Evaluation of a smart home platform for adults with Down syndrome

Landuran, Audrey; Sauzéon, Hélène; Consel, Charles; N’Kaoua, Bernard

doi:10.1080/10400435.2022.2075487

Cited by 7 publications

(8 citation statements)

References 67 publications

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“…High scores were obtained in more self-determined DS groups and control groups of adults for memory, motor skills and language skills, and it was emphasised that the intelligence quotient (IQ) of the three DS groups did not differ significantly and was not correlated with self-determination [ 66 ]. Similarly, another study reported an improvement in self-determination related to autonomy and home skills in the experimental group compared to the control group of adults with DS [ 73 ]. A proxy reported study found that adults with DS living in institutions needed help with daily tasks, which was a contrast to those living in families; in both groups, approximately 50% were fully independent in personal care [ 84 ].…”

Section: Resultsmentioning

confidence: 97%

“…Eight studies collected self-reported QoL data directly from adults with DS [ 62 – 69 ]. Four studies obtained self-reports with minimal support from the proxies [ 70 – 73 ]. Eleven studies collected proxy reported QoL from caregivers [ 74 – 84 ] and 16 from a combination of self and proxy reports [ 85 – 100 ].…”

Section: Resultsmentioning

confidence: 99%

“…Adults with DS expressed awareness of communication difficulties, stuttering, not being heard, difficulties with communication partner [ 93 ], a significant reduction in comprehension in those aged 50–59 years, a deterioration in social language and expressive language after 60 years [ 77 ] and found no significant changes in communication problems before and after lockdown during the coronavirus disease 2019 (COVID-19) pandemic [ 99 ]. Two studies reported on the design of a life plan via information and communication technology (ICT) for adults with DS based on their responses to make projections and future plan [ 73 , 85 ].…”

Section: Resultsmentioning

confidence: 99%

“…Three studies reported that the use of ICT by adults with DS resulted in a significant increase in their well-being, which was associated with autonomy and an improvement in perceptions of self-determination in everyday life, e.g., daily tasks, contact with family and friends, using useful apps, phone calendar, social media and setting up reminders [ 64 , 73 , 85 ]. Thirteen studies showed that the freedom to have their own rules, to live independently, and move out of home without the influence of their parents were paramount and considered a symbol of adulthood to adults with DS [ 62 – 64 , 68 , 74 , 76 , 88 , 90 , 91 , 93 , 95 , 97 , 98 ].…”

Section: Resultsmentioning

confidence: 99%

“…Other social inclusion indicators reported in adults with DS were discrimination [ 62 ], bullying in the community [ 68 , 93 ], social isolation and social withdrawal [ 80 , 87 ], withdrawal due to poor communication [ 93 ], barriers to participation in health promotion programmes due to lack of energy, boredom, finding them too difficult, and health concerns [ 92 ] and appointment reminders via digital assistants to participate in community events [ 73 ]. Additionally, amid the COVID-19 pandemic, a significant increase in social withdrawal was observed in the post-lockdown period, affecting the functional and psychosocial well-being of adults with DS [ 99 ].…”

Section: Resultsmentioning

confidence: 99%

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Quality of life in adults with Down syndrome: A mixed methods systematic review

et al. 2023

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Background As the life expectancy of adults (aged ≥ 18 years) with Down syndrome increases for a plethora of reasons including recognition of rights, access, and technological and medical advances, there is a need to collate evidence about their quality of life. Objective Using Schalock and Verdugo’s multidimensional quality of life assessment model, this systematic review aimed to identify, synthesise and integrate the quantitative and qualitative evidence on quality of life in adults with Down syndrome via self-and proxy-reporting. Methods Five databases were systematically searched: MEDLINE, CINAHL, PsycINFO, Scopus, and Web of Science to identify relevant articles published between 1980 and 2022 along with grey literature and reference lists from relevant studies. A mixed methods systematic review was performed according to the Joanna Briggs Institute methodology using the convergent integrated approach. The review followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Results Thirty-nine studies were included: 20 quantitative, 17 qualitative, and 2 mixed methods studies. The synthesised findings were grouped into the 8 core domains of quality of life: personal development, self-determination, interpersonal relations, social inclusion, rights, emotional, physical and material well-being. Of the 39 studies, 30 (76.92%) reported on emotional well-being and 10 (25.64%) on rights. Only 7 (17.94%) studies reported that adults with Down syndrome have a good quality of life centred around self-determination and interpersonal relations. Most adults with Down syndrome wanted to become more independent, have relationships, participate in the community, and exercise their human rights. Self-reported quality of life from adults with Down syndrome was rated higher than proxy reported quality of life. Discrepancies in quality of life instruments were discovered. Conclusion This review highlighted the need for a better systematic approach to improving the quality of life in adults with Down syndrome in targeted areas. Future research is required to evaluate self-and proxy-reporting methods and culture-specific quality of life instruments that are more appropriate for adults with Down syndrome. In addition, further studies should consider including digital assistive technologies to obtain self-reported quality of life data in adults with Down syndrome. International prospective register of systematic reviews registration number CRD42019140056.

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Section: Resultsmentioning

confidence: 97%