Ethical Decision-Making in Prenatal Diagnosis and Termination of Pregnancy: A Qualitative Survey Among Physicians and Midwives

Garel, M.; Gosme-Séguret, S; Cuttini, M

doi:10.1097/01.ogx.0000055752.75837.16

Cited by 21 publications

(31 citation statements)

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“…Concerning induced abortion of fetuses with birth defects, literature has warned that decisions of TAP constitute a problematic value judgment about what is considered a life worth living, and possibly a step in the direction of eugenics (Shakespeare, 1998;Garel et al, 2002). These concerns were raised by authors in Ghana who considered that ''PND and selective abortion appears to be applying capital punishment to the unborn child for ''crimes'' only the parents can be responsible for' ' (Kyerewaa Edwin et al, 2011).…”

Section: Wonkam and Hurst Discussionmentioning

confidence: 99%

A Call for Policy Action in Sub-Saharan Africa to Rethink Diagnostics for Pregnancy Affected by Sickle Cell Disease: Differential Views of Medical Doctors, Parents and Adult Patients Predict Value Conflicts in Cameroon

Wonkam

Hurst

2014

OMICS: A Journal of Integrative Biology

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Sickle cell disease (SCD) is a debilitating illness that affects the life expectancy of patients. It is possible to test for SCD before birth, to allow for reproductive options to parents. However, under Cameroonian Law, voluntary abortion is a criminal offense and medical abortion is permitted only ''.if it is done by an authorized professional and justified by the need to save the mother from grave health jeopardy.'' The objective of the present study was to compare the views of Cameroonian doctors, parents with at least one living SCD-affected child, and adult SCD patients, regarding prenatal genetic diagnosis and termination of SCD-affected pregnancy. We conducted a quantitative sociological survey of 110 doctors, 130 parents, and 89 adult patients. The majority accepted the prenatal genetic diagnosis for SCD (78.7%, 89.8%, and 89.2%, respectively). Parents (62.5%) were more in favor of termination of SCD-affected pregnancy, than doctors and adults patients (36.1% and 40.9% acceptance, respectively). Parents and patients who found medical abortion acceptable cited fear to have a SCD-affected child (98.1 and 88.9%) and the poor quality of the affected child's health (92.6% and 81.5%). The data underscore the urgency of policy action to place emphasis on: premarital screening, early detection and care of SCD, socio-economic measures to assist SCD-affected families, appropriateness to consider maternal distress due to fetal anomalies in medical abortion legislation. These novel findings signal potential value-based conflicts on the horizon, and can usefully inform the future policy actions in the African continent as OMICS biotechnologies are increasingly employed in global health. To the best of our knowledge, the present study is the first attempt in sub-Saharan Africa to attempt to triangulate the views of multiple stakeholders towards prenatal diagnosis of SCD and termination of an affected pregnancy.

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Section: Wonkam and Hurst Discussionmentioning

confidence: 99%

A Call for Policy Action in Sub-Saharan Africa to Rethink Diagnostics for Pregnancy Affected by Sickle Cell Disease: Differential Views of Medical Doctors, Parents and Adult Patients Predict Value Conflicts in Cameroon

Wonkam

Hurst

2014

OMICS: A Journal of Integrative Biology

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“…Most of the parents believed that their baby would survive (Chan et al, 2006). As each case of very preterm birth is unique, it is necessary to take the parents' wishes into account and let them participate in the decision-making process (Garel et al, 2002;Jackson et al, 2003;Garel et al, 2004;Danerek et al, 2005;Danerek & Dykes, 2008;Pignotti & Donzelli, 2008). Both parents often want to take part in the decisions concerning the care of the mother and their infant (Jackcson et al, 2003;Danerek & Dykes, 2008).…”

Section: Discussion Of the Findingsmentioning

confidence: 99%

“…(Danerek & Dykes, 2001). Decision-making often follows clinical guidelines, but in the case of preterm labour and birth these are not always sufficient and decisions are then made on an individual basis (Garel et al, 2002;Garel et al, 2004;Danerek et al, 2005;Pignotti & Donzelli, 2008).…”

Section: Introductionmentioning

confidence: 99%

Attitudes of Swedish midwives towards management of extremely preterm labour and birth

et al. 2012

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“…Dans cet article nous présentons les résultats de l'étude sur l'extrême prématurité. Ces résultats ont déjà été publiés par ailleurs [15], de même que ceux concernant le diagnostic pré-natal et l'IMG [16]. Par souci de clarté, dans la présentation des résultats, l'énoncé de la question est reproduit intégralement.…”

Section: Introductionunclassified

Problèmes éthiques posés par l'extrême prématurité: résultats d'une étude qualitative auprès des obstétriciens et des sages-femmes

Garel

Séguret

Kaminski

et al. 2007

Gynécologie Obstétrique & Fertilité

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Ethical Decision-Making in Prenatal Diagnosis and Termination of Pregnancy: A Qualitative Survey Among Physicians and Midwives

Cited by 21 publications

References 0 publications

A Call for Policy Action in Sub-Saharan Africa to Rethink Diagnostics for Pregnancy Affected by Sickle Cell Disease: Differential Views of Medical Doctors, Parents and Adult Patients Predict Value Conflicts in Cameroon

A Call for Policy Action in Sub-Saharan Africa to Rethink Diagnostics for Pregnancy Affected by Sickle Cell Disease: Differential Views of Medical Doctors, Parents and Adult Patients Predict Value Conflicts in Cameroon

Attitudes of Swedish midwives towards management of extremely preterm labour and birth

Problèmes éthiques posés par l'extrême prématurité: résultats d'une étude qualitative auprès des obstétriciens et des sages-femmes

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