Evaluation of the rating form for inflammatory bowel diseases patients concerns (RFIPC) spanish translation in Puerto Ricans with IBD

Torres, Esther; Pérez, Cynthia; Chinea, Betty; Arroyo, Julia; Aponte, Nestor; Guzman, Aileen; Magno, Priscilla; Provenzale, Dawn

doi:10.1016/s0002-9270(00)01949-3

Cited by 4 publications

(5 citation statements)

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“…In agreement with studies that evaluated the RFIPC in other populations, the validity of the Greek version was found to be high [ 12 , 18 , 19 , 30 ].…”

Section: Discussionsupporting

confidence: 87%

“…To date, RFIPC has been translated into 7 languages. RFIPC has been used in studies to characterize HRQoL, to understand the type and the degree of worries and concerns in IBD patients, and to make comparisons between different populations and determine their actual needs [ 12 , 18 , 19 , 38 – 41 ].…”

Section: Discussionmentioning

confidence: 99%

“…Throughout literature, the time interval between the administrations has not been accurately predefined but it should have been long enough to prevent recall bias. For RFIPC, the time frame was ranging from 15 days to 6 months [ 18 , 19 ]. Consequently, in our study, we set this frame approximately at the half of the above period, at twelve weeks (2nd visit).…”

Section: Methodsmentioning

confidence: 99%

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The Rating Form of IBD Patient Concerns: Translation, Validation, and First Implementation of the Greek Version

Argyriou

Roma

Kapsoritakis

et al. 2017

Gastroenterology Research and Practice

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Background. The rating form of IBD patients' concerns (RFIPC) provides a unique assessment of the worries and concerns of inflammatory bowel disease (IBD) patients. Our aims were primarily to validate the Greek version of RFIPC and secondarily to describe the pattern of Greek patients'concerns. Methods. After translating RFIPC, the questionnaire was given to IBD patients at baseline and after 12 weeks. The questionnaire's measuring properties were evaluated based on the consensus-based standards for the selection of health status measurement instruments (COSMIN) recommendations. Premediated factorial structures were tested for goodness of fit with confirmatory factor analysis (CFA). Results. At baseline, 200 patients (94 with Crohn's disease) completed RFIPC. After 12 weeks, the first 100 patients recompleted the questionnaire. CFA results were consistent with a slightly modified than the original factorial structure. Cronbach's α and intraclass correlation coefficients were high. RFIPC scores negatively affected the quality of life. RFIPC was sensitive to detect important changes in patients' condition and was able to discriminate between remission and active disease. Disease activity, full time employment, celibacy, and low education were associated with higher scores. Conclusion. The Greek version of RFIPC is a reliable, valid, and responsive tool to assess Greek IBD patients' concerns.

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“…In agreement with studies that evaluated the RFIPC in other populations, the validity of the Greek version was found to be high [ 12 , 18 , 19 , 30 ].…”

Section: Discussionsupporting

confidence: 87%

Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

See 1 more Smart Citation

The Rating Form of IBD Patient Concerns: Translation, Validation, and First Implementation of the Greek Version

Argyriou

Roma

Kapsoritakis

et al. 2017

Gastroenterology Research and Practice

View full text Add to dashboard Cite

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“…However, a 6-factor structure was also suggested in the Norwegian version 7 , which included the following factors: "impact of the disease", "expectancy", "treatment", "sexual intimacy", "complications of the disease", and "body stigma". The RFIPC has been translated and validated in several languages [5][6][7][8][9] . Across all versions, this instrument was shown to be a reliable and valid measure of worries and concerns of patients with IBD, which can be used in both research and clinical settings.…”

Section: Introductionmentioning

confidence: 99%

Worries and concerns of inflammatory bowel disease (IBD) patients in Belgium – a validation of the Dutch rating form

