Evaluation of measurement equivalence of the Family Satisfaction with the End-of-Life Care (FAMCARE): Tests of differential item functioning between Hispanic and non-Hispanic White caregivers

Abstract

Objective Although the psychometric properties of the Family Satisfaction with End-of-Life Care measure have been examined in diverse settings internationally; little evidence exists regarding measurement equivalence in Hispanic caregivers. The aim was to examine the psychometric properties of a short-form of the FAMCARE in Hispanics using latent variable models and place information on differential item functioning (DIF) in an existing family satisfaction item bank. Method The graded form of the item response theory model was used for the analyses of DIF; sensitivity analyses were performed using a latent variable logistic regression approach. Exploratory and confirmatory factor analyses to examine dimensionality were performed within each subgroup studied. The sample included 1,834 respondents: 317 Hispanic and 1,517 non-Hispanic White caregivers of patients with Alzheimer's disease and cancer, respectively. Results There was strong support for essential unidimensionality for both Hispanic and non-Hispanic White subgroups. Modest DIF of low magnitude and impact was observed; flagged items related to information sharing. Only 1 item was flagged with significant DIF by both a primary and sensitivity method after correction for multiple comparisons: “The way the family is included in treatment and care decisions.” This item was more discriminating for the non-Hispanic, White responders than for the Hispanic subsample, and was also a more severe indicator at some levels of the trait; the Hispanic respondents located at higher satisfaction levels were more likely than White non-Hispanic respondents to report satisfaction. Significance of results The magnitude of DIF was below the salience threshold for all items. Evidence supported the measurement equivalence and use for cross-cultural comparisons of the short-form FAMCARE among Hispanic caregivers, including those interviewed in Spanish.

Factorial structure of quality of life, satisfaction with caregiving and caregiver burden in palliative care: A systematic review

“…Analogous results (Explained Variance of Component 1 = 74.2%; CFI = 0.988; TLI = 0.984; RMSEA = 0.101) are obtained by Teresi et al. ( 2020 ) in a sample of 1517 non‐Hispanic white caregivers of cancer patients, using a short‐form FAMCARE.…”

Fighting racism in research

“…Such issues have also become the focus of studies in palliative care, where research on inequality has led to recommendations for policy makers on improving equality in palliative care (Matsuyama et al, 2011;Brown et al, 2016;Artiga et al, 2020). This includes several recent papers published in our journal Palliative and Supportive Care (Shen et al, 2020;Teresi et al, 2020).This editorial was inspired by the reaction to a paper that recently appeared in Palliative and Supportive Care on the utility of an algorithm/nomogram developed to identify cancer pain patients at risk for opioid misuse (Yennurajalingam et al, 2021; also see the Letters to the Editor in this issue). Central to the concerns raised is the use of race/color as a risk factor in this algorithm.…”

“…Such issues have also become the focus of studies in palliative care, where research on inequality has led to recommendations for policy makers on improving equality in palliative care (Matsuyama et al, 2011;Brown et al, 2016;Artiga et al, 2020). This includes several recent papers published in our journal Palliative and Supportive Care (Shen et al, 2020;Teresi et al, 2020).…”