Ethical considerations on the value of patient knowledge in long-term care

Abstract

This study deepens our understanding of the value of patient knowledge in situations where patients see the world in a different manner as do healthcare professionals. The conversations revealed personal subjective knowledge which our respondents create and live by. Healthcare professionals are encouraged to discover and affirm the understandings of these patients, and not be prepossessed due to the diagnosis or general nursing home rules. Understanding patients' unique knowledge through appreciation of the complexity and richness of different views on the situation can assist to give a more humane response to individual needs and pain. Health staff in healthcare institutions are encouraged to evaluate the - unintended - effect of rigidly applied nursing home rules, and the government is challenged to rethink its policy about care, and provide more resources permitting relational care that nurtures the dignity of patients suffering from Korsakoff's syndrome.

Errorless skill learning in long-term Korsakoff care

“…I agree with Rensen et al (2018) on that the introduction of errorless skill learning in long-term Korsakoff care can result in massive reductions of behavioral problems (i.e. aggression and apathy), increased quality of life, and increased autonomy.…”

“…One of the essential interventions used by Rensen et al (2018) was to ask the patients what skill they wanted to learn, hereby giving full support to the goals and values of the Korsakoff's syndrome patients themselves. The best results regarding learning, quality of life, and behavioral symptom reduction were seen in patients were the actual goals of the patient were accomplished.…”

Treatment delay within the patient journey of people with Korsakoff's syndrome: A retrospective qualitative multiple‐case study in the Netherlands

“…He can refer the patient to appropriate care services if necessary. However, GP's do not always recognise the disorder because it is a rare disorder, and Korsakoff patients are not aware of their illness and consequently do not have any care demands (van den Hooff & Goossensen, 2015b). This complicates the GP's ability to make a timely and proper diagnosis and to consult the existing guidelines (Federatie Medisch Specialisten, 2022; Galvin et al, 2010).…”

The Effect of a Patient Education Multimodal Digital Platform on Knowledge Acquisition, Self-efficacy, and Patient Satisfaction

“…This may indicate that these patients have been given insufficient patient education or alternatively such that does not help to preserve the required knowledge. In addition, studies have demonstrated that lack of knowledge may increase the chance of adverse effects related to ineffective drug treatment 22,23 . On the other hand, high level of knowledge has a positive influence on patients' satisfaction 19 …”