Ethical issues and dilemmas in spinal cord injury rehabilitation in the developing world: a mixed-method study

Uddin, Taslim; Shakoor, MA; Rathore, Farooq Azam; Sakel, Mohamed

doi:10.1038/s41393-022-00808-8

Cited by 7 publications

(9 citation statements)

References 25 publications

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“…Effective team management is considered essential for rehabilitation goal setting team meetings and subsequent team coordination. Many of the developing countries' rehabilitation is not a health priority and faces multiple challenges in rehabilitation team functioning ( 9 , 13 , 14 , 15 , 16 ). Then, what should be the format of the rehabilitation team and who should be leading and coordinating the team functions?…”

Section: Methodsmentioning

confidence: 99%

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“Leadership in Rehabilitation Teamwork: Challenges for Developing Countries”

Uddin

2022

Front. Rehabilit. Sci.

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Physical rehabilitation medicine is a diverse specialty; its main objective is to provide comprehensive rehabilitation involving multiple health care professionals to optimize function and improve the quality of life for people with disabilities. There is an increase in the number of people with disabilities, and people with disabilities in lower income countries do not receive the required rehabilitation. Rehabilitation intervention includes functional assessment, rehabilitation goal setting, composition of the focused team and coordination of the team works, all of which require a highly skilled team leader. No single professional is likely to have all the necessary skills to achieve optimal results alone. There is a knowledge gap between the theory, existing situation, and practice in rehabilitation team functioning. In this short communication challenges for quality rehabilitation services were highlighted, including the importance of the leadership role of team functioning.

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Section: Methodsmentioning

confidence: 99%

“…BOX 1 Challenges for leadership role in team functioning [9,13,14,15,16,19,20] • Lack of relevant course contents of the rehabilitation professional curriculum…”

Section: Leadership Role In Rehabilitation Team Functioningmentioning

confidence: 99%

“Leadership in Rehabilitation Teamwork: Challenges for Developing Countries”

Uddin

2022

Front. Rehabilit. Sci.

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“…Patients' autonomy in decision-making is underlined as an important dilemma by staffs of spinal cord injury (SCI) rehabilitation department in developing world, according small group discussions in three medical conferences [22]. In low-income and lower-middle-income countries, many other ethical problems are present, e.g.…”

Section: Contemporary Issues In Clinical Bioethics -Medical Ethical A...mentioning

confidence: 99%

“…In low-income and lower-middle-income countries, many other ethical problems are present, e.g. lack of insurance for SCI rehabilitation and numerous financial challenges [22].…”

Section: Contemporary Issues In Clinical Bioethics -Medical Ethical A...mentioning

confidence: 99%

Bioethical issues in neurorehabilitation

B. Koleva,

R. Yoshinov,

S. Gerenova

et al. 2023

Contemporary Issues in Clinical Bioethics - Medical, Ethical and Legal Perspectives

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The authors analyze basic bioethical issues, with application in neurorehabilitation clinical practice. We consider traditions of Bulgarian schools of Physical and Rehabilitation Medicine, Physiotherapy and Ergotherapy, related to bioethics. Physical and rehabilitation medicine investigates the effects of the application of natural and preformed physical modalities on the human organism. Neurorehabilitation is an interdisciplinary field - between neurology, neurosurgery and physical medicine. Many principles of the Declaration on bioethics and patients’ rights are obligatory in the rehabilitation practice, e.g.: human dignity and human rights, autonomy, consent, equality and equity, non-discrimination and non-stigmatization (for patients with disabilities). Several bioethical topics are important for neurorehabilitation: human research, neuro-ethics, pain management, assisted suicide, euthanasia. We present an analysis of bioethical problems of a clinical case from our neurorehabilitation practice.

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“…Paternalistic approaches to care and power imbalances between people with SCI and healthcare professionals, caregivers, and other members of society during rehabilitation and community integration can contribute to experiences of vulnerability and hinder decision-making that aligns with values [6]. The experience of living with SCI is further compounded by issues of justice and fairness at a systems level, such as a lack of accessible facilities, information, and specialized rehabilitation and healthcare services that create barriers to reintegration [7] and differentially impact people living in developing countries and low-resourced and rural communities [8,9] Sociocultural factors such as discrimination further impact adjustment after injury, with marginalized and racialized groups most affected [10].…”

Section: Introductionmentioning

confidence: 99%

Strengths, gaps, and future directions on the landscape of ethics-related research for spinal cord injury

et al. 2023

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Spinal cord injury (SCI) affects between 250,000–500,000 people globally each year. While the medical aspects of SCI have received considerable attention in the academic literature, discourse pertaining to its ethical implications is more limited. The experience of SCI is shaped by intersecting demographic and identity factors such as gender, race, and culture that necessitate an intersectional and value-based approach to ethics-related research that is properly situated in context. Given this background, we conducted a content analysis of academic studies exploring the perspectives and priorities of individuals with SCI published in peer-reviewed journals in the decade between 2012–2021. Terms pertaining to SCI and ethics were combined in a search of two major publication databases. We documented overall publication patterns, recruitment and research methods, reporting of demographic variables, and ethics-related discourse. Seventy (70) papers met inclusion criteria and were categorized by their major foci. Findings reveal a gap in reporting of participant demographics, particularly with respect to race and ethnicity, geographic background, and household income. We discuss these person-centered themes and gaps that must be closed in the reporting and supporting of SCI research.

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Ethical issues and dilemmas in spinal cord injury rehabilitation in the developing world: a mixed-method study

Cited by 7 publications

References 25 publications

“Leadership in Rehabilitation Teamwork: Challenges for Developing Countries”

“Leadership in Rehabilitation Teamwork: Challenges for Developing Countries”

Bioethical issues in neurorehabilitation

Strengths, gaps, and future directions on the landscape of ethics-related research for spinal cord injury

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