Ethical and legal issues for writing researchers in an age of media convergence

McKee, Heidi A.

doi:10.1016/j.compcom.2007.09.007

Cited by 14 publications

(9 citation statements)

References 23 publications

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“…In 2007, Whitehead [18] found that the research community was divided about the correct approach to take when considering the ethical issues, and in 2009, Holmes [19] was of the opinion that the ethical standards for Internet research were not well developed. The discourse relating to the ethical use of information shared online has centered upon the views and experiences of researchers [20-22] and has not been focused exclusively on health information.…”

Section: Introductionmentioning

confidence: 99%

The Conceptual and Practical Ethical Dilemmas of Using Health Discussion Board Posts as Research Data

Bond¹,

Ahmed²,

Hind³

et al. 2013

J Med Internet Res

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BackgroundIncreasing numbers of people living with a long-term health condition are putting personal health information online, including on discussion boards. Many discussion boards contain material of potential use to researchers; however, it is unclear how this information can and should be used by researchers. To date there has been no evaluation of the views of those individuals sharing health information online regarding the use of their shared information for research purposes.ObjectiveTo explore the views of contributors to online diabetes discussion boards with regards to if (and how) they feel their contributions to boards should be used by health researchers.MethodsA qualitative approach was employed using online semistructured asynchronous (email) interviews. Interpretative description methodology was used to assess the interview transcripts, and quotations were extracted and anonymized to support each theme.Results26 interviews were carried out. Participants agreed that forum posts are in the public domain and that aggregated information could be freely used by researchers. This was agreed to be a good way of ensuring that the view of people living with diabetes is being heard in research. There was no consensus on the need for permission to use individual information, such as quotations, with some people happy for this to be freely used and others feeling that permission is necessary.ConclusionsParticipants acknowledged the dichotomy of having placed information into the public domain in an unrestricted way, with some interviewees also wanting to retain control of its use. The Internet is a new research location, and rather than trying to apply traditional ethical norms to this new genre, a new modus operandi is required. The authors propose introducing new norms for presenting research carried out with online discussion boards.

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Section: Introductionmentioning

confidence: 99%

The Conceptual and Practical Ethical Dilemmas of Using Health Discussion Board Posts as Research Data

Bond¹,

Ahmed²,

Hind³

et al. 2013

J Med Internet Res

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show abstract

“…Se dispone ahora de una literatura especializada abundante, en la que se estudian y analizan con detalle los múltiples aspectos (tecnológicos, económicos, sociológicos, axiológicos, etc.) de la convergencia de medios y productos en el soporte digital y su impacto cultural o simbólico en nuevas dinámicas de consumo, ocio y trabajo (Vaidhyanathan 2001;Feenberg 2002;Hellwig 2002;Beuscart 2005;Bhattacharjee et al 2006;DeVoss y Porter 2006;Radcliffe 2006;DeVoss y Webb 2008;McKee 2008;Mahanti et al 2011). Tales aportaciones permiten interpretar mejor el impacto de algunos incidentes ocurridos entre 2011 y 2012 -entre los que destaca el cierre de megaupload.com y los dominios asociados por agentes del FBI, a instancias de un juez federal estadounidense-, y ayudan a identificar las deficiencias en los mecanismos vigentes de protección de información personal de usuarios de determinados servicios en línea.…”

Section: Un Debate Público Frecuentemente Distorsionadounclassified

“…En muchas de esas sentencias puede observarse cómo opera una conceptualización convencional de la creatividad artística, literaria o musical, que vincula el progreso y el desarrollo de una sociedad más a la propiedad que a las redes de cooperación, intercambio y uso justo (fair use) de las obras o productos culturales (Lessig 2004;McKee 2008;Vaidhyanathan 2001).…”

Section: Cambios En Los Hábitos De Consumo E Impacto Culturalunclassified

“…Por supuesto, esta nueva cultura digital conlleva sus propios desafíos éticos y sociales, y origina debates e interpretaciones conflictivas de fenómenos que, en un nuevo contexto tecnológico, se vuelven ambivalentes o imposibles de encajar en el marco jurídico previo (McKee 2008). El aluvión de demandas que las compañías discográficas presentaron contra todo tipo de usuarios que descargaban música a través de las redes P2P fue pronto interpretado como un modo de demonizar a sus propios clientes, cuya afición por la música había proporcionado beneficios enormes a los legítimos propietarios de derechos de autor durante décadas.…”

Section: Reacción Punitiva Sin Estrategias De Negocio Innovadorasunclassified

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Propiedad intelectual, seguridad y control de las comunicaciones en Internet. Impacto sociocultural del fenómeno Megaupload

Muñoz

2012

Gazeta De Antropología

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La conceptualización del debate sobre la protección de los derechos de autor en términos de ciberseguridad introduce un sesgo inequívocamente autoritario en diversas propuestas legislativas presentadas al Senado y al Congreso de Estados Unidos entre 2011 y 2012. Numerosas organizaciones defensoras de los derechos civiles y de una Internet libre han advertido de las consecuencias, puesto que sus promotores tienen sobrada capacidad para presionar en las instancias de toma de decisiones de otros países. De ser aprobadas, supondrían el fin de una Internet libre y no fragmentada, donde los Estados, las agencias de seguridad y otras entidades públicas o privadas tendrían mecanismos de control sin precedentes sobre las actividades de internautas y usuarios. Este trabajo propone elementos para adoptar un enfoque más amplio del problema, en un marco que garantice de manera efectiva la libertad política y los derechos civiles.

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“…In the United States, a country that has become increasingly litigious, especially as it relates to copyright (Horovitz, 2008;Latchaw and Galin, 1998;McKee, 2008;Reyman, 2010;Rife, 2007), it could be difficult to think of authorship in any other way. As Latchaw and Galin (1998) explain, "terms such as copyright, intellectual property rights, and fair use suggest that knowledge is legalistic and capitalistic tender belonging to creators/authors and disseminators/publishers" (p. 146).…”

Section: Constitutional Convention Show That American Copyright Law Amentioning

confidence: 99%

Yours, mine, and ours : confronting the originality burden through remix and intertextuality.

Harvey

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Ethical and legal issues for writing researchers in an age of media convergence

Cited by 14 publications

References 23 publications

The Conceptual and Practical Ethical Dilemmas of Using Health Discussion Board Posts as Research Data

The Conceptual and Practical Ethical Dilemmas of Using Health Discussion Board Posts as Research Data

Propiedad intelectual, seguridad y control de las comunicaciones en Internet. Impacto sociocultural del fenómeno Megaupload

Yours, mine, and ours : confronting the originality burden through remix and intertextuality.

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