English as a Second Language programs serve large foreign-born
populations in the US with elevated risks of tuberculosis (TB), yet little is
known about TB perceptions in these settings. Using a community-based
participatory research approach, we elicited perceptions about TB among
immigrant and refugee learners and staff at a diverse adult education center.
Community partners were trained in focus groups moderation. Ten focus groups
were conducted with 83 learners and staff. Multi-level, team-based qualitative
analysis was conducted to develop themes that informed a model of TB perceptions
among participants. Multiple challenges with TB control and prevention were
identified. There were a variety of mis-perceptions about transmission of TB,
and a lack of knowledge about latent TB. Feelings and perceptions related to TB
included secrecy, shame, fear, and isolation. Barriers to TB testing include low
awareness, lack of knowledge about latent TB, and the practical considerations
of transportation, cost, and work schedule conflicts. Barriers to medication use
include suspicion of generic medications and perceived side effects. We posit
adult education centers with large immigrant and refugee populations as
excellent venues for TB prevention, and propose several recommendations for
conducting these programs. Content should dispel the most compelling
misperceptions about TB transmission while clarifying the difference between
active and latent disease. Learners should be educated about TB in the US and
that it is curable. Finally, TB programs that include learners and staff in
their design and implementation provide greater opportunity for overcoming
previously unrecognized barriers.