Ethnocultural diversity and genetic counseling training: The challenge for a twenty‐first century

Punales‐Morejon, D.; Rapp, Rayna

doi:10.1007/bf00962076

Cited by 13 publications

(8 citation statements)

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“…Efforts to increase diversity within the genetic counseling profession have intensified over the past decade (Lega et al, 2005;Punales-Morejon and Rapp, 1993;Smith et al, 1993;Warren et al, 2005;Wang, 2001). They must be further developed in order to move genetic counseling from a profession of white female privilege to one that represents national and global ethnic, cultural, and gender diversity.…”

Section: Discussionmentioning

confidence: 99%

What Is It Like To Be in the Minority? Ethnic and Gender Diversity in the Genetic Counseling Profession

Schoonveld

Veach

LeRoy

2007

Journal of Genetic Counseling

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Increasingly, the genetic counseling profession is recognizing the need for greater ethnic and gender diversity. Recruitment and retention efforts may be enhanced by better understanding of the experience of individuals considered to be underrepresented in the profession. In this qualitative study, 8 genetic counseling students and 7 practicing genetic counselors who were ethnic minority and/or male participated in semi-structured telephone interviews regarding how they were introduced to the field, perceived career supports and barriers, their experiences within training programs and the field, and suggestions for increasing diversity. Introduction to the field tended to be late and accidental. There were several career supports (e.g., field combines science and helping others) and barriers (e.g., lack of information about the field). Participant experiences, although primarily positive, included instances of passive, unintentional discrimination; and there were internal and external pressures to be diversity experts and positive representatives of their group. Participants reported positively impacting colleagues' cultural competency and offering a different presence within clinical settings. Suggestions for increasing diversity and research recommendations are given.

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Section: Discussionmentioning

confidence: 99%

What Is It Like To Be in the Minority? Ethnic and Gender Diversity in the Genetic Counseling Profession

Schoonveld

Veach

LeRoy

2007

Journal of Genetic Counseling

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“…The need to diversify the field of practicing GCs has been noted throughout the history of the genetic counseling profession. Early on, three papers published in the second volume of the Journal of Genetic Counseling (JOGC) outlined the need to diversify the field as well as the shortage of bicultural and bilingual GCs (Punales‐Morejon & Rapp, ; Smith, Warren, & Misra, ; Weil & Mittman, ). Later, additional publications also described the importance of diversifying the population of GCs (Lega, Veach, Ward, & LeRoy, ; Schoonveld, Veach, & LeRoy, ), and in 2011, an entire issue of the JOGC was dedicated to GCs’ cultural competency.…”

Section: Process For Adding a New Language To Lexigene®mentioning

confidence: 99%

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confidence: 99%

Lexigene®: An online medical genetics translation tool to facilitate communication

Cloutier

Hathaway

Vanneste

et al. 2019

Journal of Genetic Counseling

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“…Representation of White or Caucasians (90%‐94%;), Asian (& Asian Indian) (3%‐8%), Black or African Americans (1%), Hispanics (0%‐2%), Native Americans/American Indian or Alaskan Native (0%‐1%), and Native Hawaiian or Other Pacific Islander (0%‐0.3%), as reflected by the PSS, has remained steady for nearly four decades. Publications in the Journal of Genetic Counseling have reflected the PSS findings and acknowledged the demographic landscape of the profession as well (Klotz, 2009; Lega, McCarthy Veach, Ward, & Leroy, 2005; Mittman & Downs, 2008; Oh & Lewis, 2005; Punales‐Morejon & Rapp, 1993; Schoonveld, Veach, & LeRoy, 2007; Weil & Mittman, 1993). The programming at the 38th Annual NSGC Professional Conference, ‘Our Profession Elevated’ in Salt Lake City, Utah, addressed various topics of diversity, equity, and inclusion (DEI).…”

Section: Introductionmentioning

confidence: 99%

“…acknowledged the demographic landscape of the profession as well (Klotz, 2009;Lega, McCarthy Veach, Ward, & Leroy, 2005;Mittman & Downs, 2008;Oh & Lewis, 2005;Punales-Morejon & Rapp, 1993;Schoonveld, Veach, & LeRoy, 2007;Weil & Mittman, 1993). The programming at the 38th Annual NSGC Professional Conference, 'Our Profession Elevated' in Salt Lake City, Utah, addressed various topics of diversity, equity, and inclusion (DEI).…”

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confidence: 99%

Reflections on diversity, equity, and inclusion in genetic counseling education

Bao

Bergner

Chan‐Smutko

et al. 2020

Journal of Genetic Counseling

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Through self‐reflection, self‐education, and with a learning mindset each of us has embarked on a personal path to understand the impact of racism in our personal and professional lives. This personal work is ongoing, though it was through our individual paths that led us to engage in dialogue on race and racism at the 38th National Society of Genetic Counselors Annual Conference. We initially did not know each other; however, we were drawn by a mutual desire to further the conversation and sought connection with each other after the Conversations Around Diversity Platform Presentations. Through sustained, open dialogue we created a brave space for sharing our emotional and intellectual responses to the conference. Through this dialogue and through written reflections, we recognized an emboldened urgency to author a joint reflection on our shared responsibility as genetic counseling training program leaders to use our privilege in service to our students and future students. We have the evidence that we are not a diverse profession. We have more evidence now than we did before that our profession performs poorly with regards to inclusivity. Our inability to acknowledge, address, and discuss racism and other forms of oppression is damaging to each of us individually and as a group of professionals. We owe it to ourselves, our students, our patients, and colleagues to name our learned biases and behaviors, own them and interrupt them.

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Ethnocultural diversity and genetic counseling training: The challenge for a twenty‐first century

Cited by 13 publications

References 0 publications

What Is It Like To Be in the Minority? Ethnic and Gender Diversity in the Genetic Counseling Profession

What Is It Like To Be in the Minority? Ethnic and Gender Diversity in the Genetic Counseling Profession

Lexigene®: An online medical genetics translation tool to facilitate communication

Reflections on diversity, equity, and inclusion in genetic counseling education

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