Equity in dementia care focusing on immigrants in Sweden: a nationwide register-based study

Lindgren, Emma Wedin; Sörenson, Josephine; Nägga, Katarina; Wattmo, Carina

doi:10.1093/eurpub/ckx187.130

Cited by 3 publications

(2 citation statements)

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“…To date, most of the available evidence on the topic has emerged by national registry based studies that have shown that, in some European countries (e.g. Norway, Denmark and Sweden), immigrants have a lower likelihood of receiving a diagnosis of dementia and anti‐dementia treatment compared to their native counterparts . Conversely, only few studies have attempted to characterize and explore the magnitude of this issue at the services level.…”

Section: Discussionmentioning

confidence: 99%

Estimating dementia cases amongst migrants living in Europe

Canevelli

Lacorte

Cova

et al. 2019

Euro J of Neurology

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Background and purpose The phenomenon of dementia amongst migrants and ethnic minorities represents an emerging concern for European healthcare systems, posing additional challenges in terms of clinical approach, access to care and resource utilization. The aim of the present study was to estimate the cases of dementia amongst immigrant older subjects living in Europe and in each European country. Methods The estimated cases of dementia amongst older (i.e. 65+) migrants living in the European Union (EU‐28) and European Free Trade Association member states were calculated by multiplying the number of migrants (obtained through the data provided by Eurostat) with the age‐ and sex‐specific prevalence rates (derived by a recent meta‐analysis). Results Overall, 6 507 360 older migrants lived in Europe in 2017. In addition, 1 204 671 migrants were registered in Germany in 2010. Nearly 475 000 dementia cases (329 028 women, 147 410 men) were estimated in this population by applying age‐ and sex‐specific prevalence rates. When considering each European country, the number of estimated cases ranged from 108 (Iceland) to 119 161 (France). In parallel, the proportion of dementia cases occurring in migrants ranged from 0.9% (Czech Republic) to 51.2% (Liechtenstein). Conclusions The issue of dementia in migrants and ethnic minorities is emerging but already relevant for European healthcare systems. The magnitude of this phenomenon and its complexities reinforce the need for coordinated initiatives both at a national and continental level. These epidemiological data should ideally be integrated with those coming from ‘real world’ services in order to better calibrate these actions.

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Section: Discussionmentioning

confidence: 99%

Estimating dementia cases amongst migrants living in Europe

Canevelli

Lacorte

Cova

et al. 2019

Euro J of Neurology

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“…Moreover, there is a loss in social status caused by the diagnosis of this condition according to this author. Lindgren et al [14] proved the existence of a Int. J. Environ.…”

Section: Introductionmentioning

confidence: 98%

Socioeconomic Inequality in the Use of Long-Term Care among European Older Adults: An Empirical Approach Using the SHARE Survey

Lera

Pascual-Sáez

Cantarero

2020

IJERPH

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The increase in the proportion of elderly people in developed societies has several consequences, such as the rise in demand for long-term care (LTC). Due to cost, inequalities may arise and punish low-income households. Our objective is to examine socioeconomic inequalities in LTC utilization in Europe. We use the last wave from the Survey of Health, Aging, and Retirement in Europe SHARE (Munich Center for the Economics of Ageing, Munich, Germany), dated 2017, to analyze the impact of socioeconomic status (SES) on LTC. For this purpose, we construct logistic models and control for socioeconomic/household characteristics, health status, and region. Then, concentration indices are calculated to assess the distribution of LTC. Moreover, we also analyze horizontal inequity by using the indirect need-standardization process. We use two measures of SES (household net total income and household net wealth) to obtain robust results. Our findings demonstrate that informal care is concentrated among low-SES households, whereas formal care is concentrated in high-SES households. The results for horizontal concentration indices show a pro-rich distribution in both formal and informal LTC. We add new empirical evidence by showing the dawning of deep social inequalities in LTC utilization. Policymakers should implement policies focused on people who need care to tackle socioeconomic inequalities in LTC.

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mHealth based intervention by social care professionals to support family caregivers to persons with dementia living at home in Sweden (Caregiver Connect): a randomized controlled trial

Kabir,

Tyrrell,

Konradsen

et al. 2024

BMC Geriatr

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Background The majority of persons with dementia in Sweden reside in their own homes with support from family members. Approximately, 12% of persons with dementia have immigrant background. Within the next 20 years, the number of persons with dementia who are non-ethnic Swedes is said to double. Family caregivers with immigrant backgrounds are noted to receive less support in the community than ethnic Swedes and rate their health status lower than ethnic Swedish peers. The Swedish National Board of Health and Welfare have highlighted the importance of follow-up support for family caregivers with immigrant backgrounds as there is a recognized gap in research and available information tailored to meet the needs of this group. Purpose of the study The purpose of the study is to test effectiveness of an mHealth based intervention through which community social workers can improve caregiving competence of non-European immigrant family caregivers of people with dementia living at home in Sweden. The overarching aim is to reduce caregiver burden and depressive symptoms, and improve quality of life. Methods A randomized controlled trial (RCT) including wait list control group will be performed consisting of an intervention group (A, n = 44) and a wait list control group (B, n = 44), totaling a sample size of 88. On completion of the 10-weeks long intervention in the intervention group, the intervention will be delivered to group B. Effect of the intervention will be analyzed between and within groups over time. The content of the educational component of the intervention is inspired by the iSupport manual developed by the World Health Organization. The contents, in the form of a booklet, aims to equip the family caregivers with structured information on understanding dementia as a condition and its management at home, including self-care guidance designed specifically for family caregivers themselves. Discussion Similar telephone-delivered intervention studies targeted for family caregivers to persons with dementia are ongoing in Malaysia and will start in India using the same booklet adapted to the local context. These studies will provide evidence on the effectiveness of using digital technologies to deliver support to those who may not be reached or adequately served by the traditional healthcare system. Trial registration ISRCTN registry, Registration number ISRCTN64235563.

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Equity in dementia care focusing on immigrants in Sweden: a nationwide register-based study

Cited by 3 publications

References 0 publications

Estimating dementia cases amongst migrants living in Europe

Estimating dementia cases amongst migrants living in Europe

Socioeconomic Inequality in the Use of Long-Term Care among European Older Adults: An Empirical Approach Using the SHARE Survey

mHealth based intervention by social care professionals to support family caregivers to persons with dementia living at home in Sweden (Caregiver Connect): a randomized controlled trial

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