Evaluating Patient and Family Experience Among Spanish-Speaking and LatinX Patients: a Scoping Review of Existing Instruments

Rollins, Allison; Wandell, Grace; Epstein, Sherise; Bonilla‐Velez, Juliana

doi:10.1007/s40615-022-01371-x

Cited by 3 publications

(2 citation statements)

References 110 publications

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“…Although there are several scales for evaluating patient and family experience in Latinx population, none have been validated in both English and Spanish speaking US populations to holistically measure quality of person-centered prenatal and intrapartum care. [29][30][31][32] To address this gap, a rigorous and community-engaged scale development process was used to create the US versions of the person-centered prenatal care (PCPC-US) and the person-centered maternity care (PCMC-US) scales for prenatal and intrapartum care respectively. 33,34 This process involved an initial review to build on items in the PCMC scale developed and validated in Africa and Asia, [35][36][37] followed by expert reviews, cognitive interviews, pretesting, survey administration, and psychometric analysis-with decisions at each step guided by a community advisory board (CAB) made up of women from racial and ethnic minoritized groups.…”

Section: Introductionmentioning

confidence: 99%

Psychometric assessment of the US person-centered prenatal and maternity care scales in a low-income predominantly Latinx population in California

Afulani,

Coleman-Phox,

Leon-Martinez

et al. 2023

Preprint

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Objectives To assess psychometric properties of two scales developed to measure the quality of person-centered care during pregnancy and childbirth in the United States—the Person-Centered Prenatal Care (PCPC-US) and Person-Centered Maternity Care (PCMC-US) scales—in a low-income predominantly Latinx population in California. Methods Data were collected from October 2020 to January 2023 from surveys of low-income pregnant and birthing people in Fresno, California, participating in the “Engaging Mothers and Babies; Reimagining Antenatal Core for Everyone (EMBRACE) trial. Research staff administered the 26-item PCPC-US scale at 30–34 weeks’ gestation (n = 315) and the 35-item PCMC-US scale at 10–14 weeks after birth (n = 286), using the language preferred by the participant (English or Spanish). We assessed construct, criterion, and known group validity and internal consistency of the scales. Results 78% of respondents identified as Latinx. Factor analysis identified one dominant factor for each scale that accounted for over 60% of the cumulative variance, with most items loading at > 0.3. The items also loaded adequately on sub-scales for “dignity and respect,” “communication and autonomy,” and “responsive and supportive care.” Cronbach’s alpha for the full scales were > 0.9 and between 0.70 and 0.87 for the sub-scales. Summative scores range from 0 to 100, with higher scores indicating higher PCMC. Correlations with scores on scales measuring prenatal care quality and birth experience provided evidence for criterion validity, while associations with known predictors provided evidence for known-group validity. Conclusions The PCPC-US and PCMC-US scales, which were developed using a community-engaged process and found to have good psychometric properties in a largely high-income sample of Black women, were shown to also have good psychometric properties in a sample of low-income primarily Latinx women. Both scales provide valid and reliable tools to measure person-centered care experiences among minoritized communities to support efforts to reduce existing birth inequities.

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Section: Introductionmentioning

confidence: 99%

Psychometric assessment of the US person-centered prenatal and maternity care scales in a low-income predominantly Latinx population in California

Afulani,

Coleman-Phox,

Leon-Martinez

et al. 2023

Preprint

View full text Add to dashboard Cite

show abstract

“…Despite a large body of evidence demonstrating disparities in care among minoritized pregnant and birthing people, few tools to comprehensively measure the extent of person-centered care during pregnancy and birth have been specifically validated in these populations. Although there are several scales for evaluating patient and family experience in Latinx populations, none have been validated in both English-and Spanish-speaking US populations to holistically measure quality of person-centered prenatal and intrapartum care [29][30][31][32]. To address this gap, a rigorous and community-engaged scale development process was used to create the US versions of the person-centered prenatal care (PCPC-US) and the person-centered maternity care (PCMC-US) scales for prenatal and intrapartum care, respectively [33,34].…”

Section: Introductionmentioning

confidence: 99%

Psychometric assessment of the US person-centered prenatal and maternity care scales in a low-income predominantly Latinx population in California

Afulani,

Coleman-Phox,

Leon-Martinez

et al. 2023

BMC Women's Health

View full text Add to dashboard Cite

Objectives To assess psychometric properties of two scales developed to measure the quality of person-centered care during pregnancy and childbirth in the United States—the Person-Centered Prenatal Care (PCPC-US) and Person-Centered Maternity Care (PCMC-US) scales—in a low-income predominantly Latinx population in California. Methods Data were collected from July 2020 to June 2023 from surveys of low-income pregnant and birthing people in Fresno, California, participating in the “Engaging Mothers and Babies; Reimagining Antenatal Care for Everyone” (EMBRACE) trial. Research staff administered the 26-item PCPC-US scale at 30–34 weeks’ gestation (n = 315) and the 35-item PCMC-US scale at 10–14 weeks after birth (n = 286), using the language preferred by the participant (English or Spanish). We assessed construct, criterion, and known group validity and internal consistency of the scales. Results 78% of respondents identified as Latinx. Factor analysis identified one dominant factor for each scale that accounted for over 60% of the cumulative variance, with most items loading at > 0.3. The items also loaded adequately on sub-scales for “dignity and respect,” “communication and autonomy,” and “responsive and supportive care.” Cronbach’s alpha for the full scales were > 0.9 and between 0.70 and 0.87 for the sub-scales. Summative scores range from 0 to 100, with higher scores indicating higher person-centered care. Correlations with scores on scales measuring prenatal care quality and birth experience provided evidence for criterion validity, while associations with known predictors provided evidence for known-group validity. Conclusions The PCPC-US and PCMC-US scales, which were developed using a community-engaged process and found to have good psychometric properties in a largely high-income sample of Black women, were shown to also have good psychometric properties in a sample of low-income primarily Latinx women. Both scales provide valid and reliable tools to measure person-centered care experiences among minoritized communities to support efforts to reduce existing birth inequities.

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Psychometric evaluation of patient-reported experience measures for peri-anesthesia care: A systematic review based on COSMIN guidelines

Huang,

Yang,

Han

et al. 2025

International Journal of Nursing Studies

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Evaluating Patient and Family Experience Among Spanish-Speaking and LatinX Patients: a Scoping Review of Existing Instruments

Cited by 3 publications

References 110 publications

Psychometric assessment of the US person-centered prenatal and maternity care scales in a low-income predominantly Latinx population in California

Psychometric assessment of the US person-centered prenatal and maternity care scales in a low-income predominantly Latinx population in California

Psychometric assessment of the US person-centered prenatal and maternity care scales in a low-income predominantly Latinx population in California

Psychometric evaluation of patient-reported experience measures for peri-anesthesia care: A systematic review based on COSMIN guidelines

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