Evaluating a new methodology for providing individualized feedback in healthcare on quality of life and its importance, using the WHOQOL-BREF in a community population

Llewellyn, Alison; Skevington, Suzanne M.

doi:10.1007/s11136-015-1132-2

Cited by 16 publications

(19 citation statements)

References 29 publications

(25 reference statements)

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“…To improve self-management, individualised feedback of personal QoL results was presented to the intervention group using a computerised graphical summary [21]. WHOQOL-BREF profiles of QoL facets (dimensions) and their importance ratings were inspected simultaneously.…”

Section: Guided Qol Feedback Interventionmentioning

confidence: 99%

“…Pioneering feedback interventions showed equivocal well-being improvements [8][9][10], but technique refinements have improved emotional health in cancer [11,12] and other conditions [13,14]. Feedback mechanisms are poorly understood [15][16][17], but non-clinical research [18][19][20][21] is clarifying processes previously obscured by chronic disease. For instance, community adults report modest improvements to psychological QoL after personal feedback about QoL and its importance [20][21][22].…”

mentioning

confidence: 99%

“…Feedback mechanisms are poorly understood [15][16][17], but non-clinical research [18][19][20][21] is clarifying processes previously obscured by chronic disease. For instance, community adults report modest improvements to psychological QoL after personal feedback about QoL and its importance [20][21][22]. Its evaluation pointed towards increased motivation to attend primary care, although good outcomes for depressed participants remained uncertain [21].…”

mentioning

confidence: 99%

“…For instance, community adults report modest improvements to psychological QoL after personal feedback about QoL and its importance [20][21][22]. Its evaluation pointed towards increased motivation to attend primary care, although good outcomes for depressed participants remained uncertain [21]. Guided by self-regulation theory [23], this process resonates with the World Health Organisation's definition of QoL which implies that comparisons are used to judge QoL goals: 'An individual's perception of their position in life, in the context of the culture and value systems in which they live, and in relation to their goals, expectations, standards and concerns' [24].…”

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confidence: 99%

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Does quality of life feedback promote seeking help for undiagnosed cancer?

2020

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Purpose Diagnosing cancer early is an imperative, as help-seeking delays affect survival. Quality of life (QoL) deteriorates after diagnosis, but decline may start when cancer is suspected at the earliest stage of the pathway to treatment. This study examined whether offering guided feedback about personal QoL to adults with potential cancer symptoms, living in deprived communities, changes QoL and promotes help-seeking in primary care. Methods Visitors to a CRUK mobile cancer roadshow were recruited in 43 sites. A prospective longitudinal (2 × 2) repeatedmeasures design was applied. Where they presented a potential cancer symptom, and were 'signposted' to a GP, they were allocated to a symptom condition, or a lifestyle condition, if seeking cancer risk advice. Randomisation was to an Intervention group, who received feedback about personal QoL results (WHOQOL-BREF and WHOQOL importance measures), or a Control group who assessed QoL without feedback. Depression was screened. Results Of 107 participants, the mean age was 53; 50% were women, 57% were without tertiary education, 66% were unemployed and 45% were currently ill. Over 10 weeks, 54% of all those with symptoms sought help from a medical source and 42% specifically from a GP. Thirty-one completed all three assessments. With symptoms present, psychological, social and environmental QoL were poor, becoming poorer over time. When the symptoms group received feedback, psychological QoL increased, but GP visits were unaffected. However, feedback increased help-seeking from informal social contacts. Lifestyle groups reported consistently good psychological and social QoL. Conclusion This early cancer research offers practical and theoretical implications for QoL interventions in deprived communities.Keywords Cancer · Quality of life · Feedback · Delay · Oncology · Community · Public health PurposeEarly diagnosis improves cancer prognosis [1,2] and is an intervention priority [3,4]. As cancer is commonly diagnosed in primary care [5], the timing of the first consultation is crucial to reducing delays in treatment [2]. Although the pathways to treatment model [6] demonstrates transitions throughout the cancer 'journey', there is little information about the pre-diagnostic stage when symptoms and signs

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Section: Guided Qol Feedback Interventionmentioning

confidence: 99%

mentioning

confidence: 99%

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confidence: 99%

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confidence: 99%

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Does quality of life feedback promote seeking help for undiagnosed cancer?

2020

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“…Kuijpers et al [12] examine preferences for different graphical formats for presenting individualized data in patients and providers, as well as the discrepancy between self-rated and objective understanding of the information. Llewellyn and Skevington [13] evaluated a method for providing guided individualized graphical feedback based on PRO data in a primary care population. Johnston et al [14] used a graphical display of scores to identify areas of greatest concern for treatment planning on the basis of PROMIS domain scores.…”

Section: Best Approaches For Presenting Pro Data Clinicallymentioning

confidence: 99%