Ethics of participation and social inclusion of older persons in research: lessons learned from the COVID-19 pandemic in Singapore

Maulod, Ad; Rouse, Sasha; Lee, Atiqah; Ravindran, Malcolm; Hazirah, Mohamad; Goh, Veronica Shimin; Azman, Diyana; Low, Lian Leng; Malhotra, Rahul; Chan, Angelique

doi:10.1186/s12961-022-00930-2

Cited by 4 publications

(2 citation statements)

References 25 publications

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“…Nonetheless, the research team gained valuable experience devising safety-conscious measures and adapting methods of data collection to encourage older people to continue to engage with research during the pandemic. The insights gained from these experiences are shared in a commentary to help ensure that research on vulnerable older populations can be conducted safely and ethically anywhere, whether during the current pandemic or other health emergencies [27].…”

Section: Research To Accelerate Uhc In the Context Of Global Populati...mentioning

confidence: 99%

Research to inform health systems’ responses to rapid population ageing: a collection of studies funded by the WHO Centre for Health Development in Kobe, Japan

Rosenberg¹,

Tomioka²,

Barber³

2022

Health Res Policy Sys

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Population ageing is a global phenomenon that has profound implications for all aspects of health systems development. Research is needed to understand and improve the health system response to this demographic shift, especially in low- and middle-income countries where the change is happening rapidly. This Supplement was organized by the WHO Centre for Health Development in Kobe, Japan (WHO Kobe Centre) whose mission is to promote innovation and research for equitable and sustainable universal health coverage considering the impacts of population ageing. The Supplement features 10 papers all based on studies that were funded by the WHO Kobe Centre in recent years. The studies involve a diverse set of 10 countries in the Asia Pacific (Cambodia, Japan, the Lao People’s Democratic Republic, Malaysia, Mongolia, Myanmar, the Philippines, Singapore, Thailand and Viet Nam); address various aspects of the health system including service delivery, workforce development and financing; and utilize a wide range of research methods, including economic modelling, household surveys and intervention evaluations. This introductory article offers a brief description of each study’s methods, key findings and implications. Collectively, the studies demonstrate the potential contribution that health systems research can make toward addressing the challenges of ensuring sustainable universal health coverage even while countries undergo rapid population ageing.

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Section: Research To Accelerate Uhc In the Context Of Global Populati...mentioning

confidence: 99%

Research to inform health systems’ responses to rapid population ageing: a collection of studies funded by the WHO Centre for Health Development in Kobe, Japan

Rosenberg¹,

Tomioka²,

Barber³

2022

Health Res Policy Sys

View full text Add to dashboard Cite

show abstract

“…Most existing research focuses on citizens’ engagement in research. For example, engaging older adults as partners in transitional care research, engaging patients in health research and engaging older adults in healthcare research and planning [ 21 – 25 ]. Previous research has also focused on involvement of older adults/informal caregivers in healthcare decision-making [ 26 , 27 ] as opposed to older adult/informal caregiver engagement in health policy development.…”

Section: Introductionmentioning

confidence: 99%

Strategies for engaging older adults and informal caregivers in health policy development: A scoping review

Kolade,

Porat-Dahlerbruch,

Makhmutov

et al. 2024

Health Res Policy Sys

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Background Care for older adults is high on the global policy agenda. Active involvement of older adults and their informal caregivers in policy-making can lead to cost–effective health and long-term care interventions. Yet, approaches for their involvement in health policy development have yet to be extensively explored. This review maps the literature on strategies for older adults (65+ years) and informal caregivers’ involvement in health policy development. Method As part of the European Union TRANS-SENIOR program, a scoping review was conducted using the Joanna Briggs Institute’s methodology. Published and grey literature was searched, and eligible studies were screened. Data were extracted from included studies and analysed using the Multidimensional Framework for Patient and Family Engagement in Health and Healthcare. Results A total of 13 engagement strategies were identified from 11 publications meeting the inclusion criteria. They were categorized as “traditional”, “deliberative” and “others”, adopting the World Bank’s categorization of engagement methods. Older adults and informal caregivers are often consulted to elicit opinions and identify priorities. However, their involvement in policy formulation, implementation and evaluation is unclear from the available literature. Findings indicate that older adults and their informal caregivers do not often have equal influence and shared leadership in policy-making. Conclusion Although approaches for involving older adults and their informal caregivers’ involvement were synthesized from literature, we found next to no information about their involvement in policy formulation, implementation and evaluation. Findings will guide future research in addressing identified gaps and guide policy-makers in identifying and incorporating engagement strategies to support evidence-informed policy-making processes that can improve health outcomes for older adults/informal caregivers.

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Social engagement among older women in Singapore during the COVID-19 pandemic

Yuan,

Yeo,

Lee

2024

Journal of Aging Studies

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Ethics of participation and social inclusion of older persons in research: lessons learned from the COVID-19 pandemic in Singapore

Cited by 4 publications

References 25 publications

Research to inform health systems’ responses to rapid population ageing: a collection of studies funded by the WHO Centre for Health Development in Kobe, Japan

Research to inform health systems’ responses to rapid population ageing: a collection of studies funded by the WHO Centre for Health Development in Kobe, Japan

Strategies for engaging older adults and informal caregivers in health policy development: A scoping review

Social engagement among older women in Singapore during the COVID-19 pandemic

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