Objectives-Anecdotal reports suggest that elopement behavior in children with autism spectrum disorders (ASDs) increases risk of injury or death and places a major burden on families. This study assessed parent-reported elopement occurrence and associated factors among children with ASDs.Methods-Information on elopement frequency, associated characteristics, and consequences was collected via an online questionnaire. The study sample included 1218 children with ASD and 1076 of their siblings without ASD. The association among family sociodemographic and child clinical characteristics and time to first elopement was estimated by using a Cox proportional hazards model.Results-Forty-nine percent (n = 598) of survey respondents reported their child with an ASD had attempted to elope at least once after age 4 years; 26% (n = 316) were missing long enough to cause concern. Of those who went missing, 24% were in danger of drowning and 65% were in danger of traffic injury. Elopement risk was associated with autism severity, increasing, on average, 9% for every 10-point increase in Social Responsiveness Scale T score (relative risk 1.09, 95% confidence interval: 1.02, 1.16). Unaffected siblings had significantly lower rates of elopement across all ages compared with children with ASD.
Permissions & Licensing:Information about reproducing this article in parts (figures, tables) or in its entirety can be found online at: http://pediatrics.aappublications.org/site/misc/Permissions.xhtml Address correspondence to Paul A. Law, MD, MPH, Department of Medical Informatics, Kennedy Krieger Institute, 3825 Greenspring Ave, Painter Building, 1st floor, Baltimore, MD 21211. lawp@kennedykrieger.org. Drs P. Law and Anderson designed and implemented the survey instrument and were responsible for data collection; Drs Daniels, Anderson, and P. Law conducted statistical analyses; Drs Daniels and Anderson drafted the first manuscript; Drs Rice, Mandell, Hagopian, and K. Law made substantial contributions to interpretation of the data and critical review of the manuscript for key intellectual content; and all authors approved the final version to be published.Financial Disclosure: Dr Daniels was employed by Kennedy Krieger Institute through the submission of the manuscript. On February 26, she started a position with Autism Speaks. Autism Speaks is a financial supporter of the IAN Project, the study through which the elopement survey was implemented. The other authors have indicated they have no financial relationships relevant to this article to disclose. Elopement may be a significant contributor to mortality in individuals with ASD, which has been reported to be nearly twice that of the general population, 3 especially mortality owing to accidents, such as suffocation and drowning. 4 Despite reports of injuries, fatalities, and increased family burden, little research on elopement behavior in individuals with ASD has been conducted. 5
HHS Public AccessStudies examining elopement among individuals with ASD have been very small, of...