Ethical adoption: A new imperative in the development of technology for dementia

Robillard, Julie M.; Cleland, Ian; Hoey, Jesse; Nugent, Chris

doi:10.1016/j.jalz.2018.04.012

Cited by 63 publications

(48 citation statements)

References 51 publications

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“…This includes creating direct funding streams for technology, providing maintenance and updating support services, delivering new types of digitally enabled services with tech-savvy staff for people with dementia, harnessing big data to predict patterns of need and proactively identify people at risk, and supporting rapid development, testing and deployment of next-generation technological interventions. Supporting the technology-enabled provision of preventive and care interventions also requires a number of ethical issues to be addressed, including privacy, data ownership, sharing and usage, risk, rights, responsibilities and relationships (including data sharing) between private corporations and statutory bodies [92, 93]. …”

Section: Discussion/conclusionmentioning

confidence: 99%

Technology and Dementia: The Future is Now

Astell

Bouranis

Hoey

et al. 2019

Dement Geriatr Cogn Disord

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158

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Background: Technology has multiple potential applications to dementia from diagnosis and assessment to care delivery and supporting ageing in place. Objectives: To summarise key areas of technology development in dementia and identify future directions and implications. Method: Members of the US Alzheimer’s Association Technology Professional Interest Area involved in delivering the annual pre-conference summarised existing knowledge on current and future technology developments in dementia. Results: The main domains of technology development are as follows: (i) diagnosis, assessment and monitoring, (ii) maintenance of functioning, (iii) leisure and activity, (iv) caregiving and management. Conclusions: The pace of technology development requires urgent policy, funding and practice change, away from a narrow medical approach, to a holistic model that facilitates future risk reduction and prevention strategies, enables earlier detection and supports implementation at scale for a meaningful and fulfilling life with dementia.

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Section: Discussion/conclusionmentioning

confidence: 99%

Technology and Dementia: The Future is Now

Astell

Bouranis

Hoey

et al. 2019

Dement Geriatr Cogn Disord

Self Cite

158

View full text Add to dashboard Cite

show abstract

“…For example, a person with dementia might perceive a robotic animal to be a 'real' animal. These dilemmas remain to be addressed and, in addition to the high cost of the products, might also contribute to the slow adoption of robotic and assistive technologies in dementia care 40 Importantly, the legal implications of technologies that collect, store and upload health data have not been widely considered. Unless privacy and security are addressed, these devices place users at risk of their information being widely disseminated.…”

Section: [H1] Obstacles and Challengesmentioning

confidence: 99%

The promise of technology in the future of dementia care

Moyle

2019

Nat Rev Neurol

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Dementia is a leading cause of disability, and the prevalence of dementia is steadily increasing. Although people with dementia are living longer lives in the community, without adequate support for their declining physical and psychological needs, the majority of these individuals end up in nursing homes. With no cure in sight, and in the context of population ageing, we must consider how to care for these individuals in the future. Technologies that augment existing care can maintain a person comfortably in their community, maximize individual autonomy and promote social participation. However, to date, such technologies have rarely been used in dementia care. This Perspectives article highlights the need for affordable and appropriate technologies to assist future dementia care, outlines some of the technologies currently available, and describes the many challenges to integration of such technologies. Finally, guidelines are suggested for the development and implementation of new technologies in dementia care.

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“…Whether the users should acquire these competencies via formal education or informal learning was often not explicitly mentioned. However, hands-on recommendations that were derived from prior literature reviews [66][67][68][69][70] or from existing standards of care [71] on how to make use of technology safely were presented and could serve as guidance for educational measures of any kind.…”

Section: Articlementioning

confidence: 99%

“…Not only would it contribute to education on the safe use of technology, but it could also pave the way towards adoption and public as well as professional acceptance of innovations. It was argued that ethical standards assessment together with pertinent patient education only laid the foundation for realistic and sustainable system adoption of innovative applications for dementia patients [68]. Professional associations, such as the Canadian Association of Radiologists [70] pled to offer public education programs to engage citizens in the medical use of AI and ultimately prepare the ground for an open and positive attitude in data sharing.…”

Section: Articlementioning

confidence: 99%

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Clinical Information Systems – Seen through the Ethics Lens

2020

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Objective: The more people there are who use clinical information systems (CIS) beyond their traditional intramural confines, the more promising the benefits are, and the more daunting the risks will be. This review thus explores the areas of ethical debates prompted by CIS conceptualized as smart systems reaching out to patients and citizens. Furthermore, it investigates the ethical competencies and education needed to use these systems appropriately. Methods: A literature review covering ethics topics in combination with clinical and health information systems, clinical decision support, health information exchange, and various mobile devices and media was performed searching the MEDLINE database for articles from 2016 to 2019 with a focus on 2018 and 2019. A second search combined these keywords with education. Results: By far, most of the discourses were dominated by privacy, confidentiality, and informed consent issues. Intertwined with confidentiality and clear boundaries, the provider-patient relationship has gained much attention. The opacity of algorithms and the lack of explicability of the results pose a further challenge. The necessity of sociotechnical ethics education was underpinned in many studies including advocating education for providers and patients alike. However, only a few publications expanded on ethical competencies. In the publications found, empirical research designs were employed to capture the stakeholders’ attitudes, but not to evaluate specific implementations. Conclusion: Despite the broad discourses, ethical values have not yet found their firm place in empirically rigorous health technology evaluation studies. Similarly, sociotechnical ethics competencies obviously need detailed specifications. These two gaps set the stage for further research at the junction of clinical information systems and ethics.

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Ethical adoption: A new imperative in the development of technology for dementia

Abstract: Through the implementation of these recommendations, researchers and technology developers alike will benefit from evidence-informed guidance to ensure their solution is adopted in a way that maximizes the benefits to people with dementia and their carers while minimizing possible harm.

Cited by 63 publications

References 51 publications

Technology and Dementia: The Future is Now

Technology and Dementia: The Future is Now

The promise of technology in the future of dementia care

Clinical Information Systems – Seen through the Ethics Lens

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