Evaluation of a short-term group intervention for informal carers of patients attending a home palliative care service

Harding, Richard; Higginson, Irene J; Leam, Celia; Donaldson, Nora; Pearce, Alison; George, Rob; Robinson, Vicky; Taylor, Liz

doi:10.1016/j.jpainsymman.2003.09.012

Cited by 75 publications

(128 citation statements)

References 31 publications

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“…Malik et al [19] reported that the mean value of caregiver burden was 22, and 19% of caregivers stated that they experienced a high level of burden. Harding, Garlo, Chung and McLaughlin et al [17,[28][29][30] also reported similar findings. In other studies, caregiver burden was found to be related to the caregiver's levels of anxiety and depression, low quality of life, quality of sleep, age and friend or family status [17][18][19].…”

Section: Zarit Burden Interviewsupporting

confidence: 53%

Influence of caregiver on heart failure patients' disease beliefs and compliance

Sevinç¹,

Samancioğlu²

2017

Nurs Palliat Care

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Section: Zarit Burden Interviewsupporting

confidence: 53%

Influence of caregiver on heart failure patients' disease beliefs and compliance

Sevinç¹,

Samancioğlu²

2017

Nurs Palliat Care

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“…For example, in two studies that offered respite services to family caregivers at no or minimal cost, approximately half declined to participate (58,59). Support groups and professional counseling are also often hampered by low participation and high attrition (60). Caregivers face many barriers (e.g.…”

Section: Discussionmentioning

confidence: 99%

Improving Well-Being in Caregivers of Terminally Ill Patients. Making the Case for Patient Suffering as a Focus for Intervention Research

Hebert

Arnold

Schulz

2007

Journal of Pain and Symptom Management

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Family caregivers are integral to the care of patients with physical or mental impairments. Unfortunately, providing this care is often detrimental to the caregivers' health. As a result, in the last decade, there has been a proliferation of interventions designed to improve caregivers' wellbeing. Interventions for caregivers of persons at end-of-life, however, are relatively few in number and are often underdeveloped. They also are typically designed to help reduce the work of caregiving or to help caregivers cope with the physical and emotional demands of providing care. While useful, these interventions generally ignore a primary stressor for family caregivers-a loved one's suffering. Patient suffering, whether physical, psychosocial, or spiritual, has a major impact on family caregivers. However, interventions that focus on the relief of patient suffering as a way to improve caregiver well-being have rarely been tested. It is our view that more research in this area could lead to new and more effective interventions for family caregivers of seriously or terminally ill patients. In support of our view, we will define suffering and review the relationships between patient suffering and caregiver well-being. We will then discuss a conceptual framework for intervention design. Finally, we conclude with a discussion of implications and future directions for intervention research.

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“…In one study, an intervention designed to assist family caregivers in problem-solving improved their quality of life and decreased the patient's symptom burden [55]. Conversely, a six-session group psycho-educational intervention had no e ect of family caregivers' emotional well-being [56]. In general, the evidence around interventions for family caregivers is relatively weak [11].…”

Section: Future Directions To Support Family Caregiversmentioning

confidence: 99%

Burdens of Family Caregiving at the End of Life

Stajduhar¹

2013

CIM

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A patient's ability to be cared for and to die at home is heavily dependent upon the e orts of family caregivers. Considerable stresses are associated with such caregiving, including physical, psychosocial and nancial burdens. Research has shown that unmet needs and dissatisfaction with care can lead to negative outcomes for caregivers. While many family caregivers also report caregiving as life-enriching, some report that they would prefer alternatives to care at home, primarily because of these associated burdens. Little is known about which interventions are most e ective to support family caregivers ministering palliative care at home. Well-designed studies to test promising interventions are needed, followed by studies of the best ways to implement the most e ective interventions. Clinically e ective practice support tools in palliative home care are warranted to identify family caregiver needs and to ensure that patients and their family caregivers have a choice about where care is provided. The aging population, the growing number of Canadians diagnosed with chronic life-limiting illness, and the fact that a large majority of Canadians report that they prefer to spend their nal days at home [1,2,3] are converging to prompt government policy to press for more and better care of dying people in the community [4]. Patients' ability to be cared for and to die at home, however, is heavily dependent upon the e orts of family caregivers [5]. Even where patients receive home care services, the likelihood of dying at home is dramatically reduced if family caregivers are unable to provide care [6]. SPECIAL SERIES -END OF LIFE CAREAbout 80% of all care at home is provided by family caregivers [7]. Recent estimates suggest that Canada's 1.5 to 2 million family caregivers provide $25 to $26 billion worth of care annually and incur $80 million in out-of-pocket expenses annually [8]. Not only are family caregivers the 'invisible' providers within our health care system in Canada, but they have emerged as the principle source of support for patients who are dying at home.ough normally willingly undertaken [9], caregiving at the end of life entails considerable cost for family caregivers and the wider family, incurring emotional, social, physical and nancial costs [10,11]. e toll of care extends even into bereavement; people who are at least somewhat distressed by caregiving are 63% more likely to die in the four years following the patient's death than those who were not distressed or than the bereaved who did not give care [12]. Indeed, the Public Health Agency of Canada identi es the issue of 'seniors caring for seniors' as a public health concern in need of attention.Canada's Family Caregivers: Who Are ey? e vast majority of family caregivers in Canada are female (77%); about 70% are 45 years of age or older and about 25% are at least 65 years of age. us, women aged 45 and older comprise 51% of Canada's family caregiver population [13]. Consistent with these characteristics, Canada's family caregivers are most...

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Evaluation of a short-term group intervention for informal carers of patients attending a home palliative care service

Cited by 75 publications

References 31 publications

Influence of caregiver on heart failure patients' disease beliefs and compliance

Influence of caregiver on heart failure patients' disease beliefs and compliance

Improving Well-Being in Caregivers of Terminally Ill Patients. Making the Case for Patient Suffering as a Focus for Intervention Research

Burdens of Family Caregiving at the End of Life

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