Ethnicity and registration as a kidney donor: The significance of identity and belonging

Morgan, Myfanwy; Mayblin, Maya; Jones, Roger

doi:10.1016/j.socscimed.2007.08.012

Cited by 40 publications

(36 citation statements)

References 24 publications

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“…Our previous in-depth study with people of Caribbean origin (predominately from Jamaica) living in relatively disadvantaged multi-ethnic areas of South London also indicated that these respondents did not regard themselves as fully accepted and integrated into British society. For example, they described experiences of discrimination and disadvantage in relation to the educational system, job opportunities and the police, and referred to the existence of several 'societies' rather than seeing themselves as part of a single unified society [15]. These feelings of marginalisation and lack of belonging to British society were associated with an idealised desire to return home to the Caribbean for burial with their body 'whole', or at least to be buried in this way following a Caribbean style funeral in the UK.…”

Section: Discussionmentioning

confidence: 99%

“…These feelings of marginalisation and lack of belonging to British society were associated with an idealised desire to return home to the Caribbean for burial with their body 'whole', or at least to be buried in this way following a Caribbean style funeral in the UK. Funerals and burial thus appeared to have a symbolic value in reconciling the experience of a divided identity in life [15]. …”

Section: Discussionmentioning

confidence: 99%

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Ethnicity and attitudes to deceased kidney donation: a survey in Barbados and comparison with Black Caribbean people in the United Kingdom

et al. 2010

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BackgroundBlack minority ethnic groups in the UK have relatively low rates of deceased donation and report a higher prevalence of beliefs that are regarded as barriers to donation. However there is little data from migrants' countries of origin. This paper examines community attitudes to deceased kidney donation in Barbados and compares the findings with a survey conducted in a disadvantaged multi-ethnic area of south London.MethodsQuestionnaires were administered at four public health centres in Barbados and at three private general practices. Adjusted odds ratios were calculated to compare attitudinal responses with a prior survey of 328 Caribbean and 808 White respondents in south London.ResultsQuestionnaires were completed by 327 respondents in Barbados (93% response); 42% men and 58% women, with a mean age of 40.4 years (SD 12.6). The main religious groups were Anglican (29%) and Pentecostal (24%). Educational levels ranged from 18% not completing 5th form to 12% with university education. Attitudes to the notion of organ donation were favourable, with 73% willing to donate their kidneys after their death and only 5% definitely against this. Most preferred an opt-in system of donation. Responses to nine attitudinal questions identified 18% as having no concerns and 9% as having 4 or more concerns. The highest level of concern (43%) was for lack of confidence that medical teams would try as hard to save the life of a person who has agreed to donate organs. There was no significant association between age, gender, education or religion and attitudinal barriers, but greater knowledge of donation had some positive effect on attitudes. Comparison of attitudes to donation in south London and Barbados (adjusting for gender, age, level of education, employment status) indicated that a significantly higher proportion of the south London Caribbean respondents identified attitudinal barriers to donation.ConclusionsCommunity attitudes in Barbados are favourable to deceased donation based on a system of informed consent. Comparison with south London data supports the hypothesis that the relatively high prevalence of negative attitudes to deceased donation among disadvantaged ethnic minorities in high income countries may reflect feelings of marginalisation and lack of belonging.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Ethnicity and attitudes to deceased kidney donation: a survey in Barbados and comparison with Black Caribbean people in the United Kingdom

et al. 2010

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“…Research into attitudes towards deceased organ donation has highlighted many potential barriers to organ donation such as cultural rituals surrounding death, alienation from or distrust in the health care system, discrimination and exclusion from mainstream society, and lack of awareness of the organ shortage issue and donor registration (Alkhawari et al 2005; Darr and Randhawa 1999; Davis and Randhawa 2004; Exley et al 1996; Morgan et al 2008). Although the various religions do not appear to prohibit the giving and receiving of living or deceased donor organs, objections to both are often made on religious grounds (Bruzzone 2008).…”

