Evaluation of a Community-Based Self-Management Program to Increase Access to Rehabilitation for People Living with HIV

Solomon, Patricia; Salbach, Nancy M.; O’Brien, Kelly K; Nixon, Stephanie; Baxter, Larry; Gervais, Nicole

doi:10.1177/2325958219883334

Cited by 9 publications

(8 citation statements)

References 27 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…At Realize, connections are facilitated between HIV organizations and universities through role-emerging placements for physiotherapy and occupational therapy students [65]. Members of this team have developed educational modules for people living with HIV and rehabilitation professionals to enhance knowledge, skills and attitudes working in HIV care [66,67]. Future research may examine the impact of new models of rehabilitation service delivery including interdisciplinary educational interventions on their ability to enhance knowledge and access to rehabilitation interventions for people living with HIV.…”

Section: Research Priority 5: Examining Facilitators and Barriers To mentioning

confidence: 99%

Research priorities for rehabilitation and aging with HIV: a framework from the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC)

et al. 2020

Self Cite

View full text Add to dashboard Cite

Background: People living with HIV are living longer, and can experience physical, mental and social health challenges associated with aging and multimorbidity. Rehabilitation is well positioned to address disability and maximize healthy aging. An international collaborative network, called the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC), works to guide this emerging field. In this article, we report findings from CIHRRC's aim to identify emerging research priorities in HIV, aging and rehabilitation from the perspectives of people living with HIV, clinicians, researchers, representatives from community organizations and policy stakeholders. Methods: We conducted a multi-stakeholder multi-method international consultation with people living with HIV, researchers, clinicians and representatives of community-based organizations to identify research priorities in HIV, aging and rehabilitation. Stakeholders identified research priorities during a one-day International Forum comprised of presentations and facilitated discussion. We collated and analyzed data using content analytical techniques, resulting in a framework of research priorities. Results: Sixty-nine stakeholders from countries including Canada (n = 62; 90%), the United Kingdom (n = 5; 7%), United States (n = 1; 1%) and Australia (n = 1; 1%) attended the International Forum on HIV, Aging and Rehabilitation Research. Stakeholders represented community-based organizations (n = 20; 29%), academic institutions (n = 18; 26%), community or institutional healthcare organizations (n = 11; 16%), research or knowledge production organizations (n = 10; 14%), and organizations representing government or industry (n = 10; 14%). The Framework of Research Priorities in HIV, Aging and Rehabilitation includes seven research priorities: (1) nature, extent and impact of disability, concurrent health conditions and chronic inflammation with HIV; (2) prevalence, severity and impact of frailty; (3) community and social participation aging with HIV; (4) strategies for chronic disease management and healthy aging with HIV; (5) facilitators and barriers to access and engagement in, rehabilitation; (6) effectiveness of rehabilitation

show abstract

Section: Research Priority 5: Examining Facilitators and Barriers To mentioning

confidence: 99%

Research priorities for rehabilitation and aging with HIV: a framework from the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC)

et al. 2020

Self Cite

View full text Add to dashboard Cite

show abstract

“… 18 Self-management is an important component of the long-term disease management in PLWH, and has potential to improve health outcomes of PLWH. 28 A better understanding of PLWH’s level of self-management will help researchers to develop targeted interventions. This is the first time that LCPA has been applied to the understanding of different behavior classes in self-management among PLWH.…”

Section: Discussionmentioning

confidence: 99%

Identification of Self-Management Behavior Clusters Among People Living with HIV in China: A Latent Class Profile Analysis

