Ethical Issues in Cardiovascular Research Involving Humans

Frye, Robert L.; Simari, Robert D.; Gersh, Bernard J.; Burnett, John C.; Brumm, Shari K.; Myerle, Kathleen; Jaffe, Allan S.; Holmes, David R.; Lerman, Amir; Terzic, André

doi:10.1161/circulationaha.107.752766

Cited by 9 publications

(4 citation statements)

References 50 publications

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“…Participation in the study was based upon informed consent and couples' willingness to participate (Council for International Organizations of Medical Sciences (CIOMS) 2002, Frye et al 2009). Participants were informed that their participation was guarded by confidentiality, research data would be safely stored and their individual identities protected.…”

Section: Ethical Considerationsmentioning

confidence: 99%

The heart is a representation of life: an exploration of illness beliefs in couples living with atrial fibrillation

Dalteg

Sandberg

Malm

et al. 2017

Journal of Clinical Nursing

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Section: Ethical Considerationsmentioning

confidence: 99%

The heart is a representation of life: an exploration of illness beliefs in couples living with atrial fibrillation

Dalteg

Sandberg

Malm

et al. 2017

Journal of Clinical Nursing

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“…33,34 However, couples' participation in the study was exclusively dependent on initial consent from the patient. 33,34 However, couples' participation in the study was exclusively dependent on initial consent from the patient.…”

Section: Ethical Considerationsmentioning

confidence: 99%

Managing Uncertainty in Couples Living With Atrial Fibrillation

Dalteg

Benzein

Sandgren

et al. 2014

Journal of Cardiovascular Nursing

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“…Written informed consent was obtained from the participants prior to the interviews. They were informed about the study both verbally and in writing, about the aim of the study, as well as about the possibility of discontinuing their participation at any time without the need to give any reason for this [21]. They were also informed that all material would be treated confidentially.…”

Section: Ethical Considerationsmentioning

confidence: 99%

Regaining Normalcy in Relatives of Patients with a Pacemaker

Malm¹,

Sandgren²

2014

OJN

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Patients with chronic diseases, such as those with pacemakers, have shown that they have a worsened well-being, which means an increased interest in investigating how relatives of patients with pacemakers experience their situations and how the disease affects their life situations. The aim of this study was to explore the main concerns for the relatives of patients with a pacemaker and how they resolve these issues. A classic grounded theory was used throughout the study for data collection and analysis. Interviews were conducted with ten participants. Striving for normalcy emerged as the main concern for relatives of patients with a pacemaker and was handled through a process of regaining normalcy where the relatives strive to find a way to live as normal as possible. Regaining normalcy is done through developing trust, dwindling and finally life stabilizing, in which they are either holding back or new normalizing. Distinguishing signs are constantly done during the process to quickly notice possible symptoms of the patient. Increased knowledge and understanding of how the relatives of patients with a pacemaker regain normalcy can be used as a guide in order to support and inform the patient as well as their relatives in conjunction with implantation occasions but also in connection with recurring and lifelong follow-up occasions.

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Ethical Issues in Cardiovascular Research Involving Humans

Cited by 9 publications

References 50 publications

The heart is a representation of life: an exploration of illness beliefs in couples living with atrial fibrillation

The heart is a representation of life: an exploration of illness beliefs in couples living with atrial fibrillation

Managing Uncertainty in Couples Living With Atrial Fibrillation

Regaining Normalcy in Relatives of Patients with a Pacemaker

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