Ethical Issues in Community-Based, Participatory, and Action-Oriented Forms of Research

Guţă, Adrian; Voronka, Jijian

doi:10.1007/978-3-030-16759-2_24

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2023

2024

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Cited by 4 publications

References 73 publications

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Stakeholder Engagement and (the Limits of) IRB Review

Cargill

2023

Philosophy and Medicine

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Stakeholder Engagement and (the Limits of) IRB Review

Cargill

2023

Philosophy and Medicine

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Negotiating access to community-based participatory research

Ehsan

2023

Soc Psychiatry Psychiatr Epidemiol

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Purpose Community-based participatory research (CBPR) that improves social capital can be a powerful tool for promoting mental health and well-being. This work explores what gaining, maintaining, and losing access to this type of CBPR looks like from a reflexive research perspective. Method I describe and reflect on my experiences conducting a mixed-methods study of an existing CBPR to increase social capital in Switzerland. I draw on ethnographic observations, field notes, and reflexive memos collected during fieldwork between 2016 and 2020. Results I negotiated access to the CBPR across three levels: (1) formal organizational with intervention leaders, (2) implementational with facilitators, and (3) the community/group level with participants. Intervention leaders let me conduct research if they benefitted from my work in a timely and reinforcing way, facilitators granted access if I made myself helpful and supported their work, and community members accepted me if I participated in their community meaningfully. I lost access when my findings posed a potential risk to the intervention funding. Conclusion I highlight how access is a fluid and complex process that can change throughout CBPR. I show the importance of reflexive analysis to understand how access is negotiated in diverse settings, what sources of social capital are needed to engage in these negotiations, and how positionality and power play a role in this process.

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