Estimating the prevalence of chronic conditions in children who die in England, Scotland and Wales: a data linkage cohort study

Hardelid, Pia; Dattani, Nirupa; Gilbert, Ruth; Macfarlane, Alexander; Saxena, Sonia; Müller‐Pebody, Berit; Knowles, Rachel L; Parslow, Roger; Stiller, Charles; Shah, Anjali; Sidebotham, Peter; Davey, Jonathan

doi:10.1136/bmjopen-2014-005331

Cited by 76 publications

(90 citation statements)

References 22 publications

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“…Chronic eye or ear conditions were determined using ICD‐10‐AM diagnosis codes as described by Hardelid et al We assigned a diagnosis of epilepsy based on codes G40 and G41, ignoring codes for convulsions (R56) as recommended for improved specificity . Finally, we assigned indicators of several chronic conditions based on the presence of individual diagnostic codes: feeding difficulties (R63.3), gastrostomy (Z43.1 or Z93.1), and dependence on a wheelchair (Z99.3).…”

Section: Methodsmentioning

confidence: 99%

Educational outcomes for children with cerebral palsy: a linked data cohort study

Gillies

Bowen

Patterson

et al. 2017

Develop Med Child Neuro

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Section: Methodsmentioning

confidence: 99%

Educational outcomes for children with cerebral palsy: a linked data cohort study

Gillies

Bowen

Patterson

et al. 2017

Develop Med Child Neuro

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“…The LTC terms were informed by previous reviews that included studies with populations with LTCs or chronic conditions, 79,82,[88][89][90][91][92][93][94][95][96][97][98][99][100][101][102][103][104][105] as well as discussion with experts among the wider project team. Thirteen electronic databases were searched: MEDLINE including MEDLINE in-process (via OvidSP), EMBASE (via OvidSP), PsycINFO (via OvidSP), Cochrane Database of Systematic Reviews (CDSR) (via The Cochrane Library), Cochrane Central Register of Controlled Trials (CENTRAL) (via The Cochrane Library), Database of Abstracts of Reviews of Effects (DARE) (via The Cochrane Library), Health Technology Assessment (HTA) database (via The Cochrane Library), NHS Economic Evaluation Database (NHS EED) (via The Cochrane Library), Cumulative Index of Nursing and Allied Health Literature (CINAHL) (via EBSCOhost), British Nursing Index (via ProQuest), Health Management Information Consortium (HMIC) (via OvidSP), Conference Proceedings Citation Index (via Web of Science) and Science Citation Index (via Web of Science).…”

Section: Search Strategymentioning

confidence: 99%

Interventions to improve the mental health of children and young people with long-term physical conditions: linked evidence syntheses

