Evaluating rehabilitation goals of visually impaired children in multidisciplinary care according to <scp>ICF</scp>‐<scp>CY</scp> guidelines

Rainey, Linda; Nispen, Ruth M. A. van; Rens, Ger van

doi:10.1111/aos.12319

Cited by 21 publications

(24 citation statements)

References 22 publications

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“…The approach used in this study is comparable to the universal application of the ICF-CY, which is also not limited to activities influenced by impairment to identify problems in, for example, participation [16]. Rainey and colleagues evaluated the participation goals of children and adolescents (0–17 years) who registered for rehabilitation services at an MRC and found that most goals related to mobility, prescription of low vision aids and school-related requests [17]. Although the present study shows that these domains are indeed affected by low vision, also other relevant domains were identified.…”

Section: Discussionmentioning

confidence: 99%

“…The ICF-CY aims to identify problems in body structure and function, activity limitations, participation restrictions and environmental factors of importance to children and youth [16]. A patient-record study evaluating participation goals of visually impaired children and adolescents (aged 0–18 years) obtained during the intake procedure, showed that most goals could be linked to the structure of ICF-CY, supporting its suitability as a general framework for assessing life areas affected by low vision in children and adolescents [17]. However, goals related to psychological functioning (e.g.…”

Section: Introductionmentioning

confidence: 99%

“…In addition, several of the important life areas identified by the ICF-CY (e.g. social interaction, communication and leisure activities) were often not represented in the participation goals of visually impaired children and adolescents [17]. Although this could indicate that low vision does not affect these life areas, this is counterintuitive and not supported by the literature.…”

Section: Introductionmentioning

confidence: 99%

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Comprehending the impact of low vision on the lives of children and adolescents: a qualitative approach

Rainey

Elsman²,

Nispen

et al. 2016

Qual Life Res

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Purpose To develop a comprehensive, conceptual model detailing the aspects of a child's life (\18 years) that are affected by low vision. Methods Three stakeholders were involved in the developmental process of the conceptual model: children and adolescents with a visual impairment (n = 40), parents of children with a visual impairment (n = 25) and professionals of multidisciplinary rehabilitation centres and specialised schools (n = 25). Qualitative methods including focus groups, online and face-to-face brainstorming sessions and concept mapping were used to investigate the impact of visual impairment on the lives of children and adolescents and to create the conceptual model. To aid interpretation of the large age range, four age-bands were formed.Results For each age-band (0-2, 3-6, 7-12 and 13-17 years), a total of 153, 200, 297 and 306 statements were generated by all stakeholders, respectively. The conceptual models show that low vision affects the sensorial development as well as the physical, psychological and social well-being of children and adolescents. In addition, identified external factors (i.e. education/employment and parental influence) can either facilitate or hinder participation. Conclusions The developed model shows which life aspects of children are affected by low vision. The needs identified by children and adolescents correspond not entirely to the perspective of parents and low vision professionals. Future research should focus on developing and validating a new questionnaire based on the conceptual model. This will aid goal setting, rehabilitation referral and the accomplishment of developmental milestones and life transitions of children and adolescents with a visual impairment, ultimately improving their participation and quality of life.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Comprehending the impact of low vision on the lives of children and adolescents: a qualitative approach

Rainey

Elsman²,

Nispen

et al. 2016

Qual Life Res

Self Cite

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“…For example, in rehabilitation settings, improving PA participation for individuals with visual impairments is of less importance than improving their abilities in activities such as education, mobility, communication, and the application of knowledge (104,105).…”

Section: Physical Activity and Public Healthmentioning

confidence: 99%

Self-reported visual impairment, physical activity and all-cause mortality: The HUNT Study

