Evaluating Patient's Knowledge of Maternal Serum Screening

Goel, Vivek; Glazier, Richard H.; Holzapfel, Stephen; Pugh, Patricia; Summers, Anne

doi:10.1002/(sici)1097-0223(199605)16:5<425::aid-pd874>3.0.co;2-2

Cited by 52 publications

(21 citation statements)

References 8 publications

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“…The measures of knowledge used to date have mainly been cancer-specific, for example, the Knowledge Scale about Breast (and Ovarian) Cancer and Hereditary [55] and knowledge about genetic testing for inherited cancer (HNPCC and Inherited Breast Cancer) [56]. Measures of knowledge specific to genetics, rather than cancer genetics, have also been used in evaluations, such as the Genetic Knowledge Index [57], Measure of Counselees' Knowledge of Down Syndrome [58], and the Modified Maternal Serum Screening Knowledge Questionnaire [59]. No existing measures are capable of making the connection between level of knowledge and the ability to make informed decisions.…”

Section: Outcomes In Clinical Genetics Servicesmentioning

confidence: 99%

Outcome Measurement in Clinical Genetics Services: A Systematic Review of Validated Measures

Payne¹,

Nicholls²,

McAllister³

et al. 2008

Value in Health

107

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New research is necessary to develop the array of outcome measures required to quantify the benefits CGS offer patients living with the effects of genetic conditions. These need to be suitable for use in prospective evaluation studies to provide robust evidence for decision-makers to inform service development and commissioning. This includes prioritization of the existing validated outcome measures in terms of their usefulness and relevance to the measurement and valuation of patient benefits from a CGS.

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Section: Outcomes In Clinical Genetics Servicesmentioning

confidence: 99%

Outcome Measurement in Clinical Genetics Services: A Systematic Review of Validated Measures

Payne¹,

Nicholls²,

McAllister³

et al. 2008

Value in Health

107

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“…The knowledge questionnaire is a 19-item selfreport measure designed to examine participants' knowledge of prenatal testing and testing alternatives. Items on the survey were modified from the Maternal Serum Screening Knowledge Questionnaire (18). Higher scores reflect greater knowledge about PND-testing options.…”

Section: Knowledge Questionnairementioning

confidence: 99%

A randomized trial comparing alternative approaches to prenatal diagnosis counseling in advanced maternal age patients

Hunter

Cappelli²,

Humphreys³

et al. 2005

Clinical Genetics

137

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Prenatal diagnosis (PND) is offered routinely as part of pregnancy care to a large number of women at increased risk of fetal anomalies. Despite an extraordinary growth in the use of PND and significant resource allocation, few studies have examined outcomes of PND counseling, and virtually no research has evaluated the relative efficacy of various approaches to genetic counseling. This study was a randomized trial that compared which counseling methods - individual, group, and use of a decision aid - are effective in PND counseling for women of advanced maternal age (>/=35 years) and their partners. Three hundred and fifty-two women and 225 partners completed pre- and post-intervention questionnaires assessing changes in knowledge, decisional conflict, state anxiety, satisfaction, use of PND, and pregnancy outcomes. All participants showed a significant increase in knowledge and a decrease in decisional conflict post intervention. Those in the group intervention showed a significantly greater increase in knowledge than those in the individual counseling intervention. While high levels of satisfaction were reported by all, those in individual counseling were significantly more satisfied than those receiving group counseling or the decision aid. This study has shown unique benefits with each type of intervention such that women and their partners preferred individual genetic counseling, while they learned best in group-counseling sessions, and experienced the least decisional conflict regarding genetic testing with a decision aid.

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“…This survey of women receiving prenatal care from both physicians and midwives is the first study of Canadian women to be published since 1996; and the characteristics previously found to correlate with knowledge (e.g. greater age, higher education, being Canadian-born, and higher income; Goel et al 1996) were not shown to relate to adequate knowledge 21 years later. Both the Goel et al study and the present study were carried out in the same province (Ontario, Canada), but the number of prenatal screening tests available has increased greatly over that time period and the populations sampled are very different with regards to variation in sociodemographic characteristics which may explain this discrepancy (Lepage et al 2012).…”

Section: Discussionmentioning

confidence: 89%

“…In Canada, most prenatal care and counseling is provided by obstetricians (Born Ontario 2016). The most recent quantitative Canadian study of prenatal screening knowledge in women followed by physicians for obstetrical care was carried out almost 20 years ago, at which time only maternal serum screening was available (Goel et al 1996). Since then, many more screening tests have been developed, most of which are available at an earlier gestational age than maternal serum screening, allowing women who choose to terminate their pregnancy the opportunity to do so earlier.…”

Section: Introductionmentioning

confidence: 99%

Patients’ Knowledge of Prenatal Screening for Trisomy 21

Sheinis

Bensimon

Selk

2017

Journal of Genetic Counseling

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This study's objective was to assess the knowledge of prenatal screening for Trisomy 21 in pregnant women in one institution in Canada. A cross-sectional survey measuring demographics, knowledge of screening, and health literacy, was administered to pregnant women. Of the 135 women who completed the survey, 74% had adequate knowledge of Trisomy 21 and associated screening procedures. Twenty-eight point one percent of women did not receive any counseling. Overall, 29.5% of women did not know that the screening test was optional and 10.2% of women underwent screening prior to having been counseled. Multigravidity (p < 0.05) and prior counseling (p < 0.001) were positively correlated with knowledge while first language other than English (p < 0.001) was negatively correlated with knowledge. Given these findings, an effort needs to be made on the part of health care providers to increase counseling rates to 100%, stressing the optional nature of the test to attain true informed consent.

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Evaluating Patient's Knowledge of Maternal Serum Screening

Cited by 52 publications

References 8 publications

Outcome Measurement in Clinical Genetics Services: A Systematic Review of Validated Measures

Outcome Measurement in Clinical Genetics Services: A Systematic Review of Validated Measures

A randomized trial comparing alternative approaches to prenatal diagnosis counseling in advanced maternal age patients

Patients’ Knowledge of Prenatal Screening for Trisomy 21

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