Ethical review of the responsibilities of the patient advocate in living donor liver transplant

Abstract

http://aasldpubs.onlinelibrary.wiley.com/hub/journal/10.1002/(ISSN)2046-2484/video/7-3-reading-hays.html a video presentation of this article http://aasldpubs.onlinelibrary.wiley.com/hub/journal/10.1002/(ISSN)2046-2484/video/7-3-interview-hays.html the interview with the author

“Giving the gift of life twice”: Understanding the lived experiences of parent donors and nondonors in pediatric haploidentical hematopoietic cell transplantation

“…To address these barriers, it may be beneficial to match parental donors with a donor advocate (e.g., social workers, contracted adult health psychologists, separate pediatric psychologist that is not treating patient), which has been recommended by organ transplantation advisory committees. 28 These advocates could provide a safeguard for the informed consent process by assessing understanding of donor process and supporting decision-making. Routine screening of caregiver distress is also a priority to facilitate mental health referrals throughout the transplant.…”

“…However, ethical challenges of providing care to parents in the pediatric setting exist. To address these barriers, it may be beneficial to match parental donors with a donor advocate (e.g., social workers, contracted adult health psychologists, separate pediatric psychologist that is not treating patient), which has been recommended by organ transplantation advisory committees 28 . These advocates could provide a safeguard for the informed consent process by assessing understanding of donor process and supporting decision‐making.…”