Estimating the size of a potential palliative care population

Rosenwax, Lorna; McNamara, Beverley; Blackmore, Amanda Marie; Holman, C. DʼArcy J.

doi:10.1191/0269216305pm1067oa

Cited by 94 publications

(123 citation statements)

References 25 publications

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“…By relating the updated estimate of Maciel and Bertega [36] to the simulations of the methods of MacNamara et al [32], Rosenwax et al [34], Murtagh et al [33], Kerr et al [35] and the Brazilian Ministry of Health [27], we verified that the need for palliative care is closer to the Murtagh's method.…”

Section: Resultsmentioning

confidence: 69%

“…[31] In Brazil, we also cannot match the general mortality statistics with data from hospital admission. [32,[33][34][35][36] Based on the study of Scholten et al [31], "The size of the population potentially in need of palliative care in Germany -an estimation based on death registration data", we adapted the Brazilian mortality data registered in 2014 to the MacNamara & Rosenwax and Murtagh methods.…”

Section: Diabetes Mellitus E10-e149mentioning

confidence: 99%

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Palliative Care in Brazil: With a View to Future Needs?

et al. 2017

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Introduction: Chronic non-communicable diseases (CNCD) constitute a health problem of growing magnitude in Brazil, leading concerns, to the Ministry of Health (MOH), about the care of persons with chronic conditions (due to advanced diseases), multiple harms and in need of long-term care, requiring continuous assistance,. However, few data exist on the size of the population potentially in need of palliative care in Brazil. Objective:To estimate the size of the Brazilian population that could benefit from palliative care across 26 federated states and the Federal District.Methods: This is a cross-sectional study, using national death certificate and hospital admission data. Brazilian death registration and hospital admission data from 1 st of January to 31 st of December 2014 were analyzed and compared with estimation methods of Rosenwax and Murtagh including all adults (≥ 15 years old) who died in the period of 1 st of January to 31 st of December 2014 in Brazil.Results: the proportion of individuals who died from diseases that indicate palliative care needs at the end of life ranged from 24.6% to 85.2%. Conclusion:Integration of several existing policies, trigger and strengthen actions and integral care to patients with palliative care needs respectful of the specificities of each area as well as to support decision-making and the development of actions in health, in particular to the definition of needs and priorities, the construction of prospective scenarios, and the assessment of ongoing actions.

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Section: Resultsmentioning

confidence: 69%

Section: Diabetes Mellitus E10-e149mentioning

confidence: 99%

Palliative Care in Brazil: With a View to Future Needs?

et al. 2017

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“…The increasing proportion of non-cancer patients is supported by other reports such as the National Palliative Care Plan Initiative and a WA palliative care study using linked mortality and hospitalisation data. 15,16 These reports noted a sizable percentage of palliative care was being provided to people Health Information with neurological illnesses, HIV/AIDS, COPD and end-stage organ failure.…”

Section: Planning Approachesmentioning

confidence: 99%

Estimating and projecting subacute care demand: findings from a review of international methods

Gibbs¹,

Pearse²,

Sheehan³

et al. 2008

Aust. Health Review

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A review of projection methodologies used to project sub-acute inpatient activity in various international health care jurisdictions was undertaken as part of a project to develop subacute inpatient activity projections for the state with the largest population in Australia. The literature search identified nearly 200 articles and found three main groups of projection methodologies: projections with a focus on subacute care; projections with a focus on acute care, but which often included subacute activity in the overall projections; and projections of specific diseases/conditions influencing the demand for subacute care.In terms of the examples in the literature specifically regarding subacute care, the most common method of estimating current or future need was the use of normative benchmark ratios of beds to population. This was mainly to provide a policy basis to encourage development of subacute services, but also because of convenience.In the literature regarding acute activity projection methodologies, many incorporated subacute activity in the overall activity measures of the acute hospital unit. The most common method of acute care activity projection was use of current or trended utilisation rates applied to population projections. It appears that a significant amount of planning and demand projection being undertaken internationally on subacute care takes place within acute care methodologies.In regard to the potential use of specific diseases/ conditions that drive demand for subacute care, such as stroke or cancer, it is suggested that the best use of these disease-specific projections is in reality testing the results of other modelling. What is known about the topic? With ageing of the population, subacute care is growing as an important area requiring specific planning methods to estimate current and future demand. However, internationally there is no consensus about the definition of subacute care or which projection method is more appropriate. What does this paper add?The literature review shows there are several methods being used internationally for estimating and projecting subacute care. Both demographic and non-demographic influences, a focus on patient activity rather than beds and scenario modelling were identified as important aspects. What are the implications for practitioners? Practitioners can choose from several different methods for estimating future demand for subacute care, depending on the degree of complexity required.

