Estimating sexual knowledge of people with mild intellectual disability through a valid and reliable assessment scale: The ISK‐ID

Gil‐Llario, María Dolores; Castro-Calvo, Jesús; Fernández-García, Olga; Elipe-Miravet, Marcel; Ballester‐Arnal, Rafael

doi:10.1111/jar.12909

Cited by 10 publications

(6 citation statements)

References 48 publications

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“…In other words, adapting the content and format of RSE programmes to an individual's context is crucial to ensure effectiveness and relevance and making empowerment a reality for this group (Chou et al, 2020). Actually, the nine reviews emphasised the necessity for RSE programmes to (a) be designed within a recognised theoretical framework (Brown et al, 2020) and a person‐centred approach (Gil‐Llario et al, 2022; McCann et al, 2019); (b) be applied considering individual differences and in cooperation with families (Pérez‐Curiel et al, 2023); (c) solely concentrated not only on biology‐related and self‐awareness/safety aspects (Sala et al, 2019) but also on broader content related to personal sexuality (e.g., sexual orientation, masturbation) and interpersonal relationships (e.g., dating, emotions, parenthood) and (d) facilitate the gradual acquisition of both knowledge and skills over time to ensure generalisability (Schaafsma et al, 2014). Nevertheless, it is noteworthy that group interventions are predominant, typically spanning approximately 10 sessions, each lasting around 90 min (summing up to 24–30 h in total).…”

Section: Discussionmentioning

confidence: 99%

What do we know about sex education of people with intellectual disabilities? An umbrella review

Pérez‐Curiel,

Vicente,

Morán

et al. 2024

Brit J Learn Disabil

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BackgroundSpecial attention is required when considering any educational intervention aimed at its promotion and development. Our objective is to conduct an umbrella review of systematic reviews that gather evidence from relationships and sex education programmes tailored for individuals with intellectual disabilities.MethodsThe protocol was developed in accordance with the Preferred Reporting Items for Systematic Reviews and Meta‐analyses Protocol. Systematic reviews were identified through a search in Web of Science, SCOPUS and PsychINFO, using the descriptors: ‘intellectual disab*’ AND ‘sex*’AND ‘systematic’.FindingsThe results of the nine reviews included in the meta‐review yield relevant outcomes related to 50 sex education interventions carried out with people with intellectual disabilities. This provided the opportunity to delve into the characteristics of these interventions to ascertain the accomplishments achieved to date.ConclusionsThe findings serve as foundation to propose and promote new research on this important area of life, addressing the inequalities identified concerning the sexuality and affective‐sexual education of people with intellectual disabilities. It offers valuable information for the educational, social and healthcare fields, facilitating the design of more effective and rights‐respecting initiatives.

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Section: Discussionmentioning

confidence: 99%

What do we know about sex education of people with intellectual disabilities? An umbrella review

Pérez‐Curiel,

Vicente,

Morán

et al. 2024

Brit J Learn Disabil

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“…Sexual Knowledge Scale for people with moderate IDs is an adapted version of the ISK‐ID (Gil‐Llario, Castro‐Calvo, et al . 2021). This brief self‐report scale measures sexual knowledge about topics such as masturbation, oral, and vaginal sex (e.g.…”

Section: Methodsmentioning

confidence: 99%

Sexual experiences and knowledge of people with moderate intellectual disability

Estruch‐García,

Gil‐Llario,

Fernández‐García

2024

J intellect Disabil Res

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BackgroundThis study addresses the sexuality of people with moderate intellectual disabilities (PMID), a topic that has been little studied. Understanding romantic and sexual experiences is highly relevant for reducing stigma and prejudice related to their sexuality. Additionally, comprehending the level of sexual knowledge of PMID contributes to the development of preventive and sexual health education programmes tailored for this group. Our aim is to explore the sexual history (relationships, sexual behaviour, condom use and sexual abuse), sex education received and the level of sexual knowledge of PMID.MethodThe total of 142 PMID completed questionnaires about sexual knowledge and experiences, and their support staff provided additional information. Data were analysed using chi‐square test (χ2) and descriptive statistical analysis.ResultsMasturbation was the most common sexual behaviour (75.7%), especially among men (χ2 = 5.81, P < 0.05). Sexual intercourse was rare, and only 30.5% reported using condoms. Women reported a higher prevalence of self‐reported sexual abuse (27.3% vs. 6% in men). The study also highlighted misconceptions about sexual intercourse risks and contraceptive methods.ConclusionThe results suggest that PMID need sexual education to ensure healthy sexual experiences and prevent risky behaviour.

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“…In recent years several new psychometric tests, which have been developed by a Spanish research group, have shown promising results. These include self-reported measure (the Detection of Sexual Abuse Risk Screening Scale; DSARss ( 20 ); the Inventory of Sexual Knowledge of people with Intellectual Disabilities; ISK-ID ( 21 ); the SExual BEhaviour and COncerns of people with Mild Intellectual Disabilities; SEBECOMID-S ( 22 ). The research group have also developed measures to assess the perceptions of other people (i.e.…”

Section: Introductionmentioning

confidence: 99%

A tool for assessing sexual knowledge of people with Intellectual disabilities in Norway

Svae,

Zachariassen,

Fjeld

et al. 2024

Front. Psychiatry

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BackgroundPrevious research has shown that people with intellectual disabilities have limited sexual knowledge, which can be essential for developing positive sexuality. This study aimed to check the validity and reliability of an assessment tool (SexKunn) for measuring the sexual knowledge of people with intellectual disabilities in Norway. Further, we aimed to identify potential knowledge gaps among the participants and highlight their potential impactMethods37 people with intellectual disabilities completed one assessment. 20 participants then completed a retest. Clinicians’ (n=23) views on the assessment tool were measured to obtain face validity. Positive and negative agreement analysis was used to identify potential dimensions in the data.ResultsA weighted Cohen’s kappa for the test and retest of the overall scores was considered to be substantial. The clinicians described an acceptable face validity regarding high positive value scores and low negative burden scores. They also suggested improvements. The study identified that the participants lacked knowledge about female genitals, hygiene, appropriate touching/sexual acts with friends/intimate partners, and contraception.ConclusionsThe SexKunn is a feasible assessment tool to measure sexual knowledge in people with intellectual disabilities. A lack of sexual knowledge of people with intellectual disabilities may violate their sexual rights.

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Estimating sexual knowledge of people with mild intellectual disability through a valid and reliable assessment scale: The ISK‐ID

Cited by 10 publications

References 48 publications

What do we know about sex education of people with intellectual disabilities? An umbrella review

What do we know about sex education of people with intellectual disabilities? An umbrella review

Sexual experiences and knowledge of people with moderate intellectual disability

A tool for assessing sexual knowledge of people with Intellectual disabilities in Norway

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