Ethics and governance in digital mental health research – a joint academic and provider perspective

Bergin, Aislinn; Harding, Claire

doi:10.3389/conf.fpubh.2016.01.00035

Cited by 2 publications

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“…Although there are no previous studies on ethical issues conducting research on social media, especially for content analysis (Oruc 2019), Bergin and Harding (2016) argued that open-access data do not mean it is legal for researchers to conduct research regarding social media. However, it is undeniable that it presents major difficulties to gain consent from all these social media users while conducting research on social media.…”

Section: Sample and Analysismentioning

confidence: 99%

Digital Nationalism on Weibo on the 70th Chinese National Day

Zhang¹

2020

The Journal of Communication and Media Studies

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China's digital nationalism has been on the rise during the last decade. This article examines the digital nationalistic expression of solidarity and unity on China's 70th National Day celebration in 2019. It conducted a qualitative content analysis of 500 posts regarding China's National Day, which were posted on October 1, 2019, on Sina Weibo. This study finds that Chinese internet users employ textual and visual posts to express their pride and loyalty, thereby reflecting their Chinese identity, a call for national unity, and their best wishes for China's bright future. This study suggests that Weibo offers a virtual "imagined community" for netizens to interact with national symbols to spontaneously strengthen a sense of national identity by highlighting the Chinese Communist Party's achievements. The findings concluded that national identity is socially constructed, rather than being permanent. Moreover, the Internet facilitates a more liberating Chinese media system; however, digital media is also somehow influenced by the Chinese government's media logic, which helps to further disseminate the government's interests.

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Section: Sample and Analysismentioning

confidence: 99%

Digital Nationalism on Weibo on the 70th Chinese National Day

Zhang¹

2020

The Journal of Communication and Media Studies

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“…Equally worrying is the attitude to ethics by editors and reviewers of academic journals who do not perceive the need to develop a culture of respect and trustworthiness and may accept research using online data collection that applies questionable ethical practices. Likewise, DMH services sometimes lack the knowledge required to support decision-making on which research to participate in, and how best to involve their users in this process (Bergin and Harding 2016).…”

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confidence: 99%

Accessing Online Data for Youth Mental Health Research: Meeting the Ethical Challenges

et al. 2017

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This article addresses the general ethical issues of accessing online personal data for research purposes. The authors discuss the practical aspects of online research with a specific case study that illustrates the ethical challenges encountered when accessing data from Kooth, an online youth web-counselling service. This paper firstly highlights the relevance of a process-based approach to ethics (Markham and Buchanan 2012) when accessing highly sensitive data and then discusses the ethical considerations and potential challenges regarding the accessing of public data from Digital Mental Health (DMH) services. It presents solutions that aim to protect young DMH service users as well as the DMH providers and researchers mining such data. Special consideration is given to service users' expectations of what their data might be used for, as well as their perceptions of whether the data they post is public, private or open. We provide recommendations for planning and designing online research that includes vulnerable young people as research participants in an ethical manner. We emphasise the distinction between public, private and open data, which is crucial to comprehend the ethical challenges in accessing DMH data. Among our key recommendations, we foreground the need to consider a collaborative approach with the DMH providers while respecting service users' control over personal data, and we propose the implementation of digital solutions embedded within the platform for explicit opt-out/opt-in recruitment strategies and 'read more' options (Bergin and Harding 2016).

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Ethics and governance in digital mental health research – a joint academic and provider perspective

Cited by 2 publications

References 0 publications

Digital Nationalism on Weibo on the 70th Chinese National Day

Digital Nationalism on Weibo on the 70th Chinese National Day

Accessing Online Data for Youth Mental Health Research: Meeting the Ethical Challenges

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