Section: Introductionmentioning

confidence: 99%

Religious attitudes towards living kidney donation among Dutch renal patients

Ismail

Massey

Luchtenburg

et al. 2011

Med Health Care and Philos

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Terminal kidney patients are faced with lower quality of life, restricted diets and higher morbidity and mortality rates while waiting for deceased donor kidney transplantation. Fortunately, living kidney donation has proven to be a better treatment alternative (e.g. in terms of waiting time and graft survival rates). We observed an inequality in the number of living kidney transplantations performed between the non-European and the European patients in our center. Such inequality has been also observed elsewhere in this field and it has been suggested that this inequality relates to, among other things, attitude differences towards donation based on religious beliefs. In this qualitative research we investigated whether religion might indeed (partly) be the explanation of the inequalities in living donor kidney transplants (LDKT) among non-European patients. Fifty patients participated in focus group discussions and in-depth interviews. The interviews were conducted following the focus group method and analyzed in line with Grounded Theory. The qualitative data analyses were performed in Atlas.ti. We found that religion is not perceived as an obstacle to living donation and that religion actually promotes helping and saving the life of a person. Issues such as integrity of the body were not seen as barriers to LDKT. We observed also that there are still uncertainties and a lack of awareness about the position of religion regarding living organ donation within communities, confusion due to varying interpretations of Holy Scriptures and misconceptions regarding the process of donation. Faith leaders play an important educational role and their opinion is influential. This study has identified modifiable factors which may contribute to the ethnic disparity in our living donation program. We argue that we need to strive for more clarity and awareness regarding the stance of religion on the issue of living donation in the local community. Faith leaders could be key figures in increasing awareness and alleviating uncertainty regarding living donation and transplantation.

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“…Golchet et al (2000) reported that many factors such as age, religion, culture, personality characteristics, views on death and mortality, body image, and humanitarian concerns influence peoples' opinions towards body donation. According to Morgan et al (2008), death is an area in which boundaries and ethnic identity take on special significance, and ethnic minorities' reluctance to engage in organ donation at death may reflect a complex set of issues concerning identity and belonging. In the present study, where all respondents were doctors expected to be beyond cultural stigmas and fears of body donation, only 22% had a positive attitude towards donating their own bodies.…”

Section: Discussionmentioning

confidence: 99%

Knowledge, attitude, and practices regarding whole body donation among medical professionals in a hospital in India

Ballala

Shetty

Malpe

2011

Anatomical Sciences Ed

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Voluntary body donation has become an important source of cadavers for anatomical study and education. The objective of this study was to assess knowledge, attitude, and practice (KAP) regarding whole body donation among medical professionals in a medical institute in India. A cross sectional study was conducted at Kasturba Hospital, Manipal, India, among medical doctors. Data was collected from consenting individuals in the age group of 25-65 years by convenience sampling method. A semi-structured, pretested, questionnaire designed to assess KAP regarding whole body donation was provided to the study population (n = 106); 97 individuals returned the completed questionnaire. Results showed that 8% of the medical professionals were unaware of the term body donation and 85% believed that donated bodies were misused. A large proportion of the respondents did not know about the authority that oversaw body donation, or its criteria for accepting donated bodies and diseases for which bodies were screened before acceptance. Only 22% of polled physicians were willing to donate their bodies for medical education, but 68% expected the public to do the same. While only 7% had already registered their own names for body donation, 64% were not aware of any known person having registered and 72% indicated that their decision would not be influenced even if they knew of friends who had registered. These results suggest that educating medical students and professionals regarding the altruistic act of body donation is as important as educating the general public.

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Ethnicity and registration as a kidney donor: The significance of identity and belonging

Cited by 40 publications

References 24 publications

Ethnicity and attitudes to deceased kidney donation: a survey in Barbados and comparison with Black Caribbean people in the United Kingdom

Ethnicity and attitudes to deceased kidney donation: a survey in Barbados and comparison with Black Caribbean people in the United Kingdom

Religious attitudes towards living kidney donation among Dutch renal patients

Knowledge, attitude, and practices regarding whole body donation among medical professionals in a hospital in India

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