Ethical Issues in Genetics (Premarital Counseling, Genetic Testing, Genetic Engineering, Cloning and Stem Cell Therapy, DNA Fingerprinting)

Albar, Mohammed Ali; Chamsi‐Pasha, Hassan

doi:10.1007/978-3-319-18428-9_12

Contemporary Bioethics 2015

DOI: 10.1007/978-3-319-18428-9_12

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Ethical Issues in Genetics (Premarital Counseling, Genetic Testing, Genetic Engineering, Cloning and Stem Cell Therapy, DNA Fingerprinting)

Mohammed Ali Albar

Hassan Chamsi‐Pasha

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Cited by 2 publications

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Genetic counseling in the context of Bangladesh: current scenario, challenges, and a framework for genetic service implementation

Anwar

Mourosi

Chakraborty³

et al. 2021

Orphanet J Rare Dis

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With the advancements in genetics and genomics in the twenty-first century, genetic services have become an integral part of medical practices in high-income and upper-middle-income countries. However, people living in low and lower-middle-income countries (LICs and LIMCs), including Bangladesh, are rather underprivileged in receiving genetic services. Consequently, genetic disorders are emerging as a significant public health concern in these countries. Lack of expertise, high expense, the dearth of epidemiological data, insufficiently updated medical education system, poor infrastructure, and the absence of comprehensive health policies are the main factors causing people living in these countries not having access to genetic services. In this article, the authors took benefit from their professional experience of practicing medical genetics in the area and reviewed existing literature to provide their opinions. Particularly, it reviews the current knowledge of genetic disorders' burden and their causative factors in Bangladesh. It focuses on why providing genetic services is challenging in the context of the country's cultural and religious sentiment. Finally, it proposes a physician-academician collaborative framework within the existing facility that aims to tackle the challenges. Such a framework could also be useful for other LICs and LMICs to address the challenges associated with providing genetic services.

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Genetic counseling in the context of Bangladesh: current scenario, challenges, and a framework for genetic service implementation

Anwar

Mourosi

Chakraborty³

et al. 2021

Orphanet J Rare Dis

View full text Add to dashboard Cite

show abstract

Changing patterns in marriage choice and related health risk in the Pakistani heritage community in Bradford UK: a qualitative study.

Small,

Razaq,

Sharma

et al. 2024

Wellcome Open Res

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Background Children born to blood relations (consanguineous parents), primarily cousins, have higher mortality and morbidity than children born to non-consanguineous parents. Consanguinity is low in the UK but high in some communities, including the Pakistani heritage community in Bradford. There has been a marked decrease in consanguinity in the last decade and that is likely to result in reductions in excess mortality and morbidity. Methods Drawing on patterns of child health reported by the Born in Bradford study, augmented with a summary of the literature on motivations for choosing consanguineous unions and on the shifting characteristics of those who make this choice, questions about marriage choice and knowledge of allied health risk were devised. They were explored in four focus groups with self-identified members of the Pakistani heritage community. Groups were divided by age and gender. Discussions were analysed using Thematic Analysis. Results There was agreement that rates of consanguinity were declining. Older group members were concerned this might indicate a shift away from tradition and damage community cohesion. Younger participants were positive about the benefits of a shift towards individual choice. They felt this could be achieved without damaging community strengths. Reasons for the fall in numbers were attributed to changes within the community, including higher numbers of people staying in education beyond school. External factors, including new immigration rules, were also considered. There was not a consensus about health risks, some older respondents were sceptical of links between marriage choice and child health and concerned about how health risks were communicated. All were concerned that marriage choice should not be used to demonise this community. Conclusion A commitment to sustaining community cohesion is shared by all groups. Younger people think this can be achieved despite falls in consanguinity. There are continuing challenges in communicating health risk.

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Ethical Issues in Genetics (Premarital Counseling, Genetic Testing, Genetic Engineering, Cloning and Stem Cell Therapy, DNA Fingerprinting)

Cited by 2 publications

References 15 publications

Genetic counseling in the context of Bangladesh: current scenario, challenges, and a framework for genetic service implementation

Genetic counseling in the context of Bangladesh: current scenario, challenges, and a framework for genetic service implementation

Changing patterns in marriage choice and related health risk in the Pakistani heritage community in Bradford UK: a qualitative study.

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