Evaluation of the efficacy of a dedicated table to improve CPAP adherence in children: a pilot study

Mendoza-Ruiz, Alexis; Dylgjeri, Suela; Bour, F.; Damagnez, Frédéric; Leroux, Karl; Khirani, Sonia

doi:10.1016/j.sleep.2018.08.032

Cited by 17 publications

(9 citation statements)

References 17 publications

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“…ABC Questionnaire for identifying patient-specific barriers [183], therapeutic education sessions by a respiratory therapist [186], token economy [196], medical hypnosis [197], and Shared Decision-Making Tools [198]. There is currently no data on new technologies to improve adherence (telemedicine, mobile phone applications).…”

Section: Adherencementioning

confidence: 99%

ERS statement on paediatric long-term noninvasive respiratory support

et al. 2021

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Long term noninvasive respiratory support, comprising continuous positive airway pressure (CPAP) and noninvasive ventilation (NIV), in children is expanding worldwide, with increasing complexities of children being considered for this type of ventilator support and expanding indications such as palliative care. There have been improvements in equipment and interfaces. Despite growing experience, there are still gaps in a significant number of areas: there is a lack of validated criteria for CPAP/NIV initiation, optimal follow-up and monitoring; weaning and long term benefits have not been evaluated. Therapeutic education of the caregivers and the patient is of paramount importance, as well as continuous support and assistance, in order to achieve optimal adherence. The preservation or improvement of the quality of life of the patient and caregivers should be a concern for all children treated with long term CPAP/NIV. As NIV is a highly specialised treatment, patients are usually managed by an experienced pediatric multidisciplinary team. This Statement written by experts in the field of pediatric long term CPAP/NIV aims to emphasize on the most recent scientific input and should open up to new perspectives and research areas.

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Section: Adherencementioning

confidence: 99%

ERS statement on paediatric long-term noninvasive respiratory support

et al. 2021

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“…Excellent adherence is however possible, especially if PAP therapy is started in a specialized pediatric non-invasive ventilation (NIV) inpatient unit staffed by with experienced personnel and includes the use of desensitization and behavioral interventions, very frequent home visits, and repeated periodic follow-up sleep studies [92,93]. A recent retrospective analysis of more recent cohorts being treated with CPAP reveals overall good adherence, indicating that many of the educational and implementation measures are being adopted in pediatric sleep centers [94][95][96][97][98]. In addition, it appears that actually in children with intellectual disabilities, adherence which would normally be expected to be problematic can reach excellent levels [99].…”

Section: Positive Airway Pressure Therapymentioning

confidence: 99%

Treatment of Obstructive Sleep Apnea in Children: Handling the Unknown with Precision

Gozal

Tan

Kheirandish‐Gozal

2020

JCM

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Treatment approaches to pediatric obstructive sleep apnea (OSA) have remarkably evolved over the last two decades. From an a priori assumption that surgical removal of enlarged upper airway lymphadenoid tissues (T&A) was curative in the vast majority of patients as the recommended first-line treatment for pediatric OSA, residual respiratory abnormalities are frequent. Children likely to manifest persistent OSA after T&A include those with severe OSA, obese or older children, those with concurrent asthma or allergic rhinitis, children with predisposing oropharyngeal or maxillomandibular factors, and patients with underlying medical conditions. Furthermore, selection anti-inflammatory therapy or orthodontic interventions may be preferable in milder cases. The treatment options for residual OSA after T&A encompass a large spectrum of approaches, which may be complementary, and clearly require multidisciplinary cooperation. Among these, continuous positive airway pressure (CPAP), combined anti-inflammatory agents, rapid maxillary expansion, and myofunctional therapy are all part of the armamentarium, albeit with currently low-grade evidence supporting their efficacy. In this context, there is urgent need for prospective evidence that will readily identify the correct candidate for a specific intervention, and thus enable some degree of scientifically based precision in the current one approach fits all model of pediatric OSA medical care.

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“…By educating and involving both children/adolescents and parents as responsible parties, a family-centred approach to care can encourage clear conversation, boundaries and mutually agreed-upon goals in order to divide responsibilities and reduce overburdening of one party while still respecting the autonomy of the adolescent. For example, a parent may agree to help with weekly cleaning of the PAP machine or provide rewards for good adherence, while the teenager agrees to be responsible for putting the PAP on a night and participating in daily care/maintenance (King et al, 2014a; Mendoza-Ruiz et al, 2019).…”

Section: Discussionmentioning

confidence: 99%

A social media intervention for the families of young Black men with obstructive sleep apnoea

Watach

Bishop-Gilyard

et al. 2022

Health Education Journal

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Objective: To address positive airway pressure (PAP) adherence in adolescents diagnosed with obstructive sleep apnoea (OSA) by pilot testing a novel, online, facilitated, peer-support and health education programme for families. Design, setting, and methods: Families participated in separate Facebook peer-groups (adolescent [ n = 6] and parent [ n = 6]) for 4 weeks, followed by face-to-face interviews. Participants received OSA and PAP educational videos and posts, engaged with questions and polls, and viewed de-identified postings of peer PAP use data. Results: Adolescent participants were young Black men aged 13–17 years ( n = 6) with obesity ( n = 5), severe sleep apnoea (100%) and 4–15 months of prior PAP use. Parent participants were mothers ( n = 4) and fathers ( n = 2). Four of six young men increased their mean PAP use during the intervention period. Overall, parents were more engaged with the Facebook group page than adolescents, but interviews revealed the online group/peer-support and education provided was highly regarded and appreciated by families. Parents were particularly appreciative of being involved in care and diagnosis in this way. Conclusion: Results of this pilot trial provide important data regarding intervention design, content and delivery approaches to be considered in the development of future interventions aiming to engage families and improve adolescent PAP adherence.

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Evaluation of the efficacy of a dedicated table to improve CPAP adherence in children: a pilot study

Cited by 17 publications

References 17 publications

ERS statement on paediatric long-term noninvasive respiratory support

ERS statement on paediatric long-term noninvasive respiratory support

Treatment of Obstructive Sleep Apnea in Children: Handling the Unknown with Precision

A social media intervention for the families of young Black men with obstructive sleep apnoea

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