Zhang¹,

Yin²,

Wang³

et al. 2021

PPA

View full text Add to dashboard Cite

Background Self-management directly affects the health outcomes and quality of life among people living with HIV (PLWH). A better understanding of self-management level will provide evidence for researchers to develop effective interventions. Purpose This study aims to identify the latent classes among PLWH in their levels of self-management behavior, and to explore the sociodemographic and disease-related predictors within these classes. Materials and Methods A total of 868 PLWH were recruited from August 2017 to January 2019 in Sichuan Province, China. A latent class profile analysis was used to identify participants’ self-management behavior, and multinomial logistic regression was used to explore the sociodemographic and disease-related predictors of the different latent classes. Results Model fit indices supported a three-class model. The mean self-management scores in the three classes were 23.56 (SD=6.02), 37.91 (SD=3.80), and 47.95 (SD=4.18), respectively. The latent classes were Class 1 (a poor level of self-management behavior, 12.1%, n=104), Class 2 (a moderate level of self-management behavior, 56.1%, n=491) and Class 3 (a good level of self-management behavior, 31.7%, n=273). Antiretroviral trerapy (ART) status, infection route, and educational level were the main predictors of self-management behavior. Conclusion The findings indicated that the level of self-management behaviors among PLWH in China is inadequate. Those with a lower educational level, who were infected through blood/injecting drugs, and who were not receiving ART, showed a significantly lower level of self-management behavior. These results could help healthcare professionals to quickly recognize PLWH who are at a high risk of low-level self-management, using individual characteristics and could provide a scientific basis for the development of effective and targeted programs to improve self-management level in PLWH.

show abstract

“…18,19 This study was part of a larger three-phased intervention study which examined the impact of a six-month CBE intervention on health and fitness outcomes among 108 adults living with HIV. 11 Adults living with HIV who considered themselves safe and medically able to engage in exercise were recruited from HIV community organizations in Toronto, Canada. Details of the protocol for the larger study are published elsewhere.…”

Section: Methodsmentioning

confidence: 99%

“…Details of the protocol for the larger study are published elsewhere. 11 The setting was a community-based fitness center (YMCA). Phase 1 was a baseline monitoring phase (8 months).…”

Section: Methodsmentioning

confidence: 99%

“…6 Community-based exercise (CBE) is a promising approach to improve the health of people living with HIV. CBE involves individuals exercising with the assistance of a fitness coach with the goal of promoting regular exercise in the community [7][8][9] CBE can provide support and encouragement to exercise, and promote emotional, cognitive and behavioural selfmanagement strategies to help independently manage chronic health challenges 10,11 In people living with HIV, supervision of exercise is also predictive of lower drop out rates highlighting the importance of professional support in maintaining exercise regimes in this population. 12 People living with HIV may experience health challenges which require fitness personnel to adapt or tailor their CBE programs.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

A Qualitative Study of Fitness Coaches’ Experiences in Community Based Exercise with People Living with HIV

Solomon

Carusone

Davis

et al. 2021

J Int Assoc Provid AIDS Care

Self Cite

View full text Add to dashboard Cite

Fitness coaches need to understand the needs of people living with HIV engaged in community-based exercise (CBE) to be competent in developing exercises programs with this population. Our aim was to understand coaches’ experiences engaging in a CBE intervention with PLWH in an urban center in Canada. As part of a broader study, coaches supervised weekly hour-long individualized exercise sessions with PLWH over a six-month period. Using qualitative longitudinal methods, we interviewed coaches up to three times over six months. Transcribed interviews were analyzed cross-sectionally and longitudinally. Seven coaches participated in 15 interviews. Developing confidence, improving health and experiencing a sense of community were viewed as key benefits to PLWH by the coaches. Challenges included accommodating the episodic nature of HIV and ensuring they felt prepared to work with PLWH. Understanding the experiences of coaches engaged in CBE can assist in tailoring exercise programs to meet the needs of PLWH.

show abstract

Evaluation of a Community-Based Self-Management Program to Increase Access to Rehabilitation for People Living with HIV

Cited by 9 publications

References 27 publications

Research priorities for rehabilitation and aging with HIV: a framework from the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC)

Research priorities for rehabilitation and aging with HIV: a framework from the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC)

Identification of Self-Management Behavior Clusters Among People Living with HIV in China: A Latent Class Profile Analysis

A Qualitative Study of Fitness Coaches’ Experiences in Community Based Exercise with People Living with HIV

Contact Info

Product

Resources

About