Evaluation of an internet support group for women with primary breast cancer

Winzelberg, Andrew J.; Classen, Catherine; Alpers, Georg W.; Roberts, Heidi C.; Koopman, Cheryl; Adams, Elvin; Ernst, Heidemarie; Dev, Parvati; Taylor, C. Barr

doi:10.1002/cncr.11174

Cited by 422 publications

(337 citation statements)

References 57 publications

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“…Peer support from long-term survivors of prostate cancer was found to be effective in reducing depressive symptoms in men who had recently undergone a radical prostatectomy when assessed at 4 weeks (P ¼ 0.02), but not at 8 weeks, follow-up (Weber et al, 2004). A web-based social support group was also found to be effective in reducing depressive symptoms in women with primary breast cancer when assessed at the end of the 12 weeks intervention (ES ¼ 0.54) (Winzelberg et al, 2003).…”

Section: Psychotherapeutic Studiesmentioning

confidence: 97%

“…Studies were conducted in Europe (n ¼ 5) (Burton et al, 1995;Marchioro et al, 1996;McArdle et al, 1996;Moynihan et al, 1998;Kuijer et al, 2004), the United States of America (n ¼ 8) (Evans and Connis, 1995;Sandgren et al, 2000;Antoni et al, 2001;Classen et al, 2001;Rawl et al, 2002;Winzelberg et al, 2003;Given et al, 2004;Weber et al, 2004) Canada (n ¼ 1) (Goodwin et al, 2001), Australia (n ¼ 3) (Edelman et al, 1999;McLachlan et al, 2001;Petersen and Quinlivan, 2002) and Japan (n ¼ 1) (Fukui et al, 2000). The mean sample size in the intervention and control group was 61 patients (range 15 -296) and 52 patients (range 15 -154), respectively.…”

Section: Psychotherapeutic Studiesmentioning

confidence: 99%

“…The proportion of female participants ranged from between 41 to 100%. Eight studies were multicentre trials (McArdle et al, 1996;Classen et al, 2001;Goodwin et al, 2001;McLachlan et al, 2001;Petersen and Quinlivan, 2002;Rawl et al, 2002;Given et al, 2004;Weber et al, 2004) and 10 were single-centre trials (Burton et al, 1995;Evans and Connis, 1995;Marchioro et al, 1996;Moynihan et al, 1998;Edelman et al, 1999;Fukui et al, 2000;Sandgren et al, 2000;Antoni et al, 2001;Winzelberg et al, 2003;Kuijer et al, 2004).…”

Section: Psychotherapeutic Studiesmentioning

confidence: 99%

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The effectiveness of treatment for depression/depressive symptoms in adults with cancer: a systematic review

2006

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Depression is common in cancer patients, and this often remains undetected and untreated. Depression has been associated with poorer quality of life, in addition to increased impairment of immune response and poorer survival in cancer patients. Previous systematic reviews and meta-analyses of the efficacy of interventions for cancer patients with depression have failed to distinguish between caseness for depression and depressive symptoms. The findings from this systematic review show that there is limited trial data on the efficacy of prescribed antidepressants in reducing the incidence of major depression and depressive symptoms in cancer patients. Contrary to previous reviews that failed to distinguish between depressive symptoms and depression, this review found very little data from clinical trials (without the possibility of confounding factors) to demonstrate that psychotherapeutic interventions are effective in reducing depression in cancer patients. A number of small-scale, single-centre trials indicated that psychotherapeutic interventions (especially cognitive behavioural therapy) can have effects on depressive symptoms in cancer patients. However, given the methodological limitations of studies to date, lack of evidence should not be interpreted as implying lack of efficacy. In conclusion, there is a need for adequately powered studies of pharmacological and psychotherapeutic studies, which are targeted at cancer patients with a diagnosis of depression and include monitoring of the use of other pharmacological/psychotherapeutic and complementary and alternative medicine interventions.

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Section: Psychotherapeutic Studiesmentioning

confidence: 97%

Section: Psychotherapeutic Studiesmentioning

confidence: 99%

Section: Psychotherapeutic Studiesmentioning

confidence: 99%

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The effectiveness of treatment for depression/depressive symptoms in adults with cancer: a systematic review

2006

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“…90 In one study, 72 women were randomly assigned to either a 12-week web-based social support group for women with breast cancer (with a semi-structured, asynchronous newsgroup format moderated by a health care professional) or waitlist control. 91 Effect sizes were moderate and participants perceived a variety of benefits and high satisfaction with the group. A similar study reported on the clinical outcomes Rehabilitation, Disability and Ageing for 32 women with breast cancer who participated in professionally facilitated and "closed" OSGs for 1.5 hours weekly over 16 weeks.…”

Section: Acceptability Of Videoconferencingmentioning

confidence: 99%

Enhancing psychosocial care for people with cancer in rural communities: what can remote counselling offer?

Shepherd¹,

Goldstein²,

Olver³

et al. 2008

Aust. Health Review

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Rural cancer patients are often disadvantaged in access to psychological services. We reviewed remote counselling research for psychological support using telephone, videoconferencing, and the Internet as a potential solution. Telephone counselling is the most extensively researched, while there are encouraging findings in emerging research about videoconferencing and Internetbased psychological care. Where no face-to-face psychological service exists, these technologies are promising, yet unproven. Less variable methods are needed to better assess the technology and therapeutic approach for stronger evidence.

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“…The most impressive study to date, a randomized controlled trial with recipients of a breast cancer mailing list, suggests that a Web-based support group can be useful in reducing depression and cancer-related trauma as well as perceived stress. 72 In summary, the overall "net benefits" of virtual communities, in particular in the health context and even more specifically for persons with cancer, are unclear, and there is a lack of high-quality controlled trials addressing these questions. 59 It is likely that most persons with cancer benefit from virtual communities, whereas a minority may prefer local face-toface support and might not feel comfortable using computers to build social relationships.…”

Section: What Is the Effect Of Virtual Communities On Well-being And mentioning

confidence: 99%

The Impact of the Internet on Cancer Outcomes

Eysenbach

2003

CA: A Cancer Journal for Clinicians

508

447

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Each day, more than 12.5 million health-related computer searches are conducted on the World Wide Web. Based on a meta-analysis of 24 published surveys, the author estimates that in the developed world, about 39% of persons with cancer are using the Internet, and approximately 2.3 million persons living with cancer worldwide are online. In addition, 15%to 20% of persons with cancer use the Internet "indirectly" through family and friends. Based on a comprehensive review of the literature, the available evidence on how persons with cancer are using the Internet and the effect of Internet use on persons with cancer is summarized. The author distinguishes four areas of Internet use: communication (electronic mail), community (virtual support groups), content (health information on the World Wide Web), and e-commerce. A conceptual framework summarizing the factors involved in a possible link between Internet use and cancer outcomes is presented, and future areas for research are highlighted. (CA Cancer J Clin 2003;53:356 -371.)

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Evaluation of an internet support group for women with primary breast cancer

Cited by 422 publications

References 57 publications

The effectiveness of treatment for depression/depressive symptoms in adults with cancer: a systematic review

The effectiveness of treatment for depression/depressive symptoms in adults with cancer: a systematic review

Enhancing psychosocial care for people with cancer in rural communities: what can remote counselling offer?

The Impact of the Internet on Cancer Outcomes

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