Estudio sobre los procedimientos profesionales, las vivencias y las necesidades de los padres cuando se les informa de que su hijo tiene una discapacidad o un trastorno del desarrollo. La primera noticia

Feeling of grief and loss in parental caregivers of adults diagnosed with intellectual disability

“…Finally, these parents also ask existential questions and search for meaning, a reason for what has happened, and solutions to help relieve their sorrow (Budak et al, 2018). Professionals should be aware of the need to communicate the diagnosis in an appropriate manner and to provide emotional support to parents in order to reduce the intensity of their psychological anxiety (Alsem et al, 2017;Bray et al, 2017;Ponte et al, 2012).…”

“…In summary, over the past decade, researchers have described the emergence of symptoms of grief and loss in parents of children with some type of intellectual disability or chronic disease, especially immediately after the diagnosis or during childhood and adolescence (Badu, 2016;Boström et al, 2009;Fernández-Alcántara et al, 2015, 2017Kimura & Yamazaki, 2013;Oti-Boadi, 2017;Ponte et al, 2012;Sheehan & Guerin, 2018). However, few studies have analysed in depth the development of this process of grief at later stages or the experience of parents when the children are adults.…”

Flashbulb Memories in the Communication of the Diagnosis of Visual Impairment: The Effect of Context and Content

“…In these studies, in spite of the li-mitations implied by working with small samples, the results obtained are particularly revealing as they have enabled the identification of numerous deficiencies when bad news is communicated [22]. These include employing nuclear messages [26,30], informing only one parent in a situation of affective vulnerability [27,31], informing the parents before they see the child for the first time [21,28,31], neglecting the necessary conditions of privacy, and giving an excessive amount of negative information [20,24,25,[28][29][30], among others. In addition, different studies have shown that the way in which the news of a diagnosis is given can have an influence on how the event is remembered [32][33][34][35].…”

“…Different studies have concluded that the moment in which news is received regarding a child's disability (or risk of suffering one) is engraved in people's memory, with the precise details of the circumstances being clearly remembered even years after the diagnosis [10,30,31,[36][37][38]. However, although the news of the diagnosis in itself may be equally surprising and have similar consequences for the patients, there are many studies that conclude that the way in which the news of the diagnosis is given may have an influence on how the event is remembered [32][33][34][35].…”

“…Taking the above into account and understanding by first news the moment in which a professional informs the parents that their child has a disability, disorder, or developmental delay [31], the present study has the objective of discovering how the first news of visual impairment comes about and whether the memory thereof persists over time, generating an FBM.…”