Evaluation of care burden and caregiving preparedness in caregivers of patients with epilepsy: A sample in eastern Turkey

Turan, Gülcan Bahçeçioğlu; Dayapoğlu, Nuray; Özer, Zülfünaz

doi:10.1016/j.yebeh.2021.108370

Cited by 6 publications

(3 citation statements)

References 39 publications

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“…Socioeconomic status (e.g. family income) is another important determinant of perceived burden among caregivers in rural/developing countries (Trinka et al, 2019). In this study, participants with low socioeconomic status had a higher burden of care.…”

Section: Discussionmentioning

confidence: 64%

“…This may also be the reason why 66.9 per cent of the participants were women. Higher educational level of the caregiver was associated with better psychological health (Trinka et al, 2019), and it was estimated that this resulted from a better understanding of the person's medical condition and led to better coping strategies (Akandere et al, 2009). In this study, care burden decreased as the level of education increased.…”

Section: Discussionmentioning

confidence: 99%

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Examination of Care Burden and Hopelessness Levels of Parents with Children with Epilepsy

SARPDAĞI,

ÇAPIK

2023

Halk Sağlığı Hemşireliği Dergisi

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Objective: The aim of this study was to examine the relationship between care burden and hopelessness levels of parents with children with epilepsy. Methods: The sample of this descriptive and correlational study consisted of 384 parents with children diagnosed with epilepsy between the ages of 0-18. The data of the study were collected in the Pediatric Neurology and General Pediatric Outpatient Clinics of Health Sciences University Van Training and Research Hospital between October 2017 and January 2018. Socio-demographic Data Form, Zarit Care Burden Scale and Beck Hopelessness Scale were used to collect the data. Results: In the study, it was determined that the mean care burden score of the parents was moderate (40±9.63) and the mean hopelessness score was mild (7.97±4.43). It was determined that the participants' educational status, income status and the presence of another person in need of care in the family significantly affected both care burden and hopelessness levels. A significant positive correlation was found between the duration of diagnosis, the number of hospitalisations, the duration of care and the time spent on care in a day and care burden and hopelessness. In addition, a significant positive relationship was found between caregiving burden and hopelessness. Conclusion: As the care burden of parents increases, the level of hopelessness also increases. Public health nurses working in Family Health Centres and nurses working in clinics should support families with children with epilepsy physically, socially and spiritually. Epilepsy should provide counselling services on seizures that occur due to the nature of the disease and issues that parents may be exposed to (such as guilt, family problems, hopelessness, economic difficulties, stigmatisation).

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Section: Discussionmentioning

confidence: 64%

Section: Discussionmentioning

confidence: 99%

Examination of Care Burden and Hopelessness Levels of Parents with Children with Epilepsy

SARPDAĞI,

ÇAPIK

2023

Halk Sağlığı Hemşireliği Dergisi

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“…Unlike this study, there are also studies that conclude that caregivers are moderately prepared [28] or quite inadequately prepared [29]. This insufficient level of preparation is due to the lack of education necessary for caregivers to acquire care skills [30]. With this study, it can be said that the readiness of students in caring for COVID-19 patients with an IPE was increased.…”

Section: U N C O R R E C T E D a U T H O R P R O O Fmentioning

confidence: 73%

The effect of COVID-19 patient care and emergency response interprofessional training on COVID-19 knowledge, perception, behavior and readiness for care

Kasapoğlu

Yıldız

Saldamlı

et al. 2023

WOR

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BACKGROUND: During the COVID-19 pandemic, the need for Interprofessional Education (IPE) and collaborative practices have gained even more importance. OBJECTIVE: The aim of this study is to evaluate the impact of IPE on COVID-19 on students’ knowledge, perceptions, behaviors and readiness for care regarding COVID-19. METHOD: The study followed a single-group pre-/post-test semi-experimental research design. The sample consisted of 435 students studying Elderly Care/Home Patient Care/First and Emergency Aid programs. The students’ perception of interdisciplinary education was evaluated at the beginning of the study. RESULTS: The students were given an online COVID-19 Patient Care and Emergency Response IPE that lasted five hours and was split into two parts. The perception of interdisciplinary education was significantly higher among female students and first and emergency students before receiving IPE. Before and after IPE, the knowledge level scores of the students who did not receive IPE were found to be higher than those who did. After the training, the students’ knowledge levels, readiness for care and their perceptions of control towards the COVID-19 pandemic increased statistically significantly (p < 0.001). CONCLUSION: The students’ knowledge levels and perceptions of control surrounding the pandemic may grow as a result of the IPE given about COVID-19 during the pandemic, when IPE became more important, and students may feel more prepared to care.

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Difficult lives: A descriptive and relational study on the coping with stress and care burden of caregivers of patients with epilepsy

Büyükbayram

Aksoy

Yılmaz

2023

Epilepsy & Behavior

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Evaluation of care burden and caregiving preparedness in caregivers of patients with epilepsy: A sample in eastern Turkey

Cited by 6 publications

References 39 publications

Examination of Care Burden and Hopelessness Levels of Parents with Children with Epilepsy

Examination of Care Burden and Hopelessness Levels of Parents with Children with Epilepsy

The effect of COVID-19 patient care and emergency response interprofessional training on COVID-19 knowledge, perception, behavior and readiness for care

Difficult lives: A descriptive and relational study on the coping with stress and care burden of caregivers of patients with epilepsy

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