Moore

Nunns

Shaw

et al. 2019

Health Technol Assess

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Background Although mental health difficulties can severely complicate the lives of children and young people (CYP) with long-term physical conditions (LTCs), there is a lack of evidence about the effectiveness of interventions to treat them. Objectives To evaluate the clinical effectiveness and cost-effectiveness of interventions aiming to improve the mental health of CYP with LTCs (review 1) and explore the factors that may enhance or limit their delivery (review 2). Data sources For review 1, 13 electronic databases were searched, including MEDLINE, EMBASE, PsycINFO, Cochrane Central Register of Controlled Trials (CENTRAL), Cumulative Index to Nursing and Allied Health Literature (CINAHL) and Science Citation Index. For review 2, MEDLINE, PsycINFO and CINAHL were searched. Supplementary searches, author contact and grey literature searches were also conducted. Review methods The first systematic review sought randomised controlled trials (RCTs) and economic evaluations of interventions to improve elevated symptoms of mental ill health in CYP with LTCs. Effect sizes for each outcome were calculated post intervention (Cohen’s d). When appropriate, random-effects meta-analyses produced pooled effect sizes (d). Review 2 located primary qualitative studies exploring experiences of CYP with LTCs, their families and/or practitioners, regarding interventions aiming to improve the mental health and well-being of CYP with LTCs. Synthesis followed the principles of metaethnography. An overarching synthesis integrated the findings from review 1 and review 2 using a deductive approach. End-user involvement, including topic experts and CYP with LTCs and their parents, was a feature throughout the project. Results Review 1 synthesised 25 RCTs evaluating 11 types of intervention, sampling 12 different LTCs. Tentative evidence from seven studies suggests that cognitive–behavioural therapy interventions could improve the mental health of CYP with certain LTCs. Intervention–LTC dyads were diverse, with few opportunities to meta-analyse. No economic evaluations were located. Review 2 synthesised 57 studies evaluating 21 types of intervention. Most studies were of individuals with cancer, a human immunodeficiency virus (HIV) infection or mixed LTCs. Interventions often aimed to improve broader mental health and well-being, rather than symptoms of mental health disorder. The metaethnography identified five main constructs, described in an explanatory line of argument model of the experience of interventions. Nine overarching synthesis categories emerged from the integrated evidence, raising implications for future research. Limitations Review 1 conclusions were limited by the lack of evidence about intervention effectiveness. No relevant economic evaluations were located. There were no UK studies included in review 1, limiting the applicability of findings. The mental health status of participants in review 2 was usually unknown, limiting comparability with review 1. The different evidence identified by the two systematic reviews challenged the overarching synthesis. Conclusions There is a relatively small amount of comparable evidence for the effectiveness of interventions for the mental health of CYP with LTCs. Qualitative evidence provided insight into the experiences that intervention deliverers and recipients valued. Future research should evaluate potentially effective intervention components in high-quality RCTs integrating process evaluations. End-user involvement enriched the project. Study registration This study is registered as PROSPERO CRD42011001716. Funding The National Institute for Health Research (NIHR) Health Technology Assessment programme and the NIHR Collaboration for Leadership in Applied Health Research and Care South West Peninsula.

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“…7 Prevalence estimates for childhood chronic conditions vary from <10% 8,9 to almost 50% 10 and are even higher among children who have died (71%). 11 Estimates depend on the definition used 4 which may include medically fragile children, children with special care needs, children with medical complexity and children with long-standing health problems. Estimates are also influenced by the population in which the definition is applied, such as children admitted to hospital, or children enrolled in insurance programmes.…”

mentioning

confidence: 99%

Prevalence, hospital admissions and costs of child chronic conditions: A population‐based study

Bell

Lingam

Wakefield

et al. 2020

J Paediatrics Child Health

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Aim To determine population‐based prevalence, hospital use and costs for children admitted to hospital with chronic conditions. Methods We used hospital admissions data for children aged <16 years, 2002–2013 in New South Wales, Australia. Results Of all admissions, 35% (n = 692 514) included a diagnosis of a chronic condition. In 2013, prevalence was 25.1 per 1000 children. Children with greater socio‐economic disadvantage or living in regional and remote areas had lower prevalence, but a higher proportion of emergency admissions. Prevalence rates were highest for respiratory and neurological conditions (9.4, 7.4 per 1000, respectively). Mental health conditions were most common in older children. Admissions involving chronic conditions had longer length of stay (3.0 vs. 1.6 days), consumed more bed‐days (50% of total) and involved 43% of total hospital costs. Conclusion Differences in prevalence and use of hospital services suggest inequities in access and need for more appropriate and equitable models of care.

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Estimating the prevalence of chronic conditions in children who die in England, Scotland and Wales: a data linkage cohort study

Cited by 76 publications

References 22 publications

Educational outcomes for children with cerebral palsy: a linked data cohort study

Educational outcomes for children with cerebral palsy: a linked data cohort study

Interventions to improve the mental health of children and young people with long-term physical conditions: linked evidence syntheses

Prevalence, hospital admissions and costs of child chronic conditions: A population‐based study

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