Brunes

Flanders

Augestad

2016

Scand J Public Health

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Printed by NTNU Grafisk senter i Sammendrag på norskFysisk aktivitet, mental helse og dødelighet hos personer med synsnedsettelse: Resultater fra HUNT-studien Å fremme fysisk aktivitet i befolkningen er ansett som en av de beste strategiene for folkehelsen grunnet dens gunstige effekter på mental helse, samt i forebygging av ikke-smittsomme sykdommer og tidlig død. Allikevel, fordelene av regelmessig fysisk aktivitet kan variere mellom ulike grupper i befolkningen. Personer som lever med synstap opplever oftere problemer med å delta i fysisk aktivitet sammenlignet med personer uten synstap, samt at de har større utfordringer med helse, sosialisering og det å fungere i dagliglivet. Det er per i dag uklart hvilken betydning fysisk aktivitet har på helsen hos personer som lever med synstap.Hensikten med denne doktorgradsavhandlingen var å undersøke betydningen av fysisk aktivitet på fritiden hos personer med og uten selv-rapportert synstap i dens sammenheng med psykiske plager og dødelighet. I alle de tre studiene som er inkludert i denne avhandlingen er det blitt benyttet data fra ungdom og voksendelen av Helseundersøkelsen i Nord Trøndelag (HUNTstudien). I tillegg ble data fra Dødsårsaksregisteret benyttet i en av studiene.Resultatene fra de tre studiene viste at ukentlig fysisk aktivitet, helst i moderat til høy intensitet, reduserte risikoen for depresjonssymptomer og tidlig død hos personer med selv-rapportert synstap, og styrken på sammenhengen var tilnaermet lik eller sterkere hos denne gruppen sammenlignet med personer uten selv-rapportert synsnedsettelse. Sammenhengene varierte mellom alder, kjønn og personlighet hos personer med selv-rapportert synsnedsettelse, noe som tyder på at responsen av fysisk aktivitet kan virke ulikt innad i denne populasjonen. Fysisk aktivitet hadde ingen sammenheng med angstsymptomer.Studiene bidrar til kunnskap om fysisk aktivitet og dens sammenheng med mental helse og dødelighet hos ungdom og voksne som rapporterer å ha nedsatt syn. Funnene tyder på at fysisk aktivitet kan vurderes som et sykdomsforebyggende og helsefremmende tiltak hos denne populasjonen. Allikevel, sammenhengen ser ut til å vaere kompleks og videre forskning er nødvendig. I sincerely thank Professor Liv Berit Augestad for her guidance, patient, support, and friendship.Her mentorship has made it possible for me to reach my goals. She has supported me through all the joys and frustrations of the work in connection with this thesis, and has never stopped believing in me. She has not only encouraged me to develop as a researcher and an independent thinker, but has also allowed me to focus on the aspects I consider important in life.I also thank my co-supervisor, Professor Dana Flanders, for his assistance and statistical guidance, as well as for introducing me to the wonderful world of causality. He, too, has made me feel very welcome during my stay in Atlanta. His intelligence, honesty, conscientiousness, friendliness, and humbleness is admirable, and he has become my scientific role model. viIn addition, I w...

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“…Visual impairments impact the participation of children and young adults [3–5] as well as their daily functioning and quality of life [6, 7]; these impairments can also cause social isolation which (over time) can lead to lowered self-esteem and depression [8, 9]. Since there is no general consensus on the definition of participation in children and those with an impairment [10], patient record studies were conducted in order to evaluate the rehabilitation goals of children and young adults with a visual impairment [11, 12]. These studies found that challenges most frequently faced by children are related to learning and applying knowledge, mobility, and major life areas (although goals related to other participation domains may be underrepresented) [12].…”

Section: Introductionmentioning

confidence: 99%

Feasibility of the Participation and Activity Inventory for Children and Youth (PAI-CY) and Young Adults (PAI-YA) with a visual impairment: a pilot study

Elsman

Nispen

Rens

2017

Health Qual Life Outcomes

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BackgroundHaving a visual impairment affects quality of life, daily functioning and participation. To assess rehabilitation needs of visually impaired children and young adults, the Participation and Activity Inventory for Children and Youth (PAI-CY) and Young Adults (PAI-YA) were developed. The PAI-CY comprises four questionnaires for different age categories: 0–2 years, 3–6 years, 7–12 years and 13–17 years. This pilot study assesses the feasibility and acceptability of the PAI-CY and PAI-YA, and the relevance of the content of the questionnaires.MethodsIn addition to the regular admission procedure, the PAI-CY and PAI-YA were completed by 30 participants (six per questionnaire). For the PAI-CY, parents completed the questionnaire online prior to admission. From age 7 years onwards, children completed the questionnaire face-to-face with a rehabilitation professional during the admission procedure. Young adults completed the PAI-YA online. Subsequently, participants and professionals administered an evaluation form.ResultsOverall, 85% of the parents rated all aspects of the PAI-CY neutral to positive, whereas 100% of all children and young adults were neutral to positive on all aspects, except for the duration to complete. The main criticism of professionals was that they were unable to identify actual rehabilitation needs using the questionnaires. Minor adjustments were recommended for the content of questions.ConclusionsParents, children and young adults were mostly satisfied with the questionnaires, however, professionals suggested some changes. The adaptations made should improve satisfaction with content, clarification of questions, and satisfaction with the questionnaires in compiling a rehabilitation plan. Although face and content validity has been optimized, a larger field study is taking place to further develop and evaluate the questionnaires.

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Evaluating rehabilitation goals of visually impaired children in multidisciplinary care according to ICF‐CY guidelines

Cited by 21 publications

References 22 publications

Comprehending the impact of low vision on the lives of children and adolescents: a qualitative approach

Comprehending the impact of low vision on the lives of children and adolescents: a qualitative approach

Self-reported visual impairment, physical activity and all-cause mortality: The HUNT Study

Feasibility of the Participation and Activity Inventory for Children and Youth (PAI-CY) and Young Adults (PAI-YA) with a visual impairment: a pilot study

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