Evaluation of a carers' information programme culturally adapted for South Asian families

Parveen, Sahdia; Blakey, Heather; Oyebode, Jan R.

doi:10.1002/gps.4768

Cited by 13 publications

(43 citation statements)

References 11 publications

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“…Six papers discussed how Afro‐Caribbean, Greek, South Asian, and Turkish participants may struggle to complete assessments that have a heavy reliance on English and are dependent on literacy, such as cognitive assessments (Bhatnagar & Frank, ; Hailstone et al, ; La Fontaine et al, ; Livingston et al, ; Parveen et al, ; Ramsey et al, ). Older people from ethnic minority backgrounds, who are already limited by language and rely on others to translate, are also only likely to mix with those from the same ethnic and language background.…”

Section: Resultsmentioning

confidence: 99%

“…One paper reflected how only their English‐speaking South Asian participants could complete the Dementia Knowledge Questionnaire (Hailstone et al, ), and another ruled out self‐administered questionnaires entirely because of linguistic issues (Parveen et al, ). A third paper stated that it was difficult to assess the cognitions of their participants as they all spoke Gujarati and only two could write English (Shah, ).…”

Section: Resultsmentioning

confidence: 99%

“…Six papers reflected how, not just language, but culture also causes issues in assessments with Afro-Caribbean and South Asian T A B L E 2 (Continued) Odutoye & Shah, 1999Parveen et al, 2018Purandare et al, 2007Ramsey et al, 2009Redelinghuys & Shah, 1997Regan, 2016Richards et al, 2000Shah, 1999Shah et al, 1998Stewart, Russ, et al, 2001Turner et al, 2005Uppal et al, 2014Wilkinson et al, 2003Themes Mukadam et al, 2011Odutoye & Shah, 1999Parveen et al, 2018Purandare et al, 2007Ramsey et al, 2009Redelinghuys & Shah, 1997Regan, 2016Richards et al, 2000Shah, 1999Shah et al, 1998Stewart, Russ, et al, 2001…”

Section: Cultural Issues In Assessmentsmentioning

confidence: 99%

“…Three papers also discussed the issue of participant availability amongst Afro-Caribbeans and South Asians, even after recruitment (Adelman et al, 2011;Bhatnagar & Frank, 1997;Parveen et al, 2018).…”

Section: Practical Issuesmentioning

confidence: 99%

See 3 more Smart Citations

Recruitment and methodological issues in conducting dementia research in British ethnic minorities: A qualitative systematic review

Waheed

Mirza

Waheed

et al. 2019

Int J Methods Psych Res

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Objective Identifying existing recruitment and methodological issues within dementia research conducted in UK studies that included ethnic minorities. Methods We searched for and included any publication detailing dementia research in the UK that included any ethnic minority. The search results and all titles and abstracts were screened according to the inclusion criteria followed by screening of the full texts. We extracted data regarding the recruitment and methodological issues faced by the researchers. This data was combined and listed, and related issues were grouped into overarching themes and subthemes. Results Of 52 publications suitable for analysis, 33 provided data collated into six themes: attitudes and beliefs about dementia in ethnic minority communities, recruitment process, data collection issues, practical issues, researcher characteristics, and lack of published research and normative data. These themes allowed us to identify three areas responsible for addressing these recruitment and methodological issues: community and patient education, health services, and researchers' training. Conclusions This is the first review identifying recruitment and methodological issues within UK dementia research that included ethnic minorities. We now have a compilation of reported existing issues and a framework of areas responsible for addressing them and devising solutions.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Cultural Issues In Assessmentsmentioning

confidence: 99%

Section: Practical Issuesmentioning

confidence: 99%

See 2 more Smart Citations

Recruitment and methodological issues in conducting dementia research in British ethnic minorities: A qualitative systematic review

Waheed

Mirza

Waheed

et al. 2019

Int J Methods Psych Res

View full text Add to dashboard Cite

show abstract

“…A group in San Francisco, California that increased outreach eff orts in the Chinatown neighborhood was successfully able to recruit Chinese American individuals for ADRD research (Chao et al, 2011). In another instance, an informational program for caregivers that was adapted for South Asian families in the United Kingdom was well attended and resulted in improved knowledge and understanding of dementia and available services, and changes in care practice (Parveen, Blakey, & Oyebode, 2018).…”

Section: Aring For a Relative Withmentioning

confidence: 99%

Addressing Alzheimer's Disease in Asian American and Pacific Islander Older Adults: An Action Guide for Service Providers

Eller

Belza

2018

J Gerontol Nurs

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Feasibility of a culturally tailored dementia information program for minority ethnic communities in Denmark

Nielsen

Waldemar

2021

Int J Geriat Psychiatry

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Objectives: Proactive efforts that take language and cultural barriers into consideration may be needed to raise awareness of dementia and improve access to services in minority ethnic communities. The aim of this study was to assess the feasibility of a culturally tailored dementia information program and the immediate effects on participants' intention to seek help for memory problems, their knowledge and beliefs about dementia, and their knowledge about options for support.Methods: A novel dementia information program, consisting of one 2-h session, was developed through a collaborative research process with primary care dementia coordinators and multicultural link workers as co-researchers. It provides basic knowledge about dementia to minority ethnic communities and can be delivered in a community setting by non-specialists.Results: Six information program sessions were conducted with a total of 110 participants; 65 Turkish, 19 Pakistani, 20 Arabic-speaking, and 6 with another minority ethnic heritage. The program had a significant effect on participants' immediate knowledge and beliefs about dementia as measured with a quiz (z = −2.02, p = 0.04, d = 0.90). In a post-program focus group meeting, facilitating multicultural link workers reported satisfaction with facilitator training, adopted recruitment strategies, and content and delivery of the information sessions and provided feedback on improving the program. Conclusions:The results provide support for the feasibility of the culturally tailored dementia information program. The program has the potential to improve knowledge and beliefs about dementia and options for formal support in minority ethnic communities and seems easily implemented in existing services, and at a low cost.

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Evaluation of a carers' information programme culturally adapted for South Asian families

Abstract: This culturally adapted programme was found to have a significant impact on carers, the person with dementia, and the wider family.

Cited by 13 publications

References 11 publications

Recruitment and methodological issues in conducting dementia research in British ethnic minorities: A qualitative systematic review

Recruitment and methodological issues in conducting dementia research in British ethnic minorities: A qualitative systematic review

Addressing Alzheimer's Disease in Asian American and Pacific Islander Older Adults: An Action Guide for Service Providers

Feasibility of a culturally tailored dementia information program for minority ethnic communities in Denmark

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