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“…As the Australian population ages, the demand for residential care and optimal end of life care for frail, older people is anticipated to increase, including people with non malignant diseases (Rosenwax et al, 2005;Wowchuk et al, 2006). The illness trajectory in non malignant diseases can be difficult to predict, and management of symptoms related to non malignant diseases presents numerous challenges to those who care for dying residents (Janssen et al, 2008).…”

Section: Research Summarymentioning

confidence: 99%

“…Further, people dying from non malignant diseases in the residential aged care setting have been historically under-represented in research literature (Rosenwax, Blackmore & Holman, 2005;Wowchuk, McClement & Bond, 2006).…”

Section: Introductionmentioning

confidence: 99%

Dying in a rural residential aged care facility: An action research and reflection project to improve end‐of‐life care to residents with a non‐malignant disease

Rowley

Taylor

2011

Int J of Nursing Practice

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Rowley, J 2010, 'Dying in a rural residential aged care facility: an action research and reflection project to improve end of life care to residents with a non-malignant disease ', PhD thesis, Southern Cross University, Lismore, NSW. THESIS DECLARATIONI certify that the work presented in this thesis is, to the best of my knowledge and belief, original, expect as acknowledged in the text, and the material has not been submitted, either in whole or in part, for a degree at this or any other University. Special thanks, is reserved for my husband Greg, whose loving, extensive support helped me to achieve completion. In addition, to our children Dylan and Amber, who lovingly supported me throughout this journey.This thesis is dedicated to the memory of my father, Donald Raymond Riley.iii ABSTRACT This qualitative research explored end of life care provided to people dying with a non malignant disease in two Australian rural, residential aged care facilities.Residential aged care facilities provide end of life care for many people dying from non malignant diseases. The illness trajectory in non malignant diseases can be difficult to predict and symptom management can be challenging.Further, as the Australian population ages, the demand for optimal end of life care for frail, older people is anticipated to increase. Therefore, this study aimed to explore issues as identified by nurses and relatives of residents dying from a non malignant disease in order to examine ways in which nurses can provide nursing care that maximises the likelihood of a good death, identify the barriers nurses perceive to prevent optimal end of life care to dying residents, and explore the relationships between nurses and relatives of the dying resident, with the intention of improving care.Following ethical clearance, 14 aged care staff overall within both facilities were recruited to the project. Participants included Registered Nurses, Enrolled Nurses, Assistants in Nursing and other aged care staff personnel, all of whom were in a carer relationship with a dying resident. In addition, eight relatives of dying residents were interviewed, using individual, face to face, semi structured interviews.Taylor's (2006) 13 step action research and reflection method was incorporated into five main phases, including foundation building, reflection on practice iv stories, identifying thematic concerns, action plan creation, implementation and critical reflection. In both facilities, group meetings were held weekly for up to 19 weeks. Data were gathered using combinations of reflective drawing, practice stories, interviews and surveys.Relatives' interview transcripts were incorporated into the nurses' group meetings, so that end of life care issues of importance to relatives were shared, with the intention of assisting the nurses to examine the nature of aged care nursing and relationships that occur with relatives of the dying resident. This project demonstrated that it is possible to establish a working relationship with aged care nurses, with no prio...

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Estimating the size of a potential palliative care population

Cited by 94 publications

References 25 publications

Palliative Care in Brazil: With a View to Future Needs?

Palliative Care in Brazil: With a View to Future Needs?

Estimating and projecting subacute care demand: findings from a review of international methods

Dying in a rural residential aged care facility: An action research and reflection project to improve end‐of‐life care to residents with a non‐malignant disease

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