocial predictors of depressive symptoms among people with epilepsy over six months

Individual, seizure-related, and psychosocial predictors of depressive symptoms among people with epilepsy over six months

A mixed methods analysis of support for self-management behaviors: Perspectives of people with epilepsy and their support providers

Perspectives of Adults With Epilepsy and Their Support Persons on Self-Management Support

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