Evaluation Of A Cystic Fibrosis Transition Program From Pediatric To Adult Care

Chaudhry, Sarah R.; Keaton, Meghan; Bonham, Catherine A.; Nasr, Samya Z.

doi:10.1164/ajrccm-conference.2011.183.1_meetingabstracts.a1114

Cited by 14 publications

(22 citation statements)

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“…15,20,25,[30][31][32][33]38,43 Barriers to care were measured in only 1 study. 25 Of the 7 studies measuring patient satisfaction, 3 studies 20,30,43 asked specifically about transition services, whereas 3 studies 31,33,38 asked about satisfaction with care in general.…”

Section: Experience Of Carementioning

confidence: 99%

Measuring the “Triple Aim” in Transition Care: A Systematic Review

et al. 2014

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BACKGROUND AND OBJECTIVES: Without adequate support, adolescents transitioning from the pediatric to the adult health care system are at increased risk for poor health outcomes. Numerous interventions attempt to improve this transition, yet few comprehensively evaluate efficacy. To advance evaluation methods and ultimately the quality of transition services, it is necessary to understand the current state of health care transition measurement. This study examines and categorizes transition measures by using the “Triple Aim” framework of experience of care, population health, and cost of care. METHODS: Ovid Medline and the Cumulative Index to Nursing and Allied Health Literature were searched for articles published between 1995 and 2013. Two reviewers independently screened studies and included those that evaluated the impact of a health care transition intervention. Measures were subsequently classified according to population health, experience of care, and costs of care. RESULTS: Of the 2282 studies initially identified, 33 met inclusion criteria. Population health measures were used in 27 studies, with disease-specific measures collected most frequently. Fifteen studies measured cost, most often service utilization. Eight studies measured experience of care, with satisfaction assessed most commonly. Only 3 studies examined all 3 domains of the “Triple Aim.” Transition interventions described in the gray literature were not reviewed. CONCLUSIONS: Transition programs are inconsistently evaluated in terms of their impact on population health, patient experience, and cost. To demonstrate improvement in the transition from pediatric to adult health care, a more robust and consistent set of measures is needed.

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Section: Experience Of Carementioning

confidence: 99%

Measuring the “Triple Aim” in Transition Care: A Systematic Review

et al. 2014

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“…36,41 The remainder studied a variety of conditions including congenital adrenal hyperplasia, 21 HIV, 24 epilepsy, 25 juvenile idiopathic arthritis, 38 spina bifida, 42 cystic fibrosis, 37 or inflammatory bowel disease 43 or included a patient population comprising .1 chronic disease. 20,35,44 Twelve studies were conducted in Europe: 8 in the United Kingdom, 21,22,29,32,35,36,39,50 1 in Germany, 33 1 in Spain, 40 and 2 in 26 One study included data from the United Kingdom and Australia.…”

Section: Patients and Conditions Represented In Evaluation Studiesmentioning

confidence: 99%

“…Three studies included patients with a variety of conditions, 20,35,44 and 2 studies focused on sickle cell disease 36,41 ; the remainder of the studies had 1 clinical focus. 21,24,25,37,38,42,43 The transition care programs evaluated in these studies included use of a transition coordinator, 37,38 multidisciplinary teams to provide care jointly, 24,35,37,41,43 and a separate young adult clinic. 21 One transition intervention provided direct scheduling of visits, 36 one was a mentoring group that met over 10 months, 20 and the other used a generic 2-month intensive Internet-and text-messagebased intervention followed by a 6-month review period.…”

Section: Solid Organ Transplantmentioning

confidence: 99%

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Transition Care for Children With Special Health Care Needs

et al. 2014

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WHAT'S KNOWN ON THIS SUBJECT: More children with special health care needs are surviving to adulthood and entering the adult health care system. Effective transition of care can promote continuity of developmental and age-appropriate care for these individuals. WHAT THIS STUDY ADDS:Existing studies provide modest transition care support. Methods for providing transition care warrant attention, and future research needs are wide ranging. Consistent and accepted measures of transition success are critical to establishing an adequate body of literature to affect practice. abstractBACKGROUND: Approximately 750 000 children in the United States with special health care needs will transition from pediatric to adult care annually. Fewer than half receive adequate transition care. METHODS:We had conversations with key informants representing clinicians who provide transition care, pediatric and adult providers of services for individuals with special health care needs, policy experts, and researchers; searched online sources for information about currently available programs and resources; and conducted a literature search to identify research on the effectiveness of transition programs. RESULTS:We identified 25 studies evaluating transition care programs. Most (n = 8) were conducted in populations with diabetes, with a smaller literature (n = 5) on transplant patients. We identified an additional 12 studies on a range of conditions, with no more than 2 studies on the same condition. Common components of care included use of a transition coordinator, a special clinic for young adults in transition, and provision of educational materials. CONCLUSIONS:The issue of how to provide transition care for children with special health care needs warrants further attention. Research needs are wide ranging, including both substantive and methodologic concerns. Although there is widespread agreement on the need for adequate transition programs, there is no accepted way to measure transition success. It will be essential to establish consistent goals to build an adequate body of literature to affect practice.

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“…16 A few studies also demonstrated positive health, educational and vocational outcomes in youth with chronic illness, and higher levels of satisfaction and independence in patients with cystic fibrosis compared to peers without a transitional program. 17,18 For example, successful transitional programs have been reported for patients with juvenile arthritis, type 1 diabetes and sickle cell disease. [19][20][21] A recent Canadian study of 104,497 adolescents found that, at least in the short term, patterns of health care use and costs during transition did not differ appreciably from those prior to transfer.…”

mentioning

confidence: 99%