Walentynowicz

Pavert

Coenen

et al. 2020

Scandinavian Journal of Gastroenterology

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Objectives: Worry is the most common psychological complaint among patients with Inflammatory Bowel Disease (IBD). This study aimed to translate and test the psychometric properties the Rating Form of IBD Patient Concerns (RFIPC) among Dutch-speaking patients with IBD in Belgium. It also aimed to describe worries and concerns, and to examine possible differences in worry patterns between patients with different disease types and disease activities. Methods:The RFIPC was translated into Dutch following the guidelines of the Rome Foundation and was completed by patients with Crohn's disease (CD, n = 336) and ulcerative colitis (UC, n = 160). To test concurrent validity, the Depression Anxiety Stress Scales (DASS-21) were used. Factor structure was examined with confirmatory factor analysis. Results:The 4-factor structure including subscales "impact of the disease", "sexual intimacy", "complications of the disease", and "body stigma" was confirmed in the Dutch sample. All factors had high internal consistency (> .70). Correlations with DASS-21 suggest good concurrent validity, all rs > .30, ps < .001. No differences in the RFIPC scores were observed between patients with CD and UC. Patients with active disease (53%) had higher scores than patients in remission (47%). Across all groups, the order of top concerns was consistent and included worries about energy level, side effects of medication, having an ostomy bag/surgery, and uncertain nature of the disease. Conclusions:The Dutch version of the RFIPC is a valid and reliable measure of IBD-specific worries and concerns which can be used in both research and clinical settings.

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“…An interesting point of departure for such an approach may be the repeated observation that many IBD patients-and also those who were diagnosed more than 10 years ago 28,29 -struggle with disease-specific concerns, including the unpredictable nature of the disease, the impact of symptoms on daily life functioning, body stigma and sexual intimacy. 7,[29][30][31][32][33] The presence of IBD-specific concerns is associated with a worse quality of life and poorer functioning in various domains of life. 30,34,35 A relevant, yet open, question is which potentially modifiable behaviours may arise from these IBD-specific concerns and whether these behaviours play a role in eliciting and maintaining fatigue in IBD.…”

Section: Introductionmentioning

confidence: 99%

Inflammatory Bowel Disease-related Behaviours [IBD-Bx] Questionnaire: Development, Validation and Prospective Associations with Fatigue

Walentynowicz

Pavert

Fierens

et al. 2021

Journal of Crohn's and Colitis

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Background and Aims Disease-related behaviours that may maintain or worsen symptom burden remain largely unexplored in inflammatory bowel disease (IBD). In this study, we developed and validated an instrument assessing IBD-related, modifiable behaviours and explored which behaviours prospectively correlate with fatigue, a debilitating and common symptom in IBD. Methods Initially, 72 items reflecting IBD-related behaviours were generated based on literature review and input from clinicians and people diagnosed with IBD. During wave 1, 495 IBD patients rated to what extent each behaviour was applicable to them. Additionally, disease activity, fatigue, IBD-related concerns, and psychological variables were assessed. During a follow-up visit 4-12 weeks later (wave 2), a random selection of 92 patients from wave 1 completed the measures assessing the IBD-related behaviours, disease activity, and fatigue once more. Results A principal component analysis with oblique rotation revealed seven components in the 72 IBD behaviours, which could be interpreted as: (1) Avoiding food and activities, (2) Access to toilets, (3) Avoidance of sex, (4) Cognitive avoidance, (5) Not sharing with others, (6) Alternative treatments, and (7) Disease management. Each component was reduced to 3-5 representative items, resulting in a final, 25-item IBD-Bx questionnaire showing good concurrent validity (alphas > .63) and reliability. Almost all components were cross-sectionally related to levels of fatigue. Avoiding Food and Activities and Access to Toilets significantly predicted fatigue at wave 2 when controlling for baseline fatigue. Conclusions The IBD-Bx is a valid and reliable questionnaire of IBD-related behaviours, some of which predict future fatigue burden.

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Evaluation of the rating form for inflammatory bowel diseases patients concerns (RFIPC) spanish translation in Puerto Ricans with IBD

Cited by 4 publications

References 0 publications

The Rating Form of IBD Patient Concerns: Translation, Validation, and First Implementation of the Greek Version

The Rating Form of IBD Patient Concerns: Translation, Validation, and First Implementation of the Greek Version

Worries and concerns of inflammatory bowel disease (IBD) patients in Belgium – a validation of the Dutch rating form

Inflammatory Bowel Disease-related Behaviours [IBD-Bx] Questionnaire: Development, Validation and Prospective Associations with Fatigue

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