Evaluation of four outpatient educational programmes for patients with longstanding fibromyalgia

Henriksson, Chris; Carlberg, Ulla; Kjällman, M; Lundberg, Gunnar W.; Henriksson, K. G.

doi:10.1080/16501970410027494

Cited by 16 publications

(13 citation statements)

References 27 publications

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“…Symptoms related to fibromyalgia are commonly amplified by high levels of stress over a long period of time (Wyalonis & Heck, 1992). Henriksson, Carlsberg, Kjällman, Lundberg and Henriksson (2004) reported that pain gradually had spread from being “localized” to being “wide-spread” in 80% of a group of patients with fibromyalgia. Presumably, the fibromyalgia syndrome cannot be explained and understood by a single biomedical predictor only.…”

mentioning

confidence: 99%

Minimizing the dysfunctional interplay between activity and recovery: A grounded theory on living with fibromyalgia

Hallberg

Bergman

2011

International Journal of Qualitative Studies on Health and Well

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The aim of this study was to generate a substantive theory, based on interviews with women with fibromyalgia, explaining how they manage their main concerns in daily life. The study has an inductive approach in line with classic grounded theory (Glaser, 1992). Twenty-three women living in the southwest region of Sweden were interviewed in-depth about their daily living with fibromyalgia and problems related to this. Probing and follow-up questions were asked by the interviewers when relevant. The interviews were transcribed verbatim and consecutively analysed in line with guidelines for grounded theory. The results showed that the main concern for women with fibromyalgia was to reach a balance in daily life. This concern was resolved by them using different strategies aimed at minimizing the dysfunctional interplay between activity and recovery (core category). This imbalance includes that the women are forcing themselves to live a fast-paced life and thereby tax or exceed their physical and psychological abilities and limits. Generally, the fibromyalgia symptoms vary and are most often unpredictable to the women. Pain and fatigue are the most prominent symptoms. However, pain-free periods occur, often related to intense engagement in some activity, relaxation or joy, but mainly the “pain gaps” are unpredictable. To reach a balance in daily life and manage the dysfunctional interplay between activity and recovery the women use several strategies. They are avoiding unnecessary stress, utilizing good days, paying the price for allowing oneself too much activity, planning activities in advance, distracting oneself from the pain, engaging in alleviating physical activities, and ignoring pain sensations. Distracting from the pain seems to be an especially helpful strategy as it may lead to “pain gaps”. This strategy, meaning to divert attention from the pain, is possible to learn, or improve, in health promoting courses based on principles of cognitive behavioural therapy (CBT). We suggest that such courses are offered in primary care for patients with fibromyalgia or other types of longstanding pain. The courses should be led by registered nurses or psychologists, who are experienced in CBT and have extensive knowledge about theories on longstanding pain, stress and coping. Such courses would increase well-being and quality of life in women suffering from fibromyalgia.

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mentioning

confidence: 99%

Minimizing the dysfunctional interplay between activity and recovery: A grounded theory on living with fibromyalgia

Hallberg

Bergman

2011

International Journal of Qualitative Studies on Health and Well

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“…However, our results diVer from those obtained by Solomon and collaborators [17] who found no diVerences in a 4-month analysis of a controlled and randomized program for patients diagnosed with osteoarthritis, rheumatoid arthritis or FM receiving a 6-week course and in whom the levels of disability, pain, mental health, selfeYciency and satisfaction did not change during the analysis in any of the groups, with respect to the control group. However, this lack of eYcacy was conWrmed by Henriksson and collaborators [20], who designed four prospective, non-randomized, long-term programs for 191 patients with FM, collecting data before the program, immediately following the program, at 1 year from program completion, using the participants as their own controls.…”

Section: Discussionmentioning

confidence: 97%

“…EVects of exercise on fatigue, sleep quality, anxiety and depression in patients with FM have been studied less frequently than the eVects on pain or other symptoms [20,21]. Fontaine and collaborators [22] evaluated the eVects of exercise on 73 sedentary adults with FM, randomized, in a 12-week program to moderately increase the intensity of physical activity, consisting of 30-min sessions of self-selected lifestyle physical activity, 5-7 days a week.…”

Section: Discussionmentioning

confidence: 99%

Efficacy of a multidisciplinary treatment program in patients with severe fibromyalgia

Casanueva-Fernández¹,

Llorca

Rubió

et al. 2011

Rheumatol Int

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The purpose of this study was to evaluate the efficacy of a multidisciplinary treatment program in patients severely affected by fibromyalgia. Thirty-four fibromyalgia patients were randomly divided into two groups. The control group: 17 women who continued their medical treatment and participated in four educational sessions and the experimental group that included 17 patients who besides the former medical treatment also underwent a weekly 1-h session program for 8 weeks including massage therapy, ischemic pressure on the 18 tender points, aerobic exercise and thermal therapy. At the beginning of the program, there were no significant differences between the two groups in any of the parameters. At the end of treatment, there was a significant improvement in the experimental group in the following items: vitality, social functioning, grip strength and the 6-min walk test. At 1 month after the end of treatment, the experimental group showed significant differences in overall health perception, social functioning, grip strength and the 6-min walk test. At that time, considering the threshold for clinical efficacy set at an improvement of 30% or above for the analyzed variables, 25% of the patients met the requirement for improvement of the following: number of symptoms: Visual Analogic Scale for fatigue, Fibromyalgia Impact Questionnaire and Beck Anxiety Inventory. In conclusion, patients with severe manifestations of fibromyalgia can obtain improvement with a short-term, low-cost and simple-delivery multidisciplinary program. However, additional studies including higher numbers of patients are needed to confirm the beneficial effect of this treatment program.

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“…A multidisciplinary approach combining each of these modalities may be the most beneficial. Other 105 1 1 Educational programs 106 1 1 CBT 107 1 1 Hair analysis 108 1 1 Surface EMG 109 1 1 Thyroid hormone 110 1 1 Water therapy 111 1 1 Chiropractic manipulation and cranial electrical stimulation 112 1 1 Acupuncture and diet 113 1 1 Survey of CAM therapies used by FMS patients referred to Mayo clinic 116 1 1 Psychologic profile of FMS attending private chiropractic clinics 117 1 1…”

Section: Published Guidelines Found On the Ngcmentioning

confidence: 99%

Chiropractic Management of Fibromyalgia Syndrome: A Systematic Review of the Literature

Schneider

Vernon

et al. 2009

Journal of Manipulative and Physiological Therapeutics

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Evaluation of four outpatient educational programmes for patients with longstanding fibromyalgia

Cited by 16 publications

References 27 publications

Minimizing the dysfunctional interplay between activity and recovery: A grounded theory on living with fibromyalgia

Minimizing the dysfunctional interplay between activity and recovery: A grounded theory on living with fibromyalgia

Efficacy of a multidisciplinary treatment program in patients with severe fibromyalgia

Chiropractic Management of Fibromyalgia Syndrome: A Systematic Review of